Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Intolerance Or Just Really Bad Timing/luck
0

9 posts in this topic

I recently tried going 2 weeks without gluten because I was tired of always being bloated and having stomach aches (and other assorted stomach related symptoms-aka less than perfect stools). After 2 weeks of making sure nothing I ate had any gluten in it, I had a large piece of fully gluten-ed bread (I know because I baked it). About an hour later, I vomited a little. But, my immediate reaction was disbelieve (and apparently to boldly wave my fist at the symptom). So, needless to say, for dinner I had two more pieces of bread and a muffin (though in total less calories than I normally consume). By that night my stomach was bloated to the point it looked like I could have been several months pregnant. I thought that was where it would end. But by midday the next day, I was vomiting a little bit here and there. And by that night, I had emptied my entire stomach with a few extra empty efforts by my stomach just to make sure. And I felt so terrible afterwards that I think I had a food aversion to all foods (resulting in about 6 pounds of weight loss and extreme fatigue and exhaustion).

My question is: Did I just pick the worst time to test my gluten reaction and happen to be hit by a stomach flu? Or did I overindulge during my testing and my body gave me the definitive slap in the face announcing that yes in fact I was gluten intolerant?

I guess my disbelieve stems from the fact that I'd never had symptoms that severe in the past and usually eat lots of bread and gluten related products without vomiting. So, is it possible the two week break brought out these reactions, or again, was it just bad timing and really just a stomach flu creating a false positive. I'm a little hesitant to try and retest, but fear that is probably my only option. I hate being someone who needs evidence for their evidence.

Any thoughts would be greatly appreciated!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I doubt it was bad luck or poor timing. I think you were onto something with that elimination diet and your body reacted strongly when gluten was reintroduced. I get that big bloat when I ate gluten; I used to never go anywhere without a baggy sweatshirt or sweater so I could hide my gut when the bloat hit. For me, feeling poorly and migraines would usually follow.

It appears that you have some sort of gluten intolerance, whether it's celiac or not we can't tell. Unfortunately, if you want to get tested for celiac, you'll have to eat gluten regularly for about 6 weeks in order to get an accurate test; those two weeks gluten-free could affect your results and give a false negative.

I'm sorry to hear you weren't well, but I wish you luck with testing or the gluten-free diet. I hope you feel better.

0

Share this post


Link to post
Share on other sites

Thank you for the response! I do wonder if I should go ahead and be tested for celiacs. Is the treatment any different or is the only real treatment giving up gluten? Because, I figure if gluten is causing my latest symptoms, then I'm probably better off just accepting my body does not like the stuff much.

I doubt it was bad luck or poor timing. I think you were onto something with that elimination diet and your body reacted strongly when gluten was reintroduced. I get that big bloat when I ate gluten; I used to never go anywhere without a baggy sweatshirt or sweater so I could hide my gut when the bloat hit. For me, feeling poorly and migraines would usually follow.

It appears that you have some sort of gluten intolerance, whether it's celiac or not we can't tell. Unfortunately, if you want to get tested for celiac, you'll have to eat gluten regularly for about 6 weeks in order to get an accurate test; those two weeks gluten-free could affect your results and give a false negative.

I'm sorry to hear you weren't well, but I wish you luck with testing or the gluten-free diet. I hope you feel better.

0

Share this post


Link to post
Share on other sites

I was in a situation not dissimilar from yours.

I did a second round of testing gluten on myself after another month gluten free.

One coincidence... possible. Two at the same time... not very likely at all (though still *possible*).

0

Share this post


Link to post
Share on other sites

Thank you for the response! I do wonder if I should go ahead and be tested for celiacs. Is the treatment any different or is the only real treatment giving up gluten? Because, I figure if gluten is causing my latest symptoms, then I'm probably better off just accepting my body does not like the stuff much.

Treatment is giving up gluten, although some people also add vitamins (some sublingual/under tongue) since some can be low, and many use probiotics and supplements (like glutamine or papaya) to help in the digestive process. Many also end up with other issues like dairy, soy, corn or nightshade intolerances from their damaged intestines; some of these are permanent and others disappear after healing has advanced. (I personally have problems with milk.)

If you think you might want the celiac tests sometime in the future, it's probably best to do the test soon (after a few more weeks of a gluten filled diet) because many celiacs seem to get more sensitive the longer gluten has been out of their diets. After a few weeks gluten-free, I had a beer that was gluten-free to 3 parts per million and I ballooned up like a basketball and had a migraine for almost a week. That being said, if you feel comfortable following the gluten-free diet without a diagnosis, then go for it! :) Many people have doubts and feel the need to a firm diagnosis in order to be able to follow a strict gluten-free diet for life (I was one) but if you don't need it, kudos to you! :)

Good luck!

0

Share this post


Link to post
Share on other sites




Hi, there is no difference in treatment right now. Staying gluten-free is the only treatment for celiac at the moment.

0

Share this post


Link to post
Share on other sites

I really appreciate all the responses. I'm working through my second trial period of going gluten-free before I test my reaction to putting some gluten back in my system. I think one more round with similar results will be all the proof I need that my body is not fond of gluten. Hopefully it won't be as terrible as last time. But, I'll be glad to at least not be left wondering was it just a fluke.

0

Share this post


Link to post
Share on other sites

Good luck. I hope you get clear results. :)

0

Share this post


Link to post
Share on other sites

Let us know what happens! I'm thinking of doing this just to see if my continuing D is from accidental glutenings or something else. Thought it would help me know for sure what a glutening feels like. But I'm kinda scared to do it....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,688
    • Most Online
      3,093

    Newest Member
    AbuBakar
    Joined