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Self-Mutilation


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19 replies to this topic

#16 squirmingitch

 
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Posted 04 October 2012 - 04:51 PM

First Pigmi, your djd & my djd may be at completely different stages so there is no way to compare apples to apples. I did not have any pain meds for mine. They said there were no pain meds that would help. I, instead, received the steroid shots in my back/neck commonly called epidurals. The doc said there were no exercises, no physical therapy that would help me. I got the epidurals & they made a big, big difference!
BTW, any post you make on this thread can be read by all who read this thread. You don't have to respond to the actual person unless what you're saying is that when you try to do the "reply" which quotes what I wrote as well as your response isn't working --- don't worry about it. We know what you're saying anyway as long as you post.
Now, back to pain. Celiac disease can cause MAJOR, MAJOR screaming pain in any & all parts of your body. Gluten acts like poison to us. And that poison can travel our entire bodies. Normally I would have had to have 1 to 2 epidurals by now & I haven't needed them. I am 10 months gluten-free now. I have some stuff still going on but it is so minor compared to what was happening. I feel things getting better. Do your hands &/or feet get that "needles in them" feeling? That's common for the neuro symptoms & I had that & they attributed it to the djd. I haven't had that lately. I would have such screaming pain which seemed to travel around to diff. parts of my body. My hips would get so painful I can't even describe it. My hands would be so bad off that the slightest touch of a kleenex rubbing across them would send me into spasms of mind wrenching pain. It might be one or both knees for a few days then it might be a foot for a few days or 5 days. It might be my neck, it might be one or both wrists, it might be a shoulder, it might be the bone between my elbow & wrist. INSANE pain! Not able to sleep pain. Not being able to touch anything pain. Not being able to hold a fork pain. Pain that makes you think it would be easier to be dead.
I know now that a good deal of my pain was not from the djd but from gluten. It remains to be seen ultimately just how much. Healing does take time.
Gluten, for celiacs causes anxiety & depression & rage/anger. Ask almost anyone here if they had anxiety, depression, anger. I did. And that was sooooooooo NOT me. I had never been depressed a day in my life. But the last 5-7 years I had become more & more & more depressed. Depressed to the point I was headed right down a road to suicide. I had also developed major anxiety. And anger? Oh! Hell hath no fury as I did 24/7. My hubs could say, "honey, you look lovely today" & I was ready to chop his head off with an axe. Gluten. Gluten. Gluten. Now, today, I can't even hardly believe I was that person who contemplated suicide, who was a flaming, nasty, major bitch! How long gluten-free before I began to come out of that? 2 months maybe. In 4 months I could look back & wonder who that person was that I had been while in gluten induced hell. Now, 10 months, I am almost back to ME.
You know, all those meds you're taking can cause major "C". Especially the opiates. And when you go gluten-free your entire body has to "reset" so there will be ups & downs. Been there, done that. It doesn't happen overnight. But it DOES happen!Posted Image there is also a very real (for 99% of us) gluten withdrawal. You will feel weird. You will be ravenous. You will feel "spacey", "out there", sort of dizzyish, sort of detached from the world, there were times I felt my knees would buckle. How long did that last? FOR ME --- 4-6 weeks. Everyone is different. My hubs never had ANY gluten withdrawal. Go figure. but he had been gluten light for 6 months b/c of me.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


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#17 squirmingitch

 
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Posted 04 October 2012 - 06:27 PM

Pigmi, read these threads please. they will tell you so much more than I can explain:

http://www.celiac.co...ng-gluten-free/

http://www.celiac.co...l-in-your-head/ Pay special attention to IrishHeart's post on this thread. She nearly died from

undx'd celiac. Pain? Oh she had pain. That's putting it mildly.

And another thought --- about the "C". Try eliminating all diary from your diet. You should anyway until your villi heal some.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#18 Pigmi

 
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Posted 05 October 2012 - 08:38 AM

[/quote]
And another thought --- about the "C". Try eliminating all diary from your diet.
AAAaaahhh, no that is the only thing I have been eating. Another thing to eliminate. On top of that I am really missing all of my sugary treats. I just have to think, the day will come, I will feel better. Take it a day at a time.

You did put me at ease, Because I was wondering if I was having a relapes in my pain. I am not feeling good...at all. For some unholy reason the right side of my back is a horrible spasm...I have a hump, 37 and I have a hump. We are talking non-stop knot for three days now. It is also starting to spread across my whole back. Which should be physically impossible since my nerves are supposedly dead. I have not left the couch. I am having the opposite problem, I have lost my all desire to eat. When I do try and eat I get horrible stomach rot.

I am sorry that you have the same curse of degenerative disc disease. But, it has been nice to find someone with the same issues I have. I am going to check out those links you sent right now.

I went down the same rd a few years ago too, and I also have a very understanding husband. I still think that sometime he quietly mutters, boy she sure is being a bitch today. Poor guy, he is being put on the gluten free diet too weither he likes it or not :)
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#19 squirmingitch

 
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Posted 05 October 2012 - 09:14 AM

For sweets ...... oranges. tangerines, apples, mangos, grapes, pears, plums, nectarines. Take apples, peel & cut, put them in microwavable bowl, a tiny drizzle of safflower oil, sprinkle with brown sugar & cinnamon to taste. Nuke for 1 to 1 1/2 minutes. Fast, easy & yum! And good for you! Take apple slices & put nut butters on them --- I like cashew butter. Larabars ---- O-M-G! Nothing but nuts & dried fruit. I like the cashew cookie ones --- nothing but cashews & dates --- non GMO. How about a fruit salad? gluten-free tapioca pudding. You can make hot cocoa w/o milk --- hey, it isn't fabulous but it isn't bad either --- water in the mug, nuke till good & hot, add Hershey's cocoa powder & sugar to taste. Beats not having hot cocoa.

Oh! Fried chicken nuggets? See, I'm a southerner & I don't call stuff baked in the oven FRIED!Posted Image I was missing fried chicken; oh man was I missing fried chicken. I posted on the cooking forum. They came through for me. Corn starch. Cut boneless, skinless breasts up into nuggets or strips, dip in milk (that tiny bit shouldn't hurt) & coat with seasoned corn starch, fry 'em. YES!Posted Image

For that hump/knot --- my spine specialist said get in the hot shower & let the hot water run over the bad places. It does help. Or you could soak in a tub with some epsom salts in it.

You'll find lots of us here have the same things. Celiac is responsible for osteoporosis/osteopenia via malabsorbtion.

Just take it one day at a time. I PROMISE it DOES get better. There will be rough patches but just keep plugging away & you will get there!
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#20 squirmingitch

 
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Posted 05 October 2012 - 06:03 PM

Pigmi,
especially for you & your sugar treat:

http://www.enjoylife...dark-chocolate/



Oh, & if you want to help others then here's what you can do. Go to this forum & post your doctor's name & city, state & the same for derm. I don't know if you got dx'd by a derm or a GI or what but if you post the knowledgeable doctors info. on that forum it could help anyone who is looking for a doc for a dx in that area anytime in the future.
http://www.celiac.co...isease-doctors/
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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