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I'm Having And Endoscopy Pretty Soon To Check For Barret's Esophagus
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Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

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Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

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I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

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Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

I was really nauseated after my first endoscopy and throwing up a lot because of an adverse reaction to the sedative that they used but other than that I was fine. You don't feel anything from the biopsies. I had to have my esophagus dilated due to strictures. Yes I too have terrible reflux and like you will have to take Nexium for life :( According to my husband who was with me in recovery after my first endoscopy I would wake up briefly ask how it all went then be sick and immediately fall asleep for a few minutes then wake up and ask the same question all over again..ha..ha..he said this went on for about twenty mins. For each subsequent endoscopy they used a different sedative and I've never had the same reaction thank goodness.

I'm not sure how much gluten you should be eating but I think as long as you've been eating some daily and not been completely gluten free you should be fine. Maybe someone else can answer that for sure.

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<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

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<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

Yes I do need to clean up my diet, I find it hard to give up my one cup of coffee. :) I must have silent reflux cause I don't feel the "backsplash" very often...so in that case how would I know whatever I'm trying is working??

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If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

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If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

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My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

Well then, by all means, continue :)

Hernias aren't fun though :/

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
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