Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Tests Negative
0

11 posts in this topic

Well got my blood work back from Doctor and the panel was negative. I don't have the exact numbers except for IgA which was 189mg/dl. The others just said negative. Am I right in thinking that it is still possible to have negative results on blood tests but positive biopsy? I haven't scheduled an endoscopy as of yet but I'm due for a check on my Barrett's soon so will ask my GE to biopsy for Celiac's at the same time.

I'm a little ticked off as my husband went to the Dr for his own problem and they started talking about me and the Dr sort of suggested in a roundabout way that my problems could be depression related!! Dr didn't breach any code of ethics etc but still it ticked me off because I didn't get my Barrett's, Hashimoto's, 6 miscarriages, Diverticulosis, or my vitamin D level of 4 just because I'm depressed if anything I'm a little depressed because I'm not getting answers!!

Sorry for the rant.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, you can have negative blood results and positive biopsy.

The advice is to carry on eating gluten until the endoscopy is done.

Doesn't sound like depression was the cause of that lot.

Sorry to hear things have been so tough.

I had recurrent miscarriage, but am now blessed with 2 kids. I wouldn't wish that loss on anyone.

I am waiting for my biopsy results, had it yesterday. Good luck with yours.

And hey, this is a great place to rant x

0

Share this post


Link to post
Share on other sites

Yes, you can have negative blood results and positive biopsy.

The advice is to carry on eating gluten until the endoscopy is done.

Doesn't sound like depression was the cause of that lot.

Sorry to hear things have been so tough.

I had recurrent miscarriage, but am now blessed with 2 kids. I wouldn't wish that loss on anyone.

I am waiting for my biopsy results, had it yesterday. Good luck with yours.

And hey, this is a great place to rant x

I'm glad you were finally able to have two successful pregnancies :)

Yes I plan on continuing to eat gluten until the biopsy even though a huge part of me just wants to go gluten free right now!

Did you have any blood work done and if so what were the results if you don't mind me asking? I hope you don't have to wait too long for the biopsy results. I know with my Barrett's it only took about a week.

0

Share this post


Link to post
Share on other sites

Bloods were just one test, and no scale, just negative. Sadly, I hadn't found the forum then and didn't know what to ask for.

I didn't manage to do the whole gluten challenge, made me to ill. I dont expect the biopsy to help really, so I am having to self diagnose based on history and response to gluten free diet. 2 weeks to wait for results here.

It's worth hanging in if you can.

I did suffer from stress, anxiety and depression, especially after the miscarriages, and did get some professional support to help me through. They said it wasn't surprising I was stressed with everything going on.

0

Share this post


Link to post
Share on other sites

Dr sort of suggested in a roundabout way that my problems could be depression related!!

If we all had a nickle for every time we heard that...

0

Share this post


Link to post
Share on other sites




If we all had a nickle for every time we heard that...

They never seem to recognize that there is a damned good reason for most of this depression. Depression is normal if your life is depressing :ph34r:

0

Share this post


Link to post
Share on other sites

I, like you, had a positive TTG IGA but with a negative biopsy and a positive genetic test (i have both? lol). That and with the positive reaction to the diet, yes, i do have it (even though my doctor just says "intolerence" >.>).

I had to do the biopsy 4 weeks after i went gluten free O.O

0

Share this post


Link to post
Share on other sites

I, like you, had a positive TTG IGA but with a negative biopsy and a positive genetic test (i have both? lol). That and with the positive reaction to the diet, yes, i do have it (even though my doctor just says "intolerence" >.>).

I had to do the biopsy 4 weeks after i went gluten free O.O

My tTG IgA was negative my IgA level was 189 mg/dl I don't know the difference between those two. I wish they'd give numbers instead of just negative for all the tests and actually have the numbers in corresponding columns! It would make it so much easier to read.

I firmly believe that we know our bodies better than any Doctor and I know for sure that whenever I have a lighter gluten day as in if we eat rice as opposed to bulgur I have less problems with bloating, cramping etc. I will go gluten free regardless of what the biopsy reveals once I have it. I may have the genetic test done just to see if I carry the gene. I seem to remember when I went through some fertility treatments 10 years ago that we had HLA testing done and I'm pretty sure I remember DQ8 but of course I can't find the paperwork and the clinic was bought out and all my files have gone into storage and can't be accessed.

0

Share this post


Link to post
Share on other sites

Your IgA level of 189 would be your total serum IgA, a test which is run as a control to make sure that your body produces normal amounts of IgA. The value of 189 would seem to put you squarely in the normal range. :)

0

Share this post


Link to post
Share on other sites

Your IgA level of 189 would be your total serum IgA, a test which is run as a control to make sure that your body produces normal amounts of IgA. The value of 189 would seem to put you squarely in the normal range. :)

Thanks you. Normal is good. :)

0

Share this post


Link to post
Share on other sites

Well got my blood work back from Doctor and the panel was negative. I don't have the exact numbers except for IgA which was 189mg/dl. The others just said negative. Am I right in thinking that it is still possible to have negative results on blood tests but positive biopsy? I haven't scheduled an endoscopy as of yet but I'm due for a check on my Barrett's soon so will ask my GE to biopsy for Celiac's at the same time.

I'm a little ticked off as my husband went to the Dr for his own problem and they started talking about me and the Dr sort of suggested in a roundabout way that my problems could be depression related!! Dr didn't breach any code of ethics etc but still it ticked me off because I didn't get my Barrett's, Hashimoto's, 6 miscarriages, Diverticulosis, or my vitamin D level of 4 just because I'm depressed if anything I'm a little depressed because I'm not getting answers!!

Sorry for the rant.

Unless you have given your doctor SIGNED consent to share info with your husband, the doctor has committed a HIPAA violation. This is a very big nono. could cost the doc big$ in fines. If you wish to continue with this doc, you need to set firm limits and clear expectations.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,114
    • Most Online
      1,763

    Newest Member
    3boymommy
    Joined