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Strange Symptoms And Diagnosis Not Confirmed
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2 posts in this topic

Hi everyone.

First I'd like to say that this site is great for people with gluten intolerance!

But I need some advice on my symptoms and see what other people think.

Now, I am a professional motorcycle road racer in Europe, and for a long time I have had the problem of fatigue, and sometimes diarrhea for unexplained reasons.

In recent years, every time I went running, I felt like I hit the wall after just a few miles. And one I got so bad stomach cramps that I almost couldn't stand up, and then I had to go take care of some business in the woods (very nasty).

And since I was life 13 years old, I can't remember there being 1 month where I didn't have painful stomach cramps and diarrhea at least once.

Anyway, I went to a professional nutritionist, where I filled out tones of forms about what I eat, how I feel when eating certain things etc. And then he made a diet plan where I couldn't eat any types of grain at all.

Then have told me that once a week, at 1 meal I can eat whatever I feel like. So I ate a pizza and had a beer, and when I did, I got stomach pains that lasted 3 days, and my nose closed up while I was eating it.

Anyway, after I started this diet, I have felt quite a bit better when running. My stomach, especially my lower stomach (intestines) seem to be behaving much better than before.

Now, what I am wondering, could this be gluten intolerance, or something else?

This morning I had stomach pain again (for the first time since I started the diet), and I didn't eat any grain or anything in the last few days. However I did have tea with milk, but I have had that several times without any effects.

Does any of this make sense to you guys with celiac? Can you get stomach cramps while your body is healing up. And do any of you every experience stomach pains in the middle of the stomach?

Thanks a lot - hope it makes sense :)

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Welcome, Chris.

Eliminating all grains should have gotten rid of most of the gluten, unless you eat processed foods or soy sauce or such. So you have probably been mostly gluten free.

If you are gluten intolerant, pizza and beer is not such a great idea :unsure: What a double whammy! I bet you won't do that again. If you are gluten intolerant, gluten will do that to you after you haven't had any for a while. I don't know where folks get the idea that it is okay to cheat once in a while, because your body will tell you it's not :rolleyes:

Yes, the healing process does take a while because gluten has done its damage. If you are celiac, it will have damaged the villi (little finger-like projections) in your small intestine, and it is at the tips of those villi that the body makes lactase, the enzyme to digest the lactose in milk. So most celiacs have a hard time digesting milk and a lot of milk products until the villi have healed. And for lots of people the pain they experience is around the navel.

Try rooting out ALL the gluten from your diet and eliminate dairy for a few months and see how you feel. If you read the Newbie 101 thread here you will get lots of tips and help. :)

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
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