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Portland, Or
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I'd just like to give a shout-out to Portland, OR as a great place to visit (or live, if you're lucky) if you've got celiac disease/gluten intolerance. My husband and I just got back from a long weekend there, and there are an astonishing number of gluten-free options - including several totally gluten free places. Restaurants are also pretty knowledgeable about other food restrictions and allergies. We didn't even have a chance to try them all, but here's where we did eat:

- Corbett's Fish House - which does fish & chips using rice flour. Apparently, they've always done this because they prefer rice flour, and they only realized the gluten-free angle a couple of years ago. They also have gluten free beer & desserts. Not totally gluten free, but mostly so - and things are clearly marked.

- The Cultured Caveman - this is a paleo-style food cart, so all their food is grain free & dairy free. They've got chicken tenders, sweet potato fries, salads, etc.

- The gluten-free Chef - another food cart, also totally gluten free. They do breakfast (pancakes, biscuits & gravy) and they also have sandwiches, onion rings, fries, etc.

- The Berlin Inn - traditional German food. It isn't all gluten free, but they'll make pretty much anything on the menu gluten free for you, and they understand about contamination. They've got some delicious gluten-free dessert options, too.

- Kiwan Cafe Rio - this is an absurdly small coffee shop run by a very nice old couple from Eastern Europe. They're completely gluten-free, and they do waffles with various toppings, omelets, and sandwiches. Also great coffee and smoothies - especially the Black Forest Smoothie.

- Verde Cocina - Almost completely gluten free Mexican. They do Burritos, but otherwise, totally gluten free.

- We tried several totally gluten free bakeries: Tula's, Queen of Hearts & New Cascadia. Queen of Heart's specializes in small pies, both fruit and savory, which were delicious - and New Cascadia has a gluten free sourdough bread, which is probably the best bread I've had since I was diagnosed 2 years ago. All of these bakeries have stands at the Portland Farmer's Market, so you can grab a coffee and eat your way through a bunch of baked goods for breakfast.

Finally, I can't say enough good things about Harvester Brewery. They opened last year, and they're totally gluten free. They use a combo of roasted chestnuts, gluten-free oats and other grains like sorghum. Their beer is available at restaurants and stores around Portland, and the brewery is open on Thursday afternoons so you can visit and buy their beer by the case. Currently, they're doing a Pale Ale, an IPA, a Red Ale, and a Dark Ale, and they let us taste some test batches of new flavors while we were there. All four of their beers are good - the Red & the Dark have a nice chocolate-y taste due to the roasted chestnuts. Hopefully they'll be expanding to a wider area soon.

I did not try the other new 'gluten free' beer in the area - Omission - because it's made from de-glutinized barley and I don't trust that particular brewing method. That one is widely available, but sample at your own risk.

Portland also has an astonishing variety of ciders, and one cider bar - Bushwacker - which is entirely gluten free.

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Portland is the BEST!!! I love that I can take the kids for a walk downtown and walk into almost any restaurant and find something tasty for them. My favorite day was taking my dd to the PSU farmers market and telling her that she can eat anything she could find (which was so many vendors with so many options). We were soooooo sick!! :P

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Love, love, LOVE Portland!! Two of my 3 celiac daughters lived there and we had the BEST time going from gluten-free to gluten-free place. Love New Cascadia ... their cupcakes are to DIE for. I'm also a huge fan of the Whole Bowl... a stand alone restaurant and a food truck.

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Thanks for the list(s)

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We found true gluten-free paradise in Portland while traveling up the West Coast and hunting for food. No other place in the country makes us feel more welcome and satisfied! We loved the celiac-friendlly options so much that we have gone back every summer for four years. My hungry family of four is gluten-free and picky-picky, so here are our Portland favorites. We have tried ALL gluten-free bakeries and nearly every gluten-free restaurant in the area and here are the results:

Petunia's Pies and Pastries (cart at PSU on Saturdays, some items at Whole Foods) - what a selection of heaven!

Back to Eden bakery in NE Portland - Boston Cream Pie is surreal

Fresh Thyme Soup Company (recommend ALL soups, salads, and desserts) - closer to Beaverton

Laughing Planet (multiple locations)

Cafe Yumm (multiple locations)

Sizzle Pie (downtown) - THE BEST gluten-free PIZZA CRUST EVER, especially with basil pesto sauce

Jade Tea House - Unbelievable fresh asian cuisine - perfect every time

El Nutri Taco - New Mexican restaurant lacks ambiance but great quality tacos

Mama Mia Trattoria - best pasta menu and reasonable prices

Some carts can be safer than others, and we generally take more risks with Mexican. With french fries, very few options are available where the oil is not contaminated with batter. New Season's Market will make a gluten-free wrap at the deli, and our favorite fro-yo joints such as Tartberry and Nectar list gluten-free flavors.

Oh...this is making me so hungry...

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I love the Oregon Coast and Portland. I lived in Cannon Beach and then Beaverton for several years. As far as big cities go, Portland is my favorite out of the ones I've been to. Now I like it even more hearing how great it is for gluten free options. My husband and I hope we can move back to the Oregon Coast again some day :)

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Check out bee saws!

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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