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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What More Can I Do About My Mother.
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8 posts in this topic

It would be hard to describe the whole situation. I was diagnosed celiac last May by a genetic test. The same test was so positive that it was known both of my parents have the genes for it. I told them and all my extended family of my diagnosis. I also wrote to Mom's doctor to ask him to consider this diagnosis in my mother's care.

Dad said that Mom was just not up to a diet change then. She had begun some bizarre behaviours such as expecting company when there was none. She eventually got some psychotic drugs to try to help her brain function better. She became physically weak. The other day she couldn't rise from her kitchen chair for the entire day. Eventually, they had to call an ambulance to come get her.

The doctors are not telling what is wrong my Dad says. They aren't trying to explain why she is so weak suddenly? They may release her from the hospital today if she can walk. How does something like that mysteriously change?

What can I do? What can I do?

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My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

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My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

I live an hour and a half away and we are now short of cars in the family. I have given the doctor my name and phone number when I told his that I have celiac.

Did your Mom ever pull out of it? Mine has been so well and she is only 71. Dad is 81.

II don't think the doctor is allowed to discuss her healthcare with me. Mom and I have vastly different ways of looking at health care.

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I don't think the doctor is allowed to discuss her healthcare with me.

Even if he can not talk, he can listen.

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My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

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It might be worthwhile to check the drugs she is on for side affects. Some drugs can have very strong side affects.

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My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

My dad is a gem. My siblings are all involved. I just found out that the weakness was probably a side effect of a drug she went on two months back.

I will be sure to leave a note for the doctor if I have further questions.

Thanks,

Diana

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I think it is difficult for others to see what we have had to go through and do not want to admit that they might have a similiar problem. Both my parents and my brother have auto immune disorders which are associated with celiac diease. I too have suggested that they get tested just to be certain. Of course they will not. I really do hope your family get tested, but sometimes all we can do is be supportive.

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