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I'm Having And Endoscopy Pretty Soon To Check For Barret's Esophagus
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Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

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Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

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I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

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Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

I was really nauseated after my first endoscopy and throwing up a lot because of an adverse reaction to the sedative that they used but other than that I was fine. You don't feel anything from the biopsies. I had to have my esophagus dilated due to strictures. Yes I too have terrible reflux and like you will have to take Nexium for life :( According to my husband who was with me in recovery after my first endoscopy I would wake up briefly ask how it all went then be sick and immediately fall asleep for a few minutes then wake up and ask the same question all over again..ha..ha..he said this went on for about twenty mins. For each subsequent endoscopy they used a different sedative and I've never had the same reaction thank goodness.

I'm not sure how much gluten you should be eating but I think as long as you've been eating some daily and not been completely gluten free you should be fine. Maybe someone else can answer that for sure.

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<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

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<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

Yes I do need to clean up my diet, I find it hard to give up my one cup of coffee. :) I must have silent reflux cause I don't feel the "backsplash" very often...so in that case how would I know whatever I'm trying is working??

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If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

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If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

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My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

Well then, by all means, continue :)

Hernias aren't fun though :/

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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