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Are These Active Lesions?


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6 replies to this topic

#1 Cmlgl

 
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Posted 04 October 2012 - 07:44 AM

So I am still trying to understand my skin before I go to the derm on the 16th. As I walk around itching I decide to actually look at what scratching. Are these considered active lesions? Also can a derm order a celiac blood panel?
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#2 itchy

 
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Posted 04 October 2012 - 08:24 AM

Yes, I would call them 'active' lesions. They are certainly 'active' as evidenced by the red inflammation. And lesion is a word with a broad definition that basically means diseased area or injury.

To me your lesions look like DH, and I would expect if they get worse or you scratch harder they will become 'excorciated' and become bleeding sores. In mine they 'stung' and hurt, rather than itched, although the distinction may be a fine one. I associate itching with the healing period in the process, stinging with getting worse.

I can't offer an opinion about the blood panel. None of the medical testing I had ever identified DH or coeliac disease and I am self diagnosed largely as a result of comparison photos, associated gastrointestinal symptoms, and the fact that strictly avoiding gluten 'cured' both aspects of the disease. Albeit slowly in the case of skin symptoms.
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#3 squirmingitch

 
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Posted 04 October 2012 - 08:54 AM

Yes, I too, would say those are active lesions. I think it depends on the individual derm as to whether they will order the blood panel or not. Any doctor with a medical degree can order the tests; the question is will the derm. May guess is the derm will say to go to your GP & ask the GP to order the tests. If the derm orders them then the results will be sent to the derm & the derm may not feel comfortable interpreting them. You could counter by saying you will take the results to your GP for interpretation. (Also post them here along with the reference ranges -- we have members who are very versed in interpreting them). Bottom line ---- it never hurts to ask --- all the derm can do is say no. But do you realize that those of us with dh test neg. on the blood panel more often than regular celiacs do? That's b/c it's in our more in our skin. This info. is in the "Interesting Reading on DH" thread.
BUT --- here is the current FULL blood panel for celiac. You can print it out & take it with you:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA
GLIADIN IgG
GLIADIN IgA
Total Serum IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG

If they order less than these tests then they have not done the full panel.

And I will remind you that a dx of dh IS a dx of celiac.

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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#4 Cmlgl

 
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Posted 04 October 2012 - 03:56 PM

Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)
Anything else I can request
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#5 cindylou7

 
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Posted 04 October 2012 - 04:26 PM

They look like mine. I'm not a doctor and I haven't tested positive yet. But the blister in the top picture looks exactly like mine do. And if you're like me they crater after the blister pops and look like something on the surface of the moon. Good luck with the doctors!
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“Worry is itself an illness, since worry is an accusation against Divine Wisdom, a criticism of Divine Mercy"

#6 squirmingitch

 
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Posted 04 October 2012 - 05:23 PM

Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)
Anything else I can request


Thyroid panel --- not just TSH, but free T3, free T4 --- the whole shebang. Vitamins & minerals. Especially B's, B-12, D & iron.



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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 Jackson

 
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Posted 05 October 2012 - 07:10 PM

Also, on the thyroid, get a t3 re-uptake.
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