Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Have The "what Got Me This Time" Conundrum
0

13 posts in this topic

I've been gluten-free for 11mos. I keep a food and symptom log and it's clear that things are markedly improved over time...far less bloating, headaches, canker sores, fatigue, muscle aches, etc. My home is not gluten-free but our common dinner is always gluten-free. The kids and hubby may have gluten with breakfast or lunch (weekends, weekdays we are all at work/school). Over time I've gotten my own toaster, cooking utensils, strainer and label condiments that might get used on gluteny foods (like butter tub). Hubby, who is the cook, has really adapted well and respects my need for gluten-free and no CC. But every once and a while something gets me in a home cooked meal and it is frustrating when I know the meal was gluten-free. Last night for instance, we ate boneless chicken breast marinated in italian dressing (labeled gluten-free), cooked on the grill (we don't cook gluten items on the grill), with a side of corn (from frozen) and baked potato (cooked in the microwave on a clean plate). I put salt, pepper and butter on the potato. Butter was from the gluten-free labeled tub. We all ate the same meal. No gluten foods at all at the meal. About 45min after dinner my stomach was bloated up HUGE and I was uncomfortable (almost painful from the expansion) and nauseous (also from the expansion). I took a phazyme and it resolved about 1hr later. I mentioned to my husband that something didn't set well with me and he was somewhat unsympathetic and said, how could that be it was all gluten-free.

The only thing that I can think of was that the corn was stored in a plastic rubbermaid container and reheated in the microwave. It was a pretty big portion of corn so most of it wasn't touching the bottom/sides of the container. Could the container have glutened me even if it was cleaned in hot, soapy water? I had a small portion of that corn a few days ago on a santa fe style lettuce wrap but I ate it cold. No reaction that day. And it's not like I haven't eaten leftovers in those same containers before. A few weeks ago I had a similar reaction to gluten-free pasta w/ sauce and I assumed it was the cooking pot. Have I really reached the juncture of having to only store and cook food in my own containers? Can that really be the issue?

The bloating was my biggest issue leading me to try to find a diagnosis. I was convinced I had cancer, hernia, or something. My celiac panel was negative but a good response to elimination diet. I was bloating 14 or more days a month. Now it's only 2-3 at most. It's just frustrating to feel like you are doing the right things and then some mystery something gets me. And it also makes a voice in my head wonder what if it isn't gluten, what if it's something else, maybe not even a food, maybe I should chow down on a bagel and see what happens (don't worry, I haven't)?

0

Share this post


Link to post
Share on other sites


Ads by Google:

has the grill been used to grill with stuff that has sauces on it? Sometimes those have gluten.

It is generally reccomended to replace tupperware as it is rather inexpensive, however if it had scratches it is possible that there could have been cc.

What type of sauce was it? There could be something in common with that and whateveryou ate.

0

Share this post


Link to post
Share on other sites

Or it could be that someone in the house made a mistake at one point and used your butter with a gluteny knife and forgot to tell you.

And pardon me if I sound preachy, but you should never heat anything in a plastic container. They outgas into your food. I'm not saying that's what got you sick, but it's a good idea to transfer anything you're going to heat in the microwave into a glass or ceramic bowl.

0

Share this post


Link to post
Share on other sites

DH is meticulous with cleaning the grill and I can't think of any gluten sauces that would've been used. The sauce this time was just plain ole italian salad dressing, Wegman's brand, so a nice big gluten-free on the front of the bottle. The kids aren't old enough to use the butter themselves so it's just DH and I and we have a gluten-free one and a not gluten-free one and DH is really good at only choosing the right one. I don't think he'd make that mistake and then not tell me.

I can't think of anything in common between the pasta sauce (also Wegman's and labeled gluten-free) and the italian dressing but I will definitely check the ingredients list. Good idea. I'm actually now recalling that another time I was mysteriously ill was after a dinner with plain white rice. It's possible the rice, pasta sauce, and corn were all cooked in the same pot and that pot has CC issues. But I did eat that same corn the day before w/out issue. Hmmm....tempted to eat the corn tonight, by itself and see what happens.

Bartful, yep, guilty of microwaving in plastic. I know I know.

0

Share this post


Link to post
Share on other sites

I have concerns about microwaving in plastic that are not the traditional "zomg ur gunna get cancer!!!" concerns. Mine are more grounded in our celiac world. When you microwave in plastic you will notice maybe not the first time, but over time that the plastic becomes damaged. Well, just because you can't see it the first time doesn't mean it hasn't begun to happen. For the same reason none of us would dream of using a plastic spoon that was left in a pot and got melty in a shared household, none of us should use plastic containers that have been used in the microwave in a shared household. I have a strict absolutely no shared anything policy. This includes all dishes. I microwave in my plastic containers as much as I like because I know there is no chance that anything with gluten will ever ever end up in those containers. If that weren't the case we would have a strict no microwave policy. (Which we should have anyway but it's just too darn easy to get frozen spaghetti sauce out and set it to defrost for 5 minutes.)

0

Share this post


Link to post
Share on other sites




It could be the butter, Mayber you are sensative to dairy???

0

Share this post


Link to post
Share on other sites

I have concerns about microwaving in plastic that are not the traditional "zomg ur gunna get cancer!!!" concerns. Mine are more grounded in our celiac world. When you microwave in plastic you will notice maybe not the first time, but over time that the plastic becomes damaged. Well, just because you can't see it the first time doesn't mean it hasn't begun to happen. For the same reason none of us would dream of using a plastic spoon that was left in a pot and got melty in a shared household, none of us should use plastic containers that have been used in the microwave in a shared household. I have a strict absolutely no shared anything policy. This includes all dishes. I microwave in my plastic containers as much as I like because I know there is no chance that anything with gluten will ever ever end up in those containers. If that weren't the case we would have a strict no microwave policy. (Which we should have anyway but it's just too darn easy to get frozen spaghetti sauce out and set it to defrost for 5 minutes.)

Sound advice. I have a few small glass containers that I use for things that are specifically my leftovers, things I bring to heat at work, etc. That worked great when I was eating totally different foods from the gluten family. Now that the items that we have for dinner, which is what generates the leftovers, is in family size quantities we have a need for much larger storage containers and therefore using our old/regular stuff. Time to convince DH to buy new!

0

Share this post


Link to post
Share on other sites

There is also the possibility that you have an additional intolerance. I kept thinking I was being glutened even by gluten free stuff in the beginning but it turned out I am sensitive to soy. I don't know about the pasta sauce but I do know I can't have many salad dressings because of the soy oil in them.

0

Share this post


Link to post
Share on other sites

If I freeze anything, even liquids like spaghetti sauce, I put them in ziplock freezer bags. They don't leak, and when I need to defrost I can dump them from the bag into a bowl. Sometimes I end up peeling the bag loose but I always get it out.

I'm laughing at myself a bit here. I am so careful about things like microwaving plastics, GMO foods, I buy mostly organic, have given up rice in light of the arsenic scare...and I still smoke. What an idiot I am!! :lol:

0

Share this post


Link to post
Share on other sites

For myself, i am gluten and lactose intoletant. Also, i have to avoid msg like a rash due to migraines. I would think you are dealing with a cc issue or another food sensitivity. If i consume too much lactose, ahh bless, i might as well forget doing anything for the rest of the day. I get bloated, abdominal pain, the runs, gas, thats even with four lactaid. My allergist told me just to pack it in. Giving up gluten was easier than giving up dairy. Also, i should avoid corn. I rarely eat it, but when i do i am bloated and constipated. Not allergic, mind, its just bothersome. I really hope you figure it out.

0

Share this post


Link to post
Share on other sites

I'm pretty sure it was the corn. Now, no idea what about the corn...the corn itself, the pot it was cooked in, etc. But we had a different meal (hot dog sans bun, squash, and leftover corn) for dinner last night. I purposefully took the corn out of the plastic container and put it into a glass bowl to reheat in the microwave. I had a small serving. I was feeling bloated and nauseous before the meal was even over. Not nearly as bad as the other night but still detectable. Today I have a nice crack in the left corner of my mouth. I never used to get those (I'm more a canker sore sufferer) but I've noticed that since going gluten-free that if I get glutened I either get a canker sore or a mouth crack. Fun times.

Definitely time to replace the pots.

0

Share this post


Link to post
Share on other sites

I never resolved my cc issues until I stopped using plastic containers - in the microwave or when baking. Since I switched to glass containers I have been fine. And yeah, I also use ziploc bags for storage and to freeze things.

0

Share this post


Link to post
Share on other sites

I have the same problem with a bloating reaction and I just "know" that I must've gotten glutened somehow. Did I breathe it in? Did the treat that I fed the dog contain gluten and I forgot to wash my hand before eating? Did I get some gluten dust on me (we live on a farm and my husband and kids often come in with cattle feed dust on them and their clothes).

Or maybe it's something else entirely...some unknown disease...Some common disease...No disease at all...Maybe it's in my head...

This has got to be the most infuriating part of this disease. Even when you are watching everything you do, you still have some random symptom pop up!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,098
    • Total Posts
      920,345
  • Topics

  • Posts

    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
    • Well, a different doc is checking for wheat allergy not the one who ran the celiac test. Interesting about the lyme and ttg iga, I didn't know that.  So much to muddy the waters with her.  She's been treated for lyme for many years but they keep coming back with other tick borne illnesses that may be infecting her.  But since  the testing is so poor and nothing is solid in her testing, I am needing to look at every avenue I can to try to help her.  It's just not adding up. As a young child she had sensory processing disorder, than PANDAS (reaction to strep), then Lyme.  Was gluten free for many years until we added it back in about 4 years ago.  Then 3 months ago started failing fast with psych symptoms of dissociation, anxiety, fears, unwanted laughter, joint pain, random pain, feeling ill after every meal, severe pain after wheat and dairy combo followed by diarrhea.  I hope we get a good GI who will at the very least be willing to rule out celiac as we are running out of ideas.   I hope after all her testing she will be willing to go gluten-free again regardless of what we find, to see if it will help her.                 
    • Great point.  EoE!   http://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined