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Gluten Free
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I'm curious to know how long it took for you all to start noticing health improvement once you cut gluten from your diet? I won't have my endoscopy for at least a month and am considering cutting gluten for a week just to see if I notice any difference. I have constant muscle aches and have been diagnosed with benign fasiculation syndrome and have read that this could be caused by my low Vit D. As I posted earlier my blood tests came back negative so if I respond positively to cutting the gluten then I can always load up again before I schedule the endoscopy.

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You might have trouble going back on gluten after being off it for even a week. Our bodies react more strongly to it when we've been away from it for a while. So yeah, you might notice a positive change in the way you feel in only a week, but I doubt it would be worth the negative change in the way you feel when you start eating it again.

Take this time to enjoy all of the gluteny things you will never be able to eat again. Even though we eat well, there are some things that can't be duplicated. Have some donuts! Have some clamcakes. If you know someone who makes homemade bread like my Mom used to do, have a whole loaf, fresh out of the oven. Put lots of butter on it while you're at it in case you develop an intolerance to dairy.

And then, once you go gluten-free, if you can, learn to cook so you can make your own substitutes instead of having to buy them all like I (the most incompetent cook in the world) do.

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I'd agree it may be hard to back on again. I had a short break gluten-free and then ate it again after the lab lost my results (grr). It was much worse much more quickly when I ate gluten the second time.

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You need to stay on the gluten or risk a false reading :/

eh, it was a few weeks i think.

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Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

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Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

I agree, I had stopped eating it for 9 days and then dr told me i had to eat it again for 6 weeks before I could have a blood test/endescopy and when I started eating it again i felt awful, especially the first few days back on it

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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