Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Work Results
0

16 posts in this topic

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

0

Share this post


Link to post
Share on other sites

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

I may have used the wrong references. I have 3 pages of blood test results (she tested me for lots of things) -- what names should I be looking for?

0

Share this post


Link to post
Share on other sites

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

0

Share this post


Link to post
Share on other sites

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

Thanks for making me smile, Lisa! You are too cute suggesting a grilled cheese.

I have 3 pages of test results, I guess I picked wrong -- I wouldn't know which results to give you. :(

0

Share this post


Link to post
Share on other sites




IgA IgG IgM ate classes of antibodies, just general tests.

Now the celiac tests are like deaminated gliadin IgG or tissue transglutaminase IgA or endomysium Ab

Also vitamin D is often lowish with celiac, and iron/hemoglobin or ferritin too.

0

Share this post


Link to post
Share on other sites

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

0

Share this post


Link to post
Share on other sites

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

I've been low on D, B12 and Iron for almost 4 years that I know of. I take a prescription B12 nasal spray, and supplements for D and Iron.

Tissue Transglutaminase AB, IGA <1

Tissue Transglutaminase AB, IGG <1

Gliadin (Deamidated) AB (IGG) 2

Thanks for your help!

0

Share this post


Link to post
Share on other sites

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

0

Share this post


Link to post
Share on other sites

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

I had a burger last night with the bun, and the muscle weakness came back within an hour and still bothering me today. Just whining. I wish I could get this over with. :)

0

Share this post


Link to post
Share on other sites

Here are the new blood test results:

IgA 223 (reference range is 81-463)

Transglutaminase IgG Result <3.0 (less than 6.0 is negative)

Transglutaminase IgA Result <3.0 (less than 4.0 is negative)

Endomysial Ab (IgA) only says Negative. No reference numbers.

Gliadin (Deamidated) IgG Result 4 Reference Range <20 Antibody Not Detected

Gliadin (Deamidated) IgA Result 4 Reference Range <20 Antibody Not Detected

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

0

Share this post


Link to post
Share on other sites

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

0

Share this post


Link to post
Share on other sites

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

0

Share this post


Link to post
Share on other sites

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

They are negative - technically a very good thing - but frustrating none the less.

The unknown factors in Celiac Disease and NCGI are incredibly frustrating. So much remains unknown about celiac disease and next to nothing has been studied thoroughly in NCGI.

I remain hopeful your endo pathology will provide a firm diagnosis, but if it doesn't it is possible that you either have Celiac and were fortunate to catch it before damage can be measured OR you have NCGI.

I know this doesn't help much with the frustration factor :unsure:

0

Share this post


Link to post
Share on other sites

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

Most doctors are inherently incompetent.

0

Share this post


Link to post
Share on other sites

Most doctors are inherently incompetent.

In my experience - the training and experience of doctors is incomplete with regard to Celiac Disease.

I - along with members of my family and several friends owe our lives to very competent doctors.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,511
  • Topics

  • Posts

    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,423
    • Most Online
      1,763

    Newest Member
    Kimmieellis
    Joined