This risks going off into another subject, but thanks AVR! The tinnitus I can handle, but I was having inner ear problems (so I thought) last year and went to specialists and tests and the whole bit and they found nada. So I cut back on salt, which helped, and eliminated dairy, which helped more, and then (ergh) took out soy and I rarely get the dizzies/sinus issues anymore. I can handle the ringing, but if I ever decide to cut out grains for other reasons, I'll look forward to non-ringy ear and a potential benefit.
Still need nettle tea. To the health food store tonight!
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137 replies to this topic
#46
Pegleg84
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Posted 11 October 2012 - 09:29 AM
~ Be a light unto yourself. ~ - The Buddha
- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice
- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.
#47
GottaSki
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"Migratory flight complete."
Posted 11 October 2012 - 09:46 AM
Hey Peg-This risks going off into another subject, but thanks AVR! The tinnitus I can handle, but I was having inner ear problems (so I thought) last year and went to specialists and tests and the whole bit and they found nada. So I cut back on salt, which helped, and eliminated dairy, which helped more, and then (ergh) took out soy and I rarely get the dizzies/sinus issues anymore. I can handle the ringing, but if I ever decide to cut out grains for other reasons, I'll look forward to non-ringy ear and a potential benefit.
Still need nettle tea. To the health food store tonight!
I've had lifelong inner ear problems. Had significant hearing loss in my left ear by 7 years of age. Had tubes as a child, an inner ear surgery at 18 to replace part of an inner ear bone (this improved my hearing dramatically in the operating room, but the anesthesia caused severe nausea - threw up after the surgery and lost any improvement). By the time I was dx'd with Celiac Disease at 43 my left ear was about 75% deaf (could hear some sound, but not distinguish words, etc).
At about a year gluten-free my hearing improved dramatically! Since then my left ear continues to get stuffy, itchy and ringing that correspond to my other symptom flares caused by food intolerance, but my improved hearing has remained. My daughter has this same condition in only in her right ear - her hearing also improved at nearly two years gluten-free.
I am very interested to see if nettle tea stops the ringing in my silly left ear.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#48
nvsmom
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Posted 12 October 2012 - 01:25 PM
Huh, how did I miss this post? I've been living on the forum while hiding from house work lately... can't believe I missed a post. LOL
Hmm, so ringing ears isn't normal, eh? Huh, well there's another thing to keep an eye on.
I'll buy my tea tomorrow.
Hmm, so ringing ears isn't normal, eh? Huh, well there's another thing to keep an eye on.
I'll buy my tea tomorrow.
Nicole 
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
#49
GottaSki
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Posted 13 October 2012 - 10:13 AM
First - far from scientific observation.
I was accidentally glutened. My symptoms have been far less severe than with any past experience.
Can't prove, nor disprove the tea as the reason - but I'm going to keep drinking it.
I was accidentally glutened. My symptoms have been far less severe than with any past experience.
Can't prove, nor disprove the tea as the reason - but I'm going to keep drinking it.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#50
JNBunnie1
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Posted 13 October 2012 - 11:40 AM
Last time I got glutened I picked up some digestive enzymes, detox tea, and some activated charcoal. All that seemed to work really well to reduce symptoms, I'll be picking up some nettle tea anyway, but that's a good thing to know! I wonder if there were nettles in that detox tea, I had only looked at the dandelion....
If you're going through hell, keep going. ~Winston Churchill
#51
AVR1962
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Posted 13 October 2012 - 10:53 PM
Just wanted to add something else benficial I found that I am relating to the tea. I have tight muscles and connective tissues in my legs and shoulders. My physical therapist keeps telling me I need to find the reason. I get a deep tissue massage 1-2 times a month and every time is painful, to a the point of near tears....not something I look fwd to but understand it is needed. Last Fri was my first massage since drinking the tea.....amazing, seriously amazing, only a little tightness in left calf and right shoulder. I contribute the difference to the tea. No change in my nerve pain or the pain in my low back from my bulging discs but I am not expecting that either.
Yesterday is not ours to recover but today is ours to win or lose!
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
#52
JNBunnie1
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Posted 14 October 2012 - 05:53 AM
Hey, take what you can get, right?
Glad your massage was pleasant for once! Aren't they nice when they don't hurt?
Glad your massage was pleasant for once! Aren't they nice when they don't hurt?
If you're going through hell, keep going. ~Winston Churchill
#53
bartfull
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Posted 15 October 2012 - 08:18 AM
Well, I finally got around to trying it. I thought it tasted pretty good. I bought loose tea and made it in my french press.
And this morning I woke up to a psoriasis flare!
Probably salicylate related. This really stinks. Every time I find something good for me, I find out it's bad for me.
Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...
And this morning I woke up to a psoriasis flare!
Probably salicylate related. This really stinks. Every time I find something good for me, I find out it's bad for me. Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...
#54
GottaSki
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"Migratory flight complete."
Posted 15 October 2012 - 08:36 AM
That stinksWell, I finally got around to trying it. I thought it tasted pretty good. I bought loose tea and made it in my french press.
And this morning I woke up to a psoriasis flare!
Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...
Hope you are feeling much better very soon!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#55
Coryad
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Posted 15 October 2012 - 08:42 AM
Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...
What??? How did I not know this?
And I also suffer from inflammation so I will get some nettle tea this week... this board is so helpful
Cory
Diagnosed Celiac 4/12 due to DH
Eliminated food molds 1/12
Diagnosed Celiac 4/12 due to DH
Eliminated food molds 1/12
#56
Oscar
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Grouch
Posted 15 October 2012 - 08:42 AM
Bring it on!Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...
Harumph!
"The three-martini lunch is the epitome of American efficiency. Where else can you get an earful, a bellyful and a snootful at the same time?" ~ Gerald R. Ford
#57
IrishHeart
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Warrior Princess
Posted 15 October 2012 - 09:24 AM
Bring it on!
Harumph!
I love you, Oscar, you trashy thing you!!!.
Even I feel a tad grouchy today.
Must be the "weather".
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
Celiac.com - Celiac Disease Board Moderator
#58
kareng
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Glass zebra just because he's cute
Posted 22 October 2012 - 06:02 AM
Here's my unscientific results so far:
I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.
I'm drinking some right now!
I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.
I'm drinking some right now!
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
#59
jerseyangel
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Posted 22 October 2012 - 06:26 AM
For the past week, I have added 2 tablespoons of tart cherry juice concentrate in addition to the tea. Too early, probably, to tell if that is going to have an effect but the tea seems to ease the stiffness a bit.
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#60
Roda
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Posted 22 October 2012 - 07:04 AM
I bought some but haven't tried it yet. Will soon.
Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
DS2(age 8):
celiac disease(positive IgA tTG, no biopsy- 11/2010)
DS1(age 12):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
DS2(age 8):
celiac disease(positive IgA tTG, no biopsy- 11/2010)
DS1(age 12):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
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