Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Stressing Over Pillcam Results
0

6 posts in this topic

I had a pillcam last week and got my results this week. They found aphthous ulcers throughout the small intestine. The results are "suspicious for Crohn's". My endo/colonoscopy biopsies had come back negative for celiac and only showed chronic inflammation and ulcers in the ileum. My bloodwork has all come back normal, too. At this point, I am not expecting to get a celiac diagnoses whether I have it or not. My gut feeling through this whole process has kept bringing me back to celiac, but who knows. I am most definitely gluten intolerant. I also have a problem with dairy and am finally going to get allergy testing for it. That stuff gives me swollen and sometimes painful sinuses along with postnasal drip like crazy. It also causes itching, mostly on my scalp.

So right now I am stressing over the possibility of crohn's. I have been trying to find out if celiac or dairy can cause inflammation and ulcers in the small bowel, but not finding much. I should also point out that my bloodwork has never shown inflammatory markers. Wouldn't that be present if I have a chronic inflammation disease? Of all the possible causes of my symptoms, crohn's was the one that I was really hoping would stay far away.

What other tests do you think they can do for crohn's? I would really like to finally get an answer but am getting used to the rounds of tests after tests. Maybe someday soon I will know what's wrong. Have any of you been in this position? I am just stressing myself out and I guess need to look for a little support from others who understand. I know this place is great for that.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't know much about Crohn's, but if you know you are gluten intolerant, and don't get along with dairy, stick with that gluten free diet and ditch the dairy.

I've had sero negative arthritis since in my twenties, and never have had a blood test show those typical inflammatory markers, have had idiot new docs actually try to tell me I haven't got it, because they ran a blood test before seeing scans or xrays. If you don't have rheumatoid factor when you're younger you may as well be a leper or a head-case to the rheumatic world, thank God I was diagnosed by an osteopath. Now they try to tell me it can't be (before I show records) because I'm not medded up to the gills, but they can't grasp the concept of not wanting to die by too many medications trying to "fix" it, and everybody knows healthy eating is a quack concept. <_<

0

Share this post


Link to post
Share on other sites

Thanks for the response. i finally went gluten free a couple weeks ago with a couple mistakes. forgot to check on those rice crispy treats before i ate one. wow! Felt that for a few days. Now i'm trying to figure out my tolerance level with gluten, i.e. am i good just taking the bun off a sandwich or will i get sick from that. As for the dairy, that is proving to be much harder to quit. I am so in love with my cheese. ;) I think i'm coming around because the thought of how it will make me feel is starting to make me second guess eating it at all.

0

Share this post


Link to post
Share on other sites

I had a pillcam last week and got my results this week. They found aphthous ulcers throughout the small intestine. The results are "suspicious for Crohn's". My endo/colonoscopy biopsies had come back negative for celiac and only showed chronic inflammation and ulcers in the ileum. My bloodwork has all come back normal, too. At this point, I am not expecting to get a celiac diagnoses whether I have it or not. My gut feeling through this whole process has kept bringing me back to celiac, but who knows. I am most definitely gluten intolerant. I also have a problem with dairy and am finally going to get allergy testing for it. That stuff gives me swollen and sometimes painful sinuses along with postnasal drip like crazy. It also causes itching, mostly on my scalp.

So right now I am stressing over the possibility of crohn's. I have been trying to find out if celiac or dairy can cause inflammation and ulcers in the small bowel, but not finding much. I should also point out that my bloodwork has never shown inflammatory markers. Wouldn't that be present if I have a chronic inflammation disease? Of all the possible causes of my symptoms, crohn's was the one that I was really hoping would stay far away.

What other tests do you think they can do for crohn's? I would really like to finally get an answer but am getting used to the rounds of tests after tests. Maybe someday soon I will know what's wrong. Have any of you been in this position? I am just stressing myself out and I guess need to look for a little support from others who understand. I know this place is great for that.

I may be wrong but Crohn's does not affect the small intestine...it is a disease of the large intestine. They would biopsy the large intestine for Crohn's and the small intestine for Celiac. If you have ulcers and inflammation in your small intestine, that may be the precursor to Celiac so if you keep eating gluten, eventually there will be enough damage for them to find. Do you really want to do that?

I would suggest a dietary trial and then maybe get re-scoped to see if the gluten-free diet has helped with the ulcers and inflammation? If so, I would consider you Celiac, although I'm not an MD so that doesn't help much, does it?

Good luck and I hope you get some better answers but it sounds like Celiac to me.

0

Share this post


Link to post
Share on other sites

Thanks for the response. i finally went gluten free a couple weeks ago with a couple mistakes. forgot to check on those rice crispy treats before i ate one. wow! Felt that for a few days. Now i'm trying to figure out my tolerance level with gluten, i.e. am i good just taking the bun off a sandwich or will i get sick from that. As for the dairy, that is proving to be much harder to quit. I am so in love with my cheese. ;) I think i'm coming around because the thought of how it will make me feel is starting to make me second guess eating it at all.

No.....anything with gluten cannot even touch your food or you can't eat it. You must be wary of cross contamination.

Does dairy bother you now? If it doesn't, then why give it up? Some people have to give it up for awhile, others do not. It is not mandatory to ditch dairy when starting the gluten-free diet.....only if you have symptoms after ingesting dairy. Tackle one food group at a time!

0

Share this post


Link to post
Share on other sites




Crohns disease can absolutely affect your small intestine. It is most commonly seen in the large intestine (30-50%) of cases but you can have crohns anywhere from your mouth to your anus.

I have crohns in my colon and just had some biopsies for coeliac as well. I am also scheduled for a pill cam in a month or so.

Many people with crohns disease find a change in diet helps their symptoms - even though Drs will swear black and blue that it won't help.

Don't be too freaked out with Crohns, there are lots of medications that can help! If you think you react to gluten then stop eating it and see if it helps :)

Hope that helps.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,618
  • Topics

  • Posts

    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
    • You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start.  My allergist felt that was the best way to go and more accurate than blood testing.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined