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Follow-Up Bloodwork
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When I had my first blood test which confirmed celiac disease the markers that came back positive were 'Endomysial antibody GgA level' and 'Anti tissue transglutaminose level' (phew!)....but if I then get subsequent blood tests done (after having gone gluten-free for a few months) will such markers or any others indicate less prominence or be negative AS A RESULT of any healing that may have taken place? I'm assuming a positive is above a certain threshold?

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The numbers should drop. But it varies from person to person, depends on the lab where it was sent (different ones use different scales), the individual physiology, how strict with the diet, have they rooted out surprise cross contamination sources, etc.

Some years ago my current PCP ran a panel on me, (called it a "blood panel") and the nurse calls me up and is all bright and cheery that I tested negative for this, that, and ... celiac. Well, I hope so, I had been eating gluten-free about 5 years at that point and I didn't think I was going to throw a positive test at that point, because I don't anyway, but thanks for trying! :rolleyes::blink: Let's look at my brain scan and stick with that, okay ? B) I wasn't at "zero," on a scale of whatever, but I was close. Oh, look, "micro" antibodies! :lol:

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Both of your positive tests should have reduced numbers on subsequent tests. Depending on how high the positive numbers were originally it may take some time for them to be in negative range, but is likely they will be in the negative range at three months and even lower at six months. I wouldn't suggest testing before three months gluten-free. My doc recommended follow up testing at three and six months gluten-free - followed by annual testing.

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    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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