Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Can Not Lose! Just A Little Venting Among Friends...
0

22 posts in this topic

I've been gluten free since May, with one stumble in August.

I've been pretty much primal for about 3 weeks now. I've been cutting calories, increasing exercise, and cannot lose an ounce! I piled on 15 pounds in three months while gluten loading for a blood test last winter/spring.

Three weeks ago I weighed in at 180 pounds, this morning I am still 180 pounds! I am 5' 6.5" tall.

I checked with online diet calculators and I'm averaging about 1200 calories a day.

I do not snack. I don't even use dressing on my salad! It is getting quite depressing.

Ugh. Thanks for listening. I just want to cry!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've been gluten free since May, with one stumble in August.

I've been pretty much primal for about 3 weeks now. I've been cutting calories, increasing exercise, and cannot lose an ounce! I piled on 15 pounds in three months while gluten loading for a blood test last winter/spring.

Three weeks ago I weighed in at 180 pounds, this morning I am still 180 pounds! I am 5' 6.5" tall.

I checked with online diet calculators and I'm averaging about 1200 calories a day.

I do not snack. I don't even use dressing on my salad! It is getting quite depressing.

Ugh. Thanks for listening. I just want to cry!

I'm in the same boat! Gained close to 10 lbs in the last 6 weeks. Also on the primal diet, averaging 1200 calories of pure goodness a day.

0

Share this post


Link to post
Share on other sites

Ah, but the good thing is you are maintianing instead of gaining, that is a step right there.

Don't worry, it'll come off slowly.

I was at 180ish at 5'4'' at one point in time as well (before i had to go gluten free), i lost 40lbs in little over a month (NOT the way to do it) due to the vomiting and "D" I went through.

Now a days, i am just under 140 (YAY). It has taken a while to loose the lbs (i need to loose another 10 or so for my knees).

0

Share this post


Link to post
Share on other sites

Thyroid? It can make you sit on weight when you're doing everything right. Tsh isn't enough testing to see if its off.

And it took me at least a month of working out before I saw weight change. Then it would stagnate, then drop suddenly. Then i got that stomach bug and dropped 4-5 lbs. I've dropped another 1-2? My trainer said I maintained the weight loss because of the muscle I'd built.

We think I had muscle wasting, so as fat dropped muscle increased and weight seems to stay rather steady. My clothes are getting looser and I look very different.

It's a long road on this. I'm still afraid to start supplaments again. I think one of them bloats me up. Will be thrilling to figure out which one.

0

Share this post


Link to post
Share on other sites

I'm in the same boat! Gained close to 10 lbs in the last 6 weeks. Also on the primal diet, averaging 1200 calories of pure goodness a day.

Pure Goodness! Cute! Yes, I really AM enjoying the primal eating. Just wish is worked for me like it worked for my daughter. The good thing is I feel better. Clearer mind, aches and pains diminished. I guess that's a good thing!

0

Share this post


Link to post
Share on other sites




Ah, but the good thing is you are maintianing instead of gaining, that is a step right there.

Don't worry, it'll come off slowly.

I was at 180ish at 5'4'' at one point in time as well (before i had to go gluten free), i lost 40lbs in little over a month (NOT the way to do it) due to the vomiting and "D" I went through.

Now a days, i am just under 140 (YAY). It has taken a while to loose the lbs (i need to loose another 10 or so for my knees).

Thanks for the encouragement! It is so hard to be patient, but I really do FEEL better, and that counts for a lot. I'm hanging on to that while I wait for the pounds to budge!

Thyroid? It can make you sit on weight when you're doing everything right. Tsh isn't enough testing to see if its off.

And it took me at least a month of working out before I saw weight change. Then it would stagnate, then drop suddenly. Then i got that stomach bug and dropped 4-5 lbs. I've dropped another 1-2? My trainer said I maintained the weight loss because of the muscle I'd built.

We think I had muscle wasting, so as fat dropped muscle increased and weight seems to stay rather steady. My clothes are getting looser and I look very different.

It's a long road on this. I'm still afraid to start supplaments again. I think one of them bloats me up. Will be thrilling to figure out which one.

Not thyroid. That was one of the first things I thought of. Just had my tests done last week and they came in about as good as I've ever been. TSH is a little higher than I like at .5, but FT3/FT4 are smack in mid-range. Could be estrogen. I know I'm deficient in that. Wish I had time for a comprehensive visit to my doc, too busy trying to move my mom 600 miles {sigh}.

Nothing like a good stomach bug to take it off, eh? :wacko: Actually, it's amazing that those stayed off! I usually put them right back on!

Sounds like you are doing pretty well though, if you've stopped the muscle wasting!

0

Share this post


Link to post
Share on other sites

It does take time. I lost about 30 pounds during my first year gluten-free - most of that was not in the first six months. Your body is recovering from not absorbing nutrients. Once you body is able to absorb nutrients for some time it will regulate and pounds will come of &/or you will shape will change and you will feel lighter/clothes will fit looser.

One other thing that is counter-intuitive is you should be getting a higher amount of good fat while healing, not less. I'd suggest bumping your caloric intake up to 1500 per day by adding sources of good fat - avocado, nuts, coconut oil, etc. I was amazed at the difference in my energy level and results from exercise when I increased the good fat calories.

0

Share this post


Link to post
Share on other sites

I have always concentrated on healthy eating and not weight. But I know that weight is one way of gaging progress on the battle. I have used it for that. Yeah, concentrating on what else is progressing could be a good thing. Prayers for you BeachBirdie!

0

Share this post


Link to post
Share on other sites

Do they run reverse t3 on you?

I had mine run, after reading about t3 resistance. Mine is high, ratio is high. I fit a lot of the symptoms, especially the difficulty losing weight.

0

Share this post


Link to post
Share on other sites

You might try adding snacks back in to your diet, and eating smaller meals. Some people get a metabolism boost from eating smaller meals more frequently.

0

Share this post


Link to post
Share on other sites

My mother was down to about 800 calories a day, eating pretty much just chicken and salad, and was still gaining weight. I yelled at her and told her to eat butter, olive oil, red meat, whole plain yoghurt. Fruit! It worked. I'm guessing primal includes some healthy fatty meat? Have you been eating much of that?

0

Share this post


Link to post
Share on other sites

Do they run reverse t3 on you?

I had mine run, after reading about t3 resistance. Mine is high, ratio is high. I fit a lot of the symptoms, especially the difficulty losing weight.

Actually, yes. My doc did a RT3 a while back, and though my ratio wasn't high enough for my doc to want to do anything about it, it was higher than the RT3 lady (whose name I can't think of) who runs an RT3 group recommends. I can't remember the numbers, but it WAS high enough to be problematic!

Have you done anything to work on that? Did you ever try the T3-only protocol? I'm wanting to do it, but need to uncomplicate some other stuff in my life first!

0

Share this post


Link to post
Share on other sites

My mother was down to about 800 calories a day, eating pretty much just chicken and salad, and was still gaining weight. I yelled at her and told her to eat butter, olive oil, red meat, whole plain yoghurt. Fruit! It worked. I'm guessing primal includes some healthy fatty meat? Have you been eating much of that?

Yes, fatty meat is important! I do eat it. And wonderful, yummy coconut oil. And that heavenly fruit, avocados! My daughter keeps reminding me that if we cut our calories TOO severely, we actually send our body into starvation mode and the low calories hurt more than help!

Thank heaven you understood all that and were able to help your mom! I'm glad she was able to have some success!

I'm just going to hang in and know I'm doing the right thing. I remind myself that healing takes time. Months and years. I feel so much better, so it takes a lot of the discouragement away!

0

Share this post


Link to post
Share on other sites

I have always concentrated on healthy eating and not weight. But I know that weight is one way of gaging progress on the battle. I have used it for that. Yeah, concentrating on what else is progressing could be a good thing. Prayers for you BeachBirdie!

Thank you! I agree, health is more important than "weight". Hard to remember that some times but I will work on reminding myself.

You might try adding snacks back in to your diet, and eating smaller meals. Some people get a metabolism boost from eating smaller meals more frequently.

Great idea, my primal-guide daughter agrees with your suggestion. Will try!

0

Share this post


Link to post
Share on other sites

Ah, but the good thing is you are maintianing instead of gaining, that is a step right there.

Don't worry, it'll come off slowly.

I was at 180ish at 5'4'' at one point in time as well (before i had to go gluten free), i lost 40lbs in little over a month (NOT the way to do it) due to the vomiting and "D" I went through.

Now a days, i am just under 140 (YAY). It has taken a while to loose the lbs (i need to loose another 10 or so for my knees).

Thanks for the encouragement! I will hang on to it in my mental "book"! Thanks so much for sharing your story, it really helps to hear.

It does take time. I lost about 30 pounds during my first year gluten-free - most of that was not in the first six months. Your body is recovering from not absorbing nutrients. Once you body is able to absorb nutrients for some time it will regulate and pounds will come of &/or you will shape will change and you will feel lighter/clothes will fit looser.

One other thing that is counter-intuitive is you should be getting a higher amount of good fat while healing, not less. I'd suggest bumping your caloric intake up to 1500 per day by adding sources of good fat - avocado, nuts, coconut oil, etc. I was amazed at the difference in my energy level and results from exercise when I increased the good fat calories.

Thanks so much. I am working on the additions. Logically I know they will help.

Actually, you mention healing from not absorbing nutrients. I just had an interesting conversation with my doctor's office. I had my Vitamin D done a couple of weeks ago, it was very low and doc had me on 10,000 units of D3, then down to 5,000 units, and I was struggling to get the D level into normal range.

That was a year ago. I have not taken a D supplement since March of this year and was nervous about what the test would show. My level was HIGHER than last year after the first round of supplements! That tells me that going gluten-free in May HAS changed my body! I must have had damaged intestines even without the severe symptoms. I'm pumped by that result!

Good things are happening even if they are not outwardly obvious!

Thanks againd!

0

Share this post


Link to post
Share on other sites

Actually, yes. My doc did a RT3 a while back, and though my ratio wasn't high enough for my doc to want to do anything about it, it was higher than the RT3 lady (whose name I can't think of) who runs an RT3 group recommends. I can't remember the numbers, but it WAS high enough to be problematic!

Have you done anything to work on that? Did you ever try the T3-only protocol? I'm wanting to do it, but need to uncomplicate some other stuff in my life first!

Well, my rt3 ratio and level is high but my ND has been very disappointing regarding this. She calls it Wilson's Syndrome but keeps harping on my adrenals. I am of the philosophy (after reading about this stuff for years, and living through it) that the thyroid and adrenals work together (she agrees). Where we differ is that one can't improve one (in this case adrenals) to "normal" (at least for me) without incrementally working on the other. She wants to "cure my adrenals" and I think they are as "cured" as they're going to get until we address some thyroid issues (high rt3 that contributes to me not utilizing my thyroid meds properly).

So, this time after MUCH discussion I got her to prescribe Naturethroid (which I have done very well on in the past) instead of compounded t3/t4. I am taking almost half a dose (while I search for a new ND) in hopes that my rt3 levels will fall (since less t4 is going in). If this doesn't work I am asking for t3 only therapy (for the 3 or so months it takes to drop rt3).

Part of the problem is low d and iron (for me). My levels are not optimal to convert t4/t3... but after a YEAR of supplementing and being gluten-free my levels not rising dramatically. They are rising. Just not fast enough to relieve the possible thyroid issues.

So what do I do? Have thyroid issues for 2 years while my iron and d rise???

Anyway, shopping for a new ND.

0

Share this post


Link to post
Share on other sites

What sort of food are you eating? For me it's not totally the calories I eat but what I'm eating. I eat meat, vegies, a bit of fruit, fats and oils. About 1700- 1800 calories. If I ate low fat yoghurt, pasta, crackers, stuff like that, I would be starving and wouldn't last more than a few days on that calorie level.

0

Share this post


Link to post
Share on other sites

Yes, fatty meat is important! I do eat it. And wonderful, yummy coconut oil. And that heavenly fruit, avocados! My daughter keeps reminding me that if we cut our calories TOO severely, we actually send our body into starvation mode and the low calories hurt more than help!

Thank heaven you understood all that and were able to help your mom! I'm glad she was able to have some success!

I'm just going to hang in and know I'm doing the right thing. I remind myself that healing takes time. Months and years. I feel so much better, so it takes a lot of the discouragement away!

Well, yeah, my Mom's only issue was weight gain. We're 95% sure I got Celiac from my daddy, she's been virtually gluten free for a long time because of living with me and then my grandmother in FL, but shows no reactions when she does eat it, and has none of the symptoms. So her weight loss wasn't also all wrapped up in healing her system, it was just a metabolism correction that needed to happen. It was her starving herself, not Celiac starving her.

Isn't it nice that you feel so much better that you CAN worry about something else? I love that feeling! Like I need to start freaking working out, because I am used to being a very strong person and I'm so weak right now. Irritates me, I wanna be able to move my own furniture! And isn't it wonderful that I feel good enough to think that way?

0

Share this post


Link to post
Share on other sites

I've been gluten free since May, with one stumble in August.

I've been pretty much primal for about 3 weeks now. I've been cutting calories, increasing exercise, and cannot lose an ounce! I piled on 15 pounds in three months while gluten loading for a blood test last winter/spring.

Three weeks ago I weighed in at 180 pounds, this morning I am still 180 pounds! I am 5' 6.5" tall.

I checked with online diet calculators and I'm averaging about 1200 calories a day.

I do not snack. I don't even use dressing on my salad! It is getting quite depressing.

Ugh. Thanks for listening. I just want to cry!

Same thing has been going on with me. You should have a saliva test done of your hormones (testosterone, estrogen, progesterone, and DHEA) I just had mine checked and they were really way off. Eating gluten for years, when you shouldn't throws off your body's chemistry. I am on compounded bio-identical hormone therapy now; we will see if it helps. By the way, is your weight gain primarily around your middle? If so, you can almost be certain that it is hormonal!

0

Share this post


Link to post
Share on other sites

Same thing has been going on with me. You should have a saliva test done of your hormones (testosterone, estrogen, progesterone, and DHEA) I just had mine checked and they were really way off. Eating gluten for years, when you shouldn't throws off your body's chemistry. I am on compounded bio-identical hormone therapy now; we will see if it helps. By the way, is your weight gain primarily around your middle? If so, you can almost be certain that it is hormonal!

Thankfully my weight is spread out proportionally around my body. Not in the middle. But I'm going to ask my doc to check hormones, I'll bet I'm way off since I've been 'paused for 9 years.

0

Share this post


Link to post
Share on other sites

As to the cutting calories to low, keep in mind everyone is different. When my metabolism was tested two yrs ago, my basal rate was 1400ish. Meaning if I stayed in bed my body would need that much to keep me alive and healthy. So to me 1200 would throw me into starvation even though all the calculators say it wouldn't.

0

Share this post


Link to post
Share on other sites

As to the cutting calories to low, keep in mind everyone is different. When my metabolism was tested two yrs ago, my basal rate was 1400ish. Meaning if I stayed in bed my body would need that much to keep me alive and healthy. So to me 1200 would throw me into starvation even though all the calculators say it wouldn't.

How do they test your basal metabolism? I've heard people talk about it, but never heard how it's done!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,916
    • Total Posts
      919,623
  • Topics

  • Posts

    • Depression / anxiety issues
      Hi all.  Still feeling the same way this past week. I'm thinking of dropping dairy starting from today, I don't know if I have a problem with it or not, but I drink 2 coffees a day with milk. I'm just constantly tired all the time, and getting trough the day is pretty hard, I noticed a couple of weeks ago that my sleep was improving but the last couple of days I have been waking up at least 3 times during the night, then when I get up in the morning it feels like I have been hit by a bus, like I haven't slept at all. I keep waking up during the night needing to drink water as I feel dehydrated, I don't know why as I drink 2-3 litres of water everyday 
    • No actual diagnosis/genetic results.
      About 30% of people have a gene for Celiac.  They don't all have it because only about 1% of the population has Celiac.   It is quite possible she has something else that is causing her trouble.  Sometimes eliminating gluten helps that problem, like FODMAPS.   If it were me, I would keep her strictly gluten-free for a year or so.  See if anything develops.  Then I would try her back on small doses of gluten.  If it is something like FODMAPS, she may be able to tolerate some gluten after a while.  I would do that for 3 months .  If she is having issues I would then get her tested with a full Celiac panel and, if positive, an endoscopy.  Even if the panel is negative, if she is having issues, I would pursue more testing, ends, colonoscopy, etc. For schools to take a gluten-free or any special diet seriously, you will need a doctors note.  I am assuming US might be different in other countries.
    • No actual diagnosis/genetic results.
      Hi- new here but have been reading a lot of posts (Long post, last two paragraphs have actual question)  my four year old daughter probably has celiac but I don't know if I'll ever get a definitive diagnosis at this point.    Backstory: growth Delays, GI issues and a few other symptoms as a baby/young toddler. Did not have blood work done but went straight to biopsy which was negative. Always still had suspicions that gluten bothered her.    Started developing more symptoms around 3, by 3.5 they were pretty bad and her dr recommend eliminating gluten. (Blood in stool, rashes, low grade fever, joint pain, stomach pain and bloating, behavior issues) Everything cleared up quickly! Yay. Still had occasional gluten because I was under the impression it was "just an intolerance" and her symptoms kept up/got worse with each exposure. (Developed vomitting as most recent symptom) So I wanted to know if it was celiac. Can't do blood or biopsy since she's been mostly off gluten for months by this time.  I really was hoping to have a concrete answer and diagnosis, So we did genetic testing recently. It came back positive for half of DQ2 (beta subunit). Her dr isn't giving her official diagnosis but says "she is at a fairly low risk" but with her symptoms doesn't that mean she has developed it??!   Either way he says to keep her off gluten but I don't understand why he won't diagnose? Right now I am just telling people (besides family) that she has it because it's too hard to explain it all but do you think an actual diagnosis would be beneficial in any way? Should I push the issue with her dr? 
    • Awaiting Biopsy Results
      Thanks for the advice and encouragement, Gemini. I appreciate having additional insight into my situation. Celiac being the cause of my health issues makes more and more sense the more I learn about it, and eliminating gluten sounds more and more like the right choice for me.
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      The topic of this forum is "Celiac Disease - Publications & Publicity," so certainly it fits in here, and in fact, this topic is designed specifically to handle any media coverage that relates to celiac disease and/or the gluten-free diet.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,960
    • Most Online
      1,763

    Newest Member
    Ladybug99
    Joined