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Ongoing Pain Despite gluten-free Diet


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#1 zamm0

 
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Posted 02 October 2012 - 03:37 AM

OK, first post here and was diagnosed Celiac 2 weeks ago :-(

Can you still get pain (in the small intestine area) even though you've gone gluten free i.e. does the inflammation/damage you've built up IN THE PAST keep giving pain sometimes? Or is it more likely I'm not being vigilant enough and it really is to do with CURRENT gluten ingestion?
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#2 kittty

 
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Posted 02 October 2012 - 05:36 AM

OK, first post here and was diagnosed Celiac 2 weeks ago :-(

Can you still get pain (in the small intestine area) even though you've gone gluten free i.e. does the inflammation/damage you've built up IN THE PAST keep giving pain sometimes? Or is it more likely I'm not being vigilant enough and it really is to do with CURRENT gluten ingestion?


I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!
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#3 taxlady23

 
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Posted 02 October 2012 - 07:18 AM

I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!


My son 17, has been gluten free for over a year and a half now. His pain and cramping only went away a few months ago. It takes time to heal. Are you taking any natural supplements to help the healing process?
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#4 zamm0

 
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Posted 02 October 2012 - 08:25 AM

My son 17, has been gluten free for over a year and a half now. His pain and cramping only went away a few months ago. It takes time to heal. Are you taking any natural supplements to help the healing process?

Thanks to the above for taking the time to reply. I've just started taking a probiotic tablet twice a day and try to have probiotic yoghurt several times a week too. Also taking some iron to get my store levels up a bit but obviously that's not directly related to the healing. Let me know what else I can do....thanks,

Paul.
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#5 zamm0

 
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Posted 02 October 2012 - 08:31 AM

I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!

Until now I've been relying on a) "free from" sections of supermarkets, which are usually (but not always) a little pricey b ) basic knowledge of simple foodstuffs that won't contain gluten because they are pure c) the coeliac (spelling?) society food directory list.

What is quite curious is that I seem to get pain every other day or so but not always in the same area - whereas before it *was* mainly to the left of the navel about level with it, that pain has largely gone away but has been replaced with a more dull pain either above or below the navel (but on both sides). I did read that below can be to do with lactose intolerance i.e. dairy, which I have not cut out yet. That said, today I didn't have cereal and have only had milk in coffee/tea and that pain is not really there today but some pain is now above. All very confusing!!!
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#6 nvsmom

 
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Posted 02 October 2012 - 10:00 AM

I occasionally get crampy when I eat some gluten-free foods; I think it's more to do with the fact that it's junk gluten-free food and highly processed than anything. It's often a good idea not to replace gluten foods slice per slice with gluten-free foods. gluten-free foods are often higher in sugars and very processed; the regular foods are actually more nutritious. For example, I used to buy 4 loaves of bread a week for my family of five; we are now all gluten-free and I buy 1 Udi's loaf and a bag of their bagels and that's it. Our bread was cut by half.

I have issues with milk and had stomachaches with them too. It was different than the gluten stomachaches (which you'll probably know as a fact if you ever accidently gluten yourself). I recommend almond or coconut milks as a substitute for coffee and tea; they're not bad and the sweetened ones are quite tastey. Some people do okay if they have lactaid with their milk too. Anyways,f your pains go after eliminating milk, you'll have your answer.

Good luck. :)
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