Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dr Has Results
0

7 posts in this topic

I am so irritated right now. I had blood work done Friday morning. I am having lots of symptoms of celiac but also could be other things so they ran a bunch of blood work. I get a phone call this morning the dr got my blood test results and would like to see me. So I'm thinking they've found something, not necessarily celiac but something. Normally when its just anemia or something they just tell me over the phone. So I'm thinking, yay the blood test results are back, maybe I can get some answers. Nope, the dr can't fit me into his schedule until October 11! I am so upset! I told the receptionist that that was a really long wait and that I am very sick and she said (in a snide tone) well the results aren't urgent. They wouldn't consider celiac urgent so I am still thinking its a possibility but who knows. I am going to go insane waiting 9 more days to find out the rests of the blood tests. Then something even weirder - the dr wants me to repeat some of the blood work. I won't know until I get the requisition whether that includes the celiac testing or not. But why would a dr want to repeat bloodwork that was just done 4 days ago? I just feel so sick and I can't believe I have to wait 9 days just to see blood test results.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Can you ask them to make a photocopy of the blood work results and let you pick them up in reception? Or better yet, could they email them to you? In most states you don't have to wait and get the news from the doctor.

0

Share this post


Link to post
Share on other sites

I am so sorry - that is just wrong. I'd call back and ask for a return phone call from the doctor or minimally his nurse - sometimes the nurse can fit you in for a earlier appointment - dismiss the receptionist if she gives you attitude - simply be clear you need to talk with the doctor or his nurse - if she tries to dismiss you, tell her you have new pain that can not wait nine days for a conversation with the doctor. Demand to be told your results over the phone or to be seen sooner. Minimally you should be told what bloodwork needs to be re-done and why.

Has he ordered the new tests? If so, you can find out at the lab exactly what was ordered - he may have ordered additional tests, not just re-dos.

Medical testing limbo is the worse and is not necessary in this case.

Let us know how it goes.

Hang in there!!!!

0

Share this post


Link to post
Share on other sites

Can you ask them to make a photocopy of the blood work results and let you pick them up in reception? Or better yet, could they email them to you? In most states you don't have to wait and get the news from the doctor.

Yep, you can do what kitty suggested. If you didn't have the blood work done at the doctor's office, like at a hospital or outpatient facility, you could go and sign a release and pick up a copy of your blood work in medical records. I do this all the time to take to other doctors and for my personal file.

0

Share this post


Link to post
Share on other sites

Okay, my husband went and got a copy of the blood work but the celiac test result isn't on there??? Does this mean it wasn't back yet or something? He just did the tTG test. I paid $65 dollars so they darn well better have done it. Okay so for the blood test results that came back here is what is circled as being off: (I'm in Canada so some of the numbers might be different than what the US numbers would be)

Hemoglobin: 99 (normal is 120-160)

Hematocrit: 0.32 (normal is 0.35-0.45)

MCV (Mean Corpuscular Volume): 69.0 (normal is 80.0-100.0)

MCH (Mean Corpuscular Hemoglobin): 21.4 (normal is 27.5-33.0)

RDW (RBC Distribution Width): 16.1 (normal is 11.5-14.5)

Neutrophils: 8.3 (normal is 2.0-7.5)

Lymphocytes: 3.8 (normal is 1.0-3.5)

Eosinophils: 0.7 (normal is 0.0-0.5)

Ferritin: <5 (normal is 10-291)

Everything else was normal. I don't know if any of the above results point to anything (except obviously anemia). The only new test they are ordering is HB Electrophoresis, something to do with the red blood cells. I also bought a thermometer and my temp has been consistently hovering around 99.5 all day and I feel the same as I have felt for 3 weeks so I am assuming that I have had a low-grade fever the whole time.

0

Share this post


Link to post
Share on other sites




Okay, my husband went and got a copy of the blood work but the celiac test result isn't on there??? Does this mean it wasn't back yet or something? He just did the tTG test. I paid $65 dollars so they darn well better have done it. Okay so for the blood test results that came back here is what is circled as being off: (I'm in Canada so some of the numbers might be different than what the US numbers would be)

Hemoglobin: 99 (normal is 120-160)

Hematocrit: 0.32 (normal is 0.35-0.45)

MCV (Mean Corpuscular Volume): 69.0 (normal is 80.0-100.0)

MCH (Mean Corpuscular Hemoglobin): 21.4 (normal is 27.5-33.0)

RDW (RBC Distribution Width): 16.1 (normal is 11.5-14.5)

Neutrophils: 8.3 (normal is 2.0-7.5)

Lymphocytes: 3.8 (normal is 1.0-3.5)

Eosinophils: 0.7 (normal is 0.0-0.5)

Ferritin: <5 (normal is 10-291)

Everything else was normal. I don't know if any of the above results point to anything (except obviously anemia). The only new test they are ordering is HB Electrophoresis, something to do with the red blood cells. I also bought a thermometer and my temp has been consistently hovering around 99.5 all day and I feel the same as I have felt for 3 weeks so I am assuming that I have had a low-grade fever the whole time.

anemia and perhaps infection. The RDW means RBCs are being released before they are quite mature, probably in reaction to your anemia, but are you bleeding anywhere? The MCV being lowish, I am thinking iron def anemia rather than B12.

If your WBCs weren't "off", I would have been willing to discount the Temp, after all 98.6 is only a mean. If you can tolerate Acetominophin, you could try a couple of doses and recheck your temp. Good luck.

0

Share this post


Link to post
Share on other sites

They may have needed to send the celiac test to a different lab, which is why it's taking longer.

Your blood results are very similar to what mine were pre-gluten free. I also had low MCV and MCH, high RDW and high white blood cell counts. I don't know if that's typical with celiacs, or if it's just a coincidence.

Even though I've been gluten free for about six months the neutrophil count is still really high, which can be an indication of celiac-related inflammation being repaired.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,384
    • Total Posts
      920,607
  • Topics

  • Posts

    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
    • Thank-you, thank-you! I am so relieved to have input from others who have experience with celiac disease. I'm not sure what I'm going to do about the school cafeteria. I'll ask our very nice and experienced Cafe Mgr for realistic info and details. My primary concern is the safety of my daughter and packing a lunch will not be that big a deal, even though she prefers the fresh prep instead of lunchbox offerings. Sigh. It sounds as if the 504 is unquestionably the preference over the IHCP, since the 504 is binding and follows the student through his/her academic career. I have a meeting with the admin team on Tuesday. Until then, I'm reading lots so i can be informed. And, dkader, I sent you a private message via the blog's feature. I'd certainly love to read the 504 info you have squirreled away. Thank-you so much!
    • The risk of a non-celiac getting intestinal lymphoma is extremely tiny.  The risk of someone with refractory celiac disease is higher (I think maybe double?) but 2 x extremely tiny is still extremely tiny, and an elevated antibody level is not enough to say you have the refractory version.  You could have a repeat endoscopy to look for damage.  Are you still having symptoms?
    • Hello... i got dignoised July 11th... since then I found out I can't handle corn, garlic or dairy.... her stomic might be extra sensitive right now.... im not a doc but I have noticed with out those three foods I have felt better but I belive I might have to cut out more  good luck with you child!!! Its hard
    • About the dairy...I have been giving her lactose free milk and she doesn't have much else for dairy. I am lactose intolerant and I get nausea right away and then get diarrhea later. My daughter doesn't seem to have the same type of reaction I do, so I don't think it's that. For those that are lactose intolerant, were you sick right after eating lactose, or did it take a few hours or days?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined