Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Behavior Issues/tantrums
0

11 posts in this topic

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Both my boys will have meltdowns and behavior issues when they are tired, overstimulated or getting sick especially from strep. My oldest also has mood issues when his allergies are bothering him.

There is also the same issues when my youngest son gets a bad glutening. Sometimes it is hard to tell. My oldest doesn't have behavior issues when he is glutenened so he is a good indicator for the youngest. If they are both having issues at the same time and kids are getting sick at school then I can pretty much figure that out.

0

Share this post


Link to post
Share on other sites

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

0

Share this post


Link to post
Share on other sites

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

yeah, hadn't thought of that. Perhaps it is anticipatory rather than result.

0

Share this post


Link to post
Share on other sites

Could it be another intolerance?

I was exactly the same way as a child, and the doctor suggested cutting out all artificial food colorings. It worked! Red and yellow colorings are especially notorious for causing behavioral problems. Several of them have already been banned in the US, but the ones that aren't banned can still be just as harmful.

0

Share this post


Link to post
Share on other sites




I don't think it is school causing stress or her not wanting to go. She is happy at school and always goes to school without issues. I am wondering about other intolerances but don't even know where to start for that.

0

Share this post


Link to post
Share on other sites

Hi there,

I'm so sorry to hear she's having a tough time. Her behavior is very similar to one of my twins (both have Celiac...but very different responses to the disease...). My girls are about to turn 6 (we homeschool, so I see just about everything they consume/do!).

I'm seriously considering taking our twin who has little impulse control when she gets cc or glutened off of casein (milk/dairy). As I read more, it seems that casein and gluten have similar molecular structures. I have little more to offer other than to say "You are not alone."

Thinking of you!

0

Share this post


Link to post
Share on other sites

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!

I agree with what someone else said - my son seems to have a reaction to food dyes. Super annoying that it's in everything! I'm also wondering if there could be another intolerance, like dairy. Another idea might be high fructose corn syrup. I would keep a food log and see if you can find a pattern.

Thought of something else ... does your daughter have any sleep issues? My son goes through periods when he doesn't sleep well, and we see big behavior changes there.

0

Share this post


Link to post
Share on other sites

Sounds like a cross contamination issue, are you going out to eat on Fridays or Saturdays ?

Where you start is easy. Write down everything she eats. Look for the changes. Correlate what was eaten and what happens later.

She may just need to be reminded to wash hands and rinse very well, before eating.

Oh, and those food dyes.... my goodness, yes, that stuff has even gotten me sometimes, I had to switch my candy bar treats to one that doesn't have it, and I stopped eating ice cream that is obviously "colored," (like green) because I noticed that I was getting temperamental after eating a certain kind with a lot of colorings. And I'm an adult !

0

Share this post


Link to post
Share on other sites

I would recommend a food diary. My celiac son had the same issues, and we finally discovered caffeine, food dyes and dairy all would cause the nasty emotional outbursts. As long as we keep himm away from them, he is a nice little boy! :)

0

Share this post


Link to post
Share on other sites

My son was the same way. We had got gluten free but we were still having some behavior issues.

I ended up cutting our dairy, as well, and it made a BIG difference. Try cutting out dairy and go from there. If there are still issues, do an elimination diet. We've found that he can have limited amounts of dairy (as minor ingredients in something)and still be okay...but not something with it as a main ingredient.

I had also found that he was having more issues during the week than during the weekend and found that at school he was still having items with wheat and dairy in them. Once we nipped that in the bud he was good to go!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined