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Bright Red Skin
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I have been diligently not eating gluten for about two months now, although I am sure I am getting glutened from my job. One thing I have been experiencing is patches of bright red skin that are sometimes raised and sometimes flat. It itches and burns something terrible, but I don't always get blisters with that particular rash. I get this rash a lot on my hands and arms, but also on the front of my knees and on my rear-end. Has anyone else had this reaction when not eating gluten, but still being exposed?

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intolerant baker, I went back & read your posts so I could see what your history was to better give you advice. I really hate saying this to you but others said it when you first posted on here ---- you are glutening yourself every day in your job. Wearing gloves is not enough. You are inhaling gluten every time you scratch bake which according to your posts is 2-3 times every day. I know the economy sucks right now & I understand you have health ins. in a job that rarely offers such but you are KILLING yourself a little bit every day. IMHO what you are experiencing is celiac rash trying to emerge. And it may not be long before you have a full fledged outbreak. You have GOT to either find a job in a gluten free restaurant or bakery or start your own business maybe out of your home baking gluten free goods for celiacs.

We don't always have to put gluten down our mouth for it to get into our stomach --- we can inhale gluten which goes down our throat into our stomach ESPECIALLY in a job like yours.

The dh rash presents in may ways & blisters is only one of those ways so just because you aren't getting blisters doesn't mean it isn't dh.

I know you don't want to hear this right now but I have to tell you the truth. You have the hallmarks of celiac disease. And believe me, you DON'T want to get to the stage where you DO get dh blisters!!!!!!!!!!!!!!!!! Do you know all the horrible things untreated celiac disease can do to your body & mind? And you are untreated because you are getting glutened every day at work even though your actual diet is gluten free.

I'm not up on exactly what unemployment considers these days but you might check into that as you have to be in a gluten free cooking environment for your health. Your doctor can write a letter stating such. If you could get the unemployment while you look for a job at a gluten free place..... Are you in a big city? If so, you should be able to find a lovely niche in a gluten-free bakery or such.

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Thank you both for your replies.

I do have to admit I am pretty certain it is a different manifestation of DH. I was diagnosed with a "gluten rash" (blisters and all) by my primary care doctor after I had removed gluten from my diet and re-introduced it. I did a six week gluten challenge and she did what I now know to be an incomplete celiac panel. The allergy tests to multiple foods were neg. as was the celiac work. Because I have wonky blood work ups, positive GI response to gluten-free diet, and multiple first degree relatives with auto-immune disorders I do consider myself to have unconfirmed celiac.

I am in the process of considering all options work wise. I have thought of going back to school for a nutrition degree, but the economy is where it's at right now and I am my family's only support at this point. I think for now I will also look into getting those masks folks wear to mow lawns...

Thanks again for your thoughtful responses. It still feels pretty overwhelming at times.

Jenn

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Dear Jenn, I totally understand. And this sucks big time that it all comes down on you & affects your profession & then for you to be the sole breadwinner right now. Talk about one blow after another! You need some huge hugs! ((((JENN)))))

Okay, you need more than the mask those guys wear to mow lawns. You need one of those weird looking "breather" thingys to keep the flour particles out. AND you need to wear it all the time at work because gluten particles float around in the air for hours after making doughs etc....

Go to the hardware store & tell them you need like a painter's type breather mask.

If you get any lesions then you could go have them biopsied for dh. A dx of dh is a dx of celiac.

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Even the respirator mask may not help. Your eyes will still be exposed and the dust will be getting into them. Plus those masks are quite heavy and uncomfortable and wearing one all day will be difficult. Your clothes and hair will also be getting coated so in the long run it is going to be hard not to get some degree of contamination.

You may be able to talk to your doctor, since he has recognized that this is a gluten related rash, and be able to get either unemployment or even temporary disability. You would be able to get student loans to supplement those payments to help the budget. There are also some professions where you can get paid while you train. Nurses Aide is the one that comes to mind. If that is a job that you can do you may want to check with your local hospital and see if there are any training opportunities in your locality. You could also check and see if there are any restaurants or other facilities that are hiring. Not all food establishments bake and you may be able to transition to a position in one where you won't be exposed to gluten all day. Many restaurants are also starting to cater to people on the gluten-free diet. You might be able to find some that will utilize your baking talents for the gluten free items they want on their menus.

You are in a tough position but you really need to find a job that will not kill you.

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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