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Extraintestinal Manifestations


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17 replies to this topic

#16 MartyrMom2

 
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Posted 07 October 2012 - 04:27 PM

[quote name='squirmingitch' timestamp='1349653413' post='828102']
DH presents in many forms; not just as water blisters. And it presents anywhere on the body. I think it really throws people that almost all of the medical info. out there says elbows, buttocks, knees & so forth because we who have it know it can present any place on the body. My husbands does not present with the classic water blister always mentioned in the med info. yet his is undoubtedly dh & like many on this board report theirs to be. And my husbands dh tends to not itch as much as mine but it burns far more & stings quite a lot.
This is excellent info. on all the differing presentations.
http://www.celiac.co...ns-of-dh-types/

It is possible you could get a dx by getting a dh biopsy but you need an active lesion & the biopsy must be taken from a clear area ADJACENT to an active lesion. Repeat --- this is NOT ON a lesion but adjacent to one. A dx of dh IS a dx of celiac disease.

You should check out the doctors forum to see if you can find a derm or GI or both near you who is well versed in celiac &/or dh. Use the search box on the site to put in the town, cities or state you would be looking in.

http://www.celiac.co...isease-doctors/
[/quote
Thanks, squirmingitch! I checked out that first link you provided. When I first presented w/ the leg rash, my physician's first inkling was shingles, but after she learned I'd never had chicken pox, she prescribed me an antiviral for herpes (which didn't phase it). While I know it can still be anything but DH, I am going to pursue getting the celiac panel this week. I feel that I have too many symptoms/diagnoses that point to Celiac disease or at the very least gluten sensitivity. I have nothing to lose! Thank you again! :)
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Symptoms: Abdominal pain, diarrhea, constipation, acid reflux, fatigue, unexplained bruising, unidentified skin rashes, lactose intolerance, and a myriad of other health issues/complaints.
HLA-DQ8 Gene (Enterolab, March 2009)
Diagnoses: IBS (1-19-06), Hypokalemia (7-13-07), Hypothyroidism (10-17-08)
Medications:(Synthroid 0.075 MG)
Family History of Autoimmune Diseases: Maternal Grandmother (Grave’s Disease) Paternal Grandfather (Type 1 Diabetes, RA) Great Aunt (Crohn’s Disease)Self (Hashimoto's, pending test results)

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#17 squirmingitch

 
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Posted 07 October 2012 - 04:36 PM

or *

like a star :)


MmmWah!Posted Image



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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#18 squirmingitch

 
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Posted 07 October 2012 - 04:41 PM

[/quote
Thanks, squirmingitch! I checked out that first link you provided. When I first presented w/ the leg rash, my physician's first inkling was shingles, but after she learned I'd never had chicken pox, she prescribed me an antiviral for herpes (which didn't phase it). While I know it can still be anything but DH, I am going to pursue getting the celiac panel this week. I feel that I have too many symptoms/diagnoses that point to Celiac disease or at the very least gluten sensitivity. I have nothing to lose! Thank you again! :)
[/quote]

You have the family history too. Make sure you tell ALL these things to the doc. BTW, your primary care doc can order the celiac panel --- it doesn't take a specialist. BUT MAKE SURE the doc orders the current FULL panel. And here it is:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA
GLIADIN IgG
GLIADIN IgA
Total Serum IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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