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Bystolic Medication? Gluten Free Or Not?

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Hi all...first time posting.

My mom, Betty, has been a thriving 79 yr. old, diagnosed Celiac 5 yrs. ago. She adjuster her diet and has been doing well.

Over the past year she has developed more sinus and allergy problems, specifically terrible headaches and nausea. Doctors have run every test, and we

think it all comes back to possible gluten in her blood pressure medication. She hates taking any kind of medication to begin with, and her anxiety concerning NOT feeling well has cut into her quality of life. She's convinced it's possibly her dose of Bystolic, but we can't seem to find a definite gluten component or a generic substitute.

A new doctor just put her on Zoloft for her panic and anxiety about not feeling well most of the time. It's heartbreaking to know she feels bad, but I'm also wondering if she's on the border of obsessing and also creating hypochondriac associations with what could be allergy/sinus issues?

I'm starting to lose my mind!

Anyone have any thoughts?


Betty's daughter!


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Yes, on, it does list Bystolic as "may contain wheat" unfortunately. As you say, there seems to be no way of knowing. Is this a brand name medication? Is there a generic for it? Oh, I went back and read your post again and you answered that question. Can her doctor come up with an equivalent medication? There are often several drugs in the same class and sometimes one will work just as well as another, although she may not be receptive to trying another -- maybe if you tell her it will make her feel better???

Is the Zoloft helping her at all? Is she on any allergy/sinus medication?

Oh, and by the way, welcome to the forum. :)


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If your mom is getting gluten, it's also possible that this could be contributing to her anxiety. Many of us have panic attacks, heightened anxiety or sudden depression as a reaction to gluten.

For myself, my emotional symptoms are that everything starts to feel more stressful, more upsetting. My frustration tolerance takes a nosedive, and my ability to concentrate and think clearly crashes. If I get it continually, I'll have a long bout of severe depression until I get the gluten out of my system.

My daughter has full blown panic attacks that will last hours, on and off for days after she's been glutened.

So while your mother's anxiety may be extreme, it may actually have a physical cause as opposed to a metnally induced physical cause (psychosomatic, in other words), if that makes sense?


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I just called the manufacture today and as of Feb. 2014 Bystolic still "may contain" gluten.  I was told that the possible source is the inactive ingredient polysorbate.  I've been diagnosed with IST(inappropriate sinus tachycardia) and my cardiologist prescribed this.  I didn't know until I called to check before filling my RX.  There still isn't a generic. 


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    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
    • In reflex testing they look at a result and decide if the next test is needed.  Another example, some labs only do EMA if the Ttg is positive.
    • Her blood panel is POSITIVE!!!! She's celiac! I don't know what in the world the GI is thinking. That's crazy! The GI obviously doesn't really know celiac. The constipation is tripping her up but celiacs can be constipated as much as they can go the other way and more than 50% of dx'd celiacs presented with NO GI issues. Keep her eating gluten until you get the results of the endoscopic biopsies.
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