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Gluten Free
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I'm curious to know how long it took for you all to start noticing health improvement once you cut gluten from your diet? I won't have my endoscopy for at least a month and am considering cutting gluten for a week just to see if I notice any difference. I have constant muscle aches and have been diagnosed with benign fasiculation syndrome and have read that this could be caused by my low Vit D. As I posted earlier my blood tests came back negative so if I respond positively to cutting the gluten then I can always load up again before I schedule the endoscopy.

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You might have trouble going back on gluten after being off it for even a week. Our bodies react more strongly to it when we've been away from it for a while. So yeah, you might notice a positive change in the way you feel in only a week, but I doubt it would be worth the negative change in the way you feel when you start eating it again.

Take this time to enjoy all of the gluteny things you will never be able to eat again. Even though we eat well, there are some things that can't be duplicated. Have some donuts! Have some clamcakes. If you know someone who makes homemade bread like my Mom used to do, have a whole loaf, fresh out of the oven. Put lots of butter on it while you're at it in case you develop an intolerance to dairy.

And then, once you go gluten-free, if you can, learn to cook so you can make your own substitutes instead of having to buy them all like I (the most incompetent cook in the world) do.

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I'd agree it may be hard to back on again. I had a short break gluten-free and then ate it again after the lab lost my results (grr). It was much worse much more quickly when I ate gluten the second time.

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You need to stay on the gluten or risk a false reading :/

eh, it was a few weeks i think.

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Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

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Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

I agree, I had stopped eating it for 9 days and then dr told me i had to eat it again for 6 weeks before I could have a blood test/endescopy and when I started eating it again i felt awful, especially the first few days back on it

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
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      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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