Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Challenge Before Endoscopy
0

34 posts in this topic

I caused part of this myself by assuming when I was done with the blood test, I could stop eating the gluten. I didn't realize you needed to keep eating it for the endoscopy.

You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

1

Share this post


Link to post
Share on other sites


Ads by Google:

You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

Well said....and I agree completely. We are here for you and we are trying to give you our very best advice.

Best wishes to you.

0

Share this post


Link to post
Share on other sites

? :huh:

My comment that the two-challenge GI isn't what I would call a "good GI" is somehow seen as a personal attack on YOU? :rolleyes:

I find it hard to believe that any unbiased third-party observer would call that "picking a fight".

Boy, what a train wreck this thread has become! Ya know, Tom, Irish and GottaSki have offered up phenomenal advice to the OP and yet, you keep on

making attacks and challenging everything they say. I mean, really, what the hell is your problem? Who pee'd on your Cheerios this week? :blink:

3

Share this post


Link to post
Share on other sites

Well said....and I agree completely. We are here for you and we are trying to give your our very best advice.

Best wishes to you.

Thank you, IrishHeart. I appreciate the advice! I am learning a lot and everyone is making this process better -- I don't feel so alone. :)

0

Share this post


Link to post
Share on other sites

You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

Thanks, Lisa! No apologies necessary. Not your fault that things went sideways here. I'm going to keep going and at this point I feel like I will make it. Just keeping my eye on the big goal. When I have my consultation with the GI, I'll tell her how hard this is on my system, and hopefully she'll schedule the endo quickly. I'm very grateful for all of your help!

2

Share this post


Link to post
Share on other sites




Thank you, IrishHeart. I appreciate the advice! I am learning a lot and everyone is making this process better -- I don't feel so alone. :)

You're not alone now. You have us. ;) We care. Keep us posted.

0

Share this post


Link to post
Share on other sites

I too am new to this. I have seen doctor after doctor begging for help. They all treated me for individual symptoms. I am 38 years old. I've been on rx for 8 years for reflux and have been diagnosed with Barrett's Esophagus. I have also been on rx for hypothyroidism for 3 years. I was extremely lethargic and seemingly depressed. So then came the rx for that. Next muscle and joint pain. Another pill for that. Then blood pressure, so another pill. All the while, of course I had stomach issues, and all of these symptoms are related. No one was looking at the big picture. I finally went to a chiropractor. She suggested that maybe I had a gluten allergy. I haven't eaten gluten since 9/11/12. I am like a new person. Energy, back to my happy self, no blood pressure issues, joint and muscle pain gone.

I saw my GI last week and asked for Celiac testing as they had never before done this with previous EGD's or colonoscopies. The blood work was negative. I asked to be scheduled for the EGD and biopsy b/c I feel certain its celiac. I even asked if I needed to "contaminate" myself between now and the biopsy bc I had read such. Doc said not necessary. But from all of your posts, I'm thinking he's way off!! My test is scheduled for 11/19. Since I've only been gluten-free for a little less than 2 months, what do you think? If I keep eating gluten until day of test, should my test be accurate?

0

Share this post


Link to post
Share on other sites

Share this post


Link to post
Share on other sites

I saw my GI last week and asked for Celiac testing as they had never before done this with previous EGD's or colonoscopies. The blood work was negative. I asked to be for the EGD and biopsy b/c I feel certain its celiac. I even asked if I needed to "contaminate" myself between now and the biopsy bc I had read such. Doc said not necessary. But from all of your posts, I'm thinking he's way off!! My test is scheduled for 11/19. Since I've only been gluten-free for a little less than 2 months, what do you think? If I keep eating gluten until day of test, should my test be accurate?

My GI said that 2 pieces of bread a day for 3 weeks is enough. Although to be fair, I'm not crazy about her.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,334
  • Topics

  • Posts

    • Awok, Welcome to the forum.  Have you considered trace gluten?  Here is a study on the topic: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf It could explain why you felt good for a while.  I personally was glutened badly last summer.  I have no idea what got me.  I suspect either a prescription medication or one gluten free product (not certified).  I ended up on a whole foods diet and avoided even certified processed gluten-free foods including grains until I was healed (three to six months).  
    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined