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Which Is More Likely?
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8 posts in this topic

....that I am unintentionally getting glutened, or that I have a problem with dairy, despite many months of eating dairy with no problems? For the past several weeks I have been having a resurgence of symptoms that almost completely disappeared when I went gluten-free seven months ago. Mduring this time, I have eaten out several times (Mexican restaurants, and only rice, bean and corn things) and eaten stuff I didn't make myself at social gatherings. I've been pretty careful. I've never been able to quit dairy, though I,ve wondered if it could be bothering me, though for many months I ate plenty of it with no adverse effects.

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I'm only two months into eating gluten-free, so take this for what it's worth. I've been finding my tolerance for dairy varies a lot, some days it's fine, others it's not. Some cheeses are okay, others aren't. Etc.

Have you tried using chewable Lactaid pills? They usually work for me, and if I take them every time I eat dairy, then I know anything else is probably a glutening.

Also, for me the symptoms are a little different. Lactose is causing more gas, whereas accidental gluten causes the Big D, lotsa stomach noise and some pain.

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It could be a bit of both.

Many of us find that minor glutenings from cross contamination become much more severe as time goes on. My guess is the problem is CC.

One way to test would be by removing all dairy for at least a week - a month would be better and continue to dine out and eat gluten-free items prepared by others. If you are still having symptoms without the dairy - you will need to be much more careful with the preparation of your food.

If you are having a problem with dairy right now, you may get it back once your digestive system has healed. Wait six months and try it again. If you still can't tolerate it - keep trying at six month intervals.

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......during this time, I have eaten out several times (Mexican restaurants, and only rice, bean and corn things) and eaten stuff I didn't make myself at social gatherings.

There's your problem.

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There's your problem.

My thoughts exactly.

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My thoughts exactly.

I hardly ever go out to eat, but it's so depressing to think that I'll essentially never be able to. We were traveling, and needed to eat SOMEWHERE, and it seemed like the best choice. And it's hard to ask people who don't speak very good English about gluten. I guess it means I just have to be super-prepared, and bring ALL of my own food whenever I go ANYWHERE. I usually do, for most meals, but then, after awhile, we get tired of eating out of an ice chest.

I seem to be getting more and more sensitive to gluten, which also doesn't seem fair.....

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I seem to be getting more and more sensitive to gluten, which also doesn't seem fair.....

Agreed. Not fair. On the glass half full side of the equation - your body is letting you know where gluten is so you can prevent further damage/complications.

It will still get easier with time - the first year is the toughest.

Hang in there.

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I hardly ever go out to eat, but it's so depressing to think that I'll essentially never be able to. We were traveling, and needed to eat SOMEWHERE, and it seemed like the best choice. And it's hard to ask people who don't speak very good English about gluten. I guess it means I just have to be super-prepared, and bring ALL of my own food whenever I go ANYWHERE. I usually do, for most meals, but then, after awhile, we get tired of eating out of an ice chest.

I seem to be getting more and more sensitive to gluten, which also doesn't seem fair.....

These days, when we travel, we tend to go to places that have kitchens that where we can cook our own food. It's way cheaper this way too. (Seriously, I think we had ahi almost every night when we last went to Hawaii... it is cheap to buy at the store there!)

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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