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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trouble Losing Weight?
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9 posts in this topic

Anyone else in this boat?

I was dx about 4.5 months after giving birth to my second son. I had gained 37 lbs with him (as opposed to 60+ with my first son that came off within 4 months)... and 9 months later it is still not all off. I have another 5-7ish lbs to go, which is not the end of the world, but it seems that no amount of "dieting" is really helping. I am not really eating that much either.. but the weight is def there, and has settled into my stomach, which is new for me also.

It is also a challenge to diet because I find that my blood sugar drops rapidly and I end up needing to eat immediately, so I grab something like a LaraBar (which is like 6-7 weight watchers points). The gluten-free snack foods are really a killer because they are so dense, but often I am left without much of an option if I am at work and need to eat quickly.

I am wondering if this is a Celaic thing, or if it is just that it was my second kid, I am now 30, and blah blah blah.

Anyone with a similar experience?

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I've told my story before... but I was diagnosed very quickly (only a few months of symptoms) and never experienced the unexplained weight loss many do before diagnosis. Then... being one who loved to cook and bake... I packed on 40 lbs. of weight gorging on all the foods I COULD eat to make up for the ones I could no longer eat. Finally, after suffering w/ heartburn and reflux causing me to take Protonix for a year, I cut out almost all of the obvious carbs from my diet... no (or very little) bread, no pasta, very little brown rice, etc... and dropped 20 lbs. in a few months. The heartburn disappeared. I still have that last 20 to go and need to go back to that low carb diet! I am such a carb addict!!

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Anyone else in this boat?

I was dx about 4.5 months after giving birth to my second son. I had gained 37 lbs with him (as opposed to 60+ with my first son that came off within 4 months)... and 9 months later it is still not all off. I have another 5-7ish lbs to go, which is not the end of the world, but it seems that no amount of "dieting" is really helping. I am not really eating that much either.. but the weight is def there, and has settled into my stomach, which is new for me also.

It is also a challenge to diet because I find that my blood sugar drops rapidly and I end up needing to eat immediately, so I grab something like a LaraBar (which is like 6-7 weight watchers points). The gluten-free snack foods are really a killer because they are so dense, but often I am left without much of an option if I am at work and need to eat quickly.

I am wondering if this is a Celaic thing, or if it is just that it was my second kid, I am now 30, and blah blah blah.

Anyone with a similar experience?

It sounds like you are a developing diabetic. The storage of fat in the belly area, instead of the hips, the dips in blood sugar. If you have insurance, you could get a 5 hour glucose tolerance test WITH insulin levels. or, if you want to avoid the dx as long as possible, you could get on a paleo type diet, no refined carbs, actually few carbs at all, outside of the ones in the low carb veggies and meat that you would be eating.

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It sounds like you are a developing diabetic. The storage of fat in the belly area, instead of the hips, the dips in blood sugar. If you have insurance, you could get a 5 hour glucose tolerance test WITH insulin levels. or, if you want to avoid the dx as long as possible, you could get on a paleo type diet, no refined carbs, actually few carbs at all, outside of the ones in the low carb veggies and meat that you would be eating.

Don't even say that!

I have always been like this as far as the dips in blood sugar and have never tested positive for it. I just know that I need to eat foods that are rich in proteins as opposed to carbs and keep snacks with me just in case.

As for the fat in the belly area... I am 30 now and just had my second child, along with a daignosis of Celiacs. I am sure that could have something to do with it... no?

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Of course that could have something to do with it! Are you also breast-feeding? If so, your body is going to want to hang onto as much body fat as possible to make sure you have enough of you to make food for your baby. I think people don,t really expect to get their paper-baby body back for at least a year. I sure wouldn't worry about 5- 7 pounds , especially not right after a baby.

With my first child, I lost the baby weight almost immediately, but not with the second. I also didn't ovulate for over a year after the second one was born, despite the fact that I was so much heavier. It was my body insisting that it wasn't ready to make another baby.

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Of course that could have something to do with it! Are you also breast-feeding? If so, your body is going to want to hang onto as much body fat as possible to make sure you have enough of you to make food for your baby. I think people don,t really expect to get their paper-baby body back for at least a year. I sure wouldn't worry about 5- 7 pounds , especially not right after a baby.

With my first child, I lost the baby weight almost immediately, but not with the second. I also didn't ovulate for over a year after the second one was born, despite the fact that I was so much heavier. It was my body insisting that it wasn't ready to make another baby.

No. I stopped breastfeeding after 3 months this time. I got my period back, but my body is just so so different this time. Even though I gained so much less weight, it is just not coming off...

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Anyone else in this boat?

I was dx about 4.5 months after giving birth to my second son. I had gained 37 lbs with him (as opposed to 60+ with my first son that came off within 4 months)... and 9 months later it is still not all off. I have another 5-7ish lbs to go, which is not the end of the world, but it seems that no amount of "dieting" is really helping. I am not really eating that much either.. but the weight is def there, and has settled into my stomach, which is new for me also.

It is also a challenge to diet because I find that my blood sugar drops rapidly and I end up needing to eat immediately, so I grab something like a LaraBar (which is like 6-7 weight watchers points). The gluten-free snack foods are really a killer because they are so dense, but often I am left without much of an option if I am at work and need to eat quickly.

I am wondering if this is a Celaic thing, or if it is just that it was my second kid, I am now 30, and blah blah blah.

Anyone with a similar experience?

I had a lot of trouble losing "baby weight" after my last 3 kids. The first one, not so much. Your hormones have a lot to do with weight, not just diet. Could simply be hormonal shift.

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Don't even say that!

I have always been like this as far as the dips in blood sugar and have never tested positive for it. I just know that I need to eat foods that are rich in proteins as opposed to carbs and keep snacks with me just in case.

As for the fat in the belly area... I am 30 now and just had my second child, along with a daignosis of Celiacs. I am sure that could have something to do with it... no?

The combination of Celiac and recovering from child birth most certainly can do this.

The Celiac causes your body to hord because it has not been absorbing nutrients. Once you start healing and absorbing nutrients, the weight will begin to come off &/or your tummy area will become smaller.

Some of this can be caused by the hormonal shift from pregnancy / nursing /pregnancy / nursing cycles. Don't expect the change to be quick - just eat healthful gluten-free meals - limit gluten-free processed foods, get exercise and focus on your kids, work and social activities - the weight will correct itself in time.

Having said all this...do make sure you get your thyroid checked during your next doctor's appointment to rule out problems there.

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The combination of Celiac and recovering from child birth most certainly can do this.

The Celiac causes your body to hord because it has not been absorbing nutrients. Once you start healing and absorbing nutrients, the weight will begin to come off &/or your tummy area will become smaller.

Some of this can be caused by the hormonal shift from pregnancy / nursing /pregnancy / nursing cycles. Don't expect the change to be quick - just eat healthful gluten-free meals - limit gluten-free processed foods, get exercise and focus on your kids, work and social activities - the weight will correct itself in time.

Having said all this...do make sure you get your thyroid checked during your next doctor's appointment to rule out problems there.

I am going in the next few weeks and that is def on my agenda!

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
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    • does your diet have to be like a perfection?
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