Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Do You Want To Tell Your Friends And Family About Living Gluten Free?
0

26 posts in this topic

Hi all,

Some of the students on the campus I work at have started a wonderful "Gluten-Free campus" awareness group. They are having a fair in a couple weeks to increase campus awareness. I thought it would be useful to have a small flyer available to pass out on "How can I help my Gluten-Free Friend" with some do's and don'ts we gluten-free people wish our families and friends knew.

For example:

Don't: Offer us "just one bite" of that really yummy treat or tell us "you can cheat this time". Sorry, we really can't.

Do: Continue to invite us to do things: we still want to hang even if we can't have a beer with you.

Don't: offer us home baked goodies--- even if the treat was cooked without gluten, if it was made in a kitchen that has flour in it, it isn't safe for us.

Please suggest some other things that we could put on this flyer. What do you want to tell your friends and family??

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Do look for Gluten-Free treats for your Gluten-Free friend. Keep one or two things stocked at your place for them.

Plan on dining somewhere that has a Gluten-Free menu if you eat out so your friend does not feel out of place.

Do not ask so many questions that the person is the center of attention, unless they feel comfortable.

If you can read Elizabeth Hasselbeck's book The Gluten-Free Diet she has an entire chapter about entertaining and how to make a person feel comfortable.

0

Share this post


Link to post
Share on other sites

A gluten free diet isn't a fad or a weight loss tool - it's a necessary medical treatment.

Lots of people think it's just a celebrity diet plan, because that's the only time they hear about it in the media.

0

Share this post


Link to post
Share on other sites

Thanks JoolsJewels and Kitty, these are great suggestions. Any more out there?

If I get this together in time for our Gluten-Free carnival next week I'll post it here.

0

Share this post


Link to post
Share on other sites

My close friends all know the drill and are wonderful, but people I only see on an occasional basis are so persistent in trying to feed me. I would say to people, "Stop trying to feed me! The world will not end if I bring my own dinner!!"

1

Share this post


Link to post
Share on other sites




Even though it is called a disease, we are not sick (once we have recovered from gluten damage). We will only be sick if we eat gluten.

1

Share this post


Link to post
Share on other sites

Do not feel sorry for us - we can control a serious medical condition by eating healthy foods - no medication, no surgery. We are fortunate :)

2

Share this post


Link to post
Share on other sites

Celiac is not an allergy, it is an autoimmune disease.

0

Share this post


Link to post
Share on other sites

No, I don't do photosynthesis. I eat while I am at home.

1

Share this post


Link to post
Share on other sites

It's not the end of the world to be gluten free. There is still lots of food we can eat. If you have symptoms get yourself tested!

0

Share this post


Link to post
Share on other sites

1 of 133 people in the US have celiac, and over 90% don't know it. About 30% of the population has at least one of the genes for celiac disease, and could develop the active disease at any time in their life. You probably know several people with celiac disease who aren't aware they have it.. Diagnosis in the USA takes on average about 9 years. If you know someone with IBS, thyroid disease, arthritis or any other autoimmune condition, suggest they get tested for celiac disease too. You may save their life!

1

Share this post


Link to post
Share on other sites

This sounds great Lisa. If you do make a flyer could you please provide us with a digital copy somehow?

0

Share this post


Link to post
Share on other sites

That I cannot "reverse" my gluten intolerance by eating small amounts of it, gradually increasing the amounts. So glad it worked for you (I personally suspect your gut has healed for now and you will be hit hard again in a matter of time), but as for me and my child...um: NO.

1

Share this post


Link to post
Share on other sites

No, worrying about cross-contamination is NOT "going overboard".

Seriously, if you touch my food after eating a sandwich, I WILL get sick. If I just pick the croutons off of my salad, I WILL get sick. If I just eat the pie filling and don't eat the crust, I WILL get sick. If my boyfriend kisses me without brushing his teeth after eating pizza, I WILL get sick.

So if you call trying NOT to get sick "going overboard", I suggest you think again.

2

Share this post


Link to post
Share on other sites

Please don't tell us that that you wouldn't be able to handle our situation because you "would just DIE without breads and cakes" - we get it, you like bread....personally, I'd prefer to go an hour without running to the bathroom... :)

(I heard that one THREE times this week!)

But more importantly, get yourself tested!! I had no idea I had it, so you may not either!!!!

0

Share this post


Link to post
Share on other sites

Please don't tell us that that you wouldn't be able to handle our situation because you "would just DIE without breads and cakes" - we get it, you like bread....personally, I'd prefer to go an hour without running to the bathroom... :)

(I heard that one THREE times this week!)

But more importantly, get yourself tested!! I had no idea I had it, so you may not either!!!!

Sort of on that note: I heard from 2 different people over one weekend that they put their dogs on a grain free diet because it's so much healthier for the animals...but they themselves would "die" without bread.

1

Share this post


Link to post
Share on other sites

1 of 133 people in the US have celiac, and over 90% don't know it. About 30% of the population has at least one of the genes for celiac disease, and could develop the active disease at any time in their life. You probably know several people with celiac disease who aren't aware they have it.. Diagnosis in the USA takes on average about 9 years. If you know someone with IBS, thyroid disease, arthritis or any other autoimmune condition, suggest they get tested for celiac disease too. You may save their life!

This is great. Is there references for any of this? I would like to list sources.

0

Share this post


Link to post
Share on other sites

Thanks again for the tips provided above. Below is the final text for what we distributed. It was formated to fit one side of a 8.5 X 11 sheet of paper. (I couldn't figure out any way to attach a pdf, but if there is a way I can do that).

*******************************************************

About the Gluten-Free Life:

Gluten is a protein composite found in wheat, barley, rye and some other grains. Some people must eat Gluten-Free because they have Celiac’s disease. Some others have an allergy to wheat specifically, and it is just easier to cut out all gluten. And some more have a condition called “non-celiac’s gluten intolerance” which is only recently being accepted by the medical community.

For Celiac’s disease alone-- 1 of 133 people in the US have celiac, and over 90% don't know it. About 30% of the population has at least one of the genes for celiac disease, and could develop the active disease at any time in their life. You probably know several people with celiac disease and some may not be aware they have it. Diagnosis in the USA takes on average about 9 years.

Symptoms include GI distress, inflammation, joint pain, and fatigue. Also, if you know someone with Irritable Bowel Syndrome, thyroid disease, arthritis, or any other autoimmune condition, suggest they get tested for celiac disease, and/or try a gluten-free diet. You may save their life!

How to be a good “Gluten-Free” friend!

Do--- know that a gluten free diet isn't a fad or a weight loss tool - it's a necessary medical treatment.

Don't-- offer us "just one bite" of that treat or tell us "you can cheat this time". Sorry, we really, really can't.

Do-- invite us to do things: we still want to hang even if we can't have a beer with you (most beer has gluten).

Don't-- offer us home baked goodies--- even if the treat was cooked without gluten, if it was made in a kitchen that has flour in it, it truly isn't safe for us.

Do-- look for certified Gluten-Free packaged treats for your Gluten-Free friend and maybe keep one or two stocked.

Don’t--- tell us worrying about cross-contamination is "going overboard". Seriously, if you touch our food after eating a sandwich, we WILL get sick. If we pick the croutons off of our salad, we WILL get sick. If we just eat the pie filling and skip the crust, we WILL get sick. If our partner kisses us without brushing their teeth after eating pizza, we WILL get sick.

Do-- plan on dining somewhere that has a Gluten-Free menu when you eat out so your friend does not feel out of place.

Don’t—reuse plate or swap utensils at a salad bar or buffet.

Do-- stop trying to feed us! The world will not end if we bring our own dinner!

Don’t-- think it's the end of the world to be gluten free. There is still lots of food we can eat.

Do--- know that I cannot "reverse" my gluten intolerance by eating small amounts of it

Don't-- tell us that that you wouldn't be able to handle our situation because you "would just DIE without breads and cakes" - we get it, you like bread. So did we once. It turns out to be a lot less tempting when it makes you sick.

Do—know that even though it is called a disease, we are not sick (once we have recovered from gluten damage). We will only be sick if we eat gluten. And it is not contagious.

With thanks to members of the www.celiac.com forum community who suggested many of these statements.

National Digestive Disease Information Clearing House: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

1

Share this post


Link to post
Share on other sites

I would like to remind people that feel that following a gluten free diet because I have celiac disease is not a choice but I am trying to save my life. That if I don't follow my diet to the letter that I will continue to have stomach damage possibly to the point of giving myself cancer. It's like quitting smoking it's life saving - not a choice.

1

Share this post


Link to post
Share on other sites

Great job ~ LisaDances :)

0

Share this post


Link to post
Share on other sites

My close friends all know the drill and are wonderful, but people I only see on an occasional basis are so persistent in trying to feed me. I would say to people, "Stop trying to feed me! The world will not end if I bring my own dinner!!"

I love it!

0

Share this post


Link to post
Share on other sites

Thank you, LisaDances !!! That is great. I am going to print it out and give it to my friends :)

0

Share this post


Link to post
Share on other sites

That is a great flyer. I'm going to send it to friends and family!!!

0

Share this post


Link to post
Share on other sites

:D Had to start this with a smily! Hang in there with the gluten-free foods--it takes time (and talking here) to get a clear understanding of how *your* own person gut words!!!!

AND, Welcome!!!.. ask questions ... add thoughts.... comments.... (and for sure use the emoticons!...they truly help you express your feelings!!!! :lol: :lol: :lol:

1

Share this post


Link to post
Share on other sites

Do-- stop trying to feed us! The world will not end if we bring our own dinner!

Hilarious. I wish I could wear a button saying something like this.

Another message I'd like to send the world -- just because I can't eat gluten doesn't mean I can't also eat other things. Stop trying to offer me a panoply of other foods I also can't eat, and then requiring me to list out everything that's safe for me. It's the most boring conversation in the world.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,643
    • Total Posts
      921,570
  • Topics

  • Posts

    • First thing - if you want to continue testing for Celiac disease, you need to be eating a regular gluten containing diet. That said, any dietary change can get your system in a funk.  
    • Hey there! Welcome to the club you never wanted to be a part of. Boy, you are certainly throwing yourself one heck of a bang up pity party aren't you? PLEASE do not take that as a put down! I don't think there is a single solitary one of us who hasn't thrown ourselves at least 1 pity party. I know I've thrown at least 3. Oh, & crying meltdowns in the grocery store? Every one has been there, done that one too. It's all part of the process just like cyclinglady said. Ravenwoodglass is right on too about how it can mess with your head. Boy! Can it ever mess with your head! You really have been given excellent info. by all who have answered. I want to touch on something that hasn't been addressed yet but you mentioned it and that is kissing. You might call me an old lady as I'm just shy of 60 but I'm also a child of the 60's so remember that when you read what I'm going to tell you. BTW, I'm married to the same person, my only marriage, for 43 years. Anyone who cuts & runs because they have to brush their teeth before kissing you is not worth 2 minutes of your time and you are well rid of them! Be thankful that you have this "screening tool" because it will save you a lot of wasted time. If they won't even give you a chance when they hear about the precautions you have to take then they aren't worth a damn! Imagine someone like that standing by your side when times get tough. You can't can you? That's because they won't and you want a true partner who will support you and hang in there through the challenges we face in life & believe me, you will both face many life challenges.  Cooking. You don't have to be a gourmet. Cook simple. You know how to boil & scramble & fry eggs right? Only takes a couple minutes. Veggies? Aw heck, nuke 'em OR throw them on a baking pan spritz them with olive oil & spices of your choice & stick them in the oven. Smoothies are easy. Fresh fruit is well, fresh fruit - easy - peel it & eat it or just pop it in your mouth. Sweet potatoes can be nuked too & are wonderful for you. Salads are easy. Nut butters are a great source of protein. Karen had some great examples in her post too. Her "attitude adjustment" tips are great as well.  
    • Hi I'm still being tested. Got some blood drawn recently. My rheumatologist suspects celiac. I've been sick for a while with all sorts of symptoms. I've started a gluten free diet as my doctor told me try for 1-2 months to see if it helps. I've already had the blood drawn while I was eating gluten. My question is. Is it normal to have painful digestion and fishers when just recently quitong gluten? I've been gluten free only a mere two days. I know it takes time. But seems a bit worse? Is that normal?
    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50 to be optimal, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low. Edit: Also my blood pressure was low when my ferritin level got very low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,648
    • Most Online
      3,093

    Newest Member
    Mileenabug
    Joined