Doctor Won't Do Yearly Follow Ups
Posted 09 October 2012 - 05:44 AM
Posted 09 October 2012 - 06:03 AM
if its abnormal, go back to the GI.
"Children in a family are like flowers in a bouquet: there's always one determined to face in an opposite direction from the way the arranger desires."
~Ralph Waldo Emerson
Posted 09 October 2012 - 06:21 AM
"We recommend new celiac patients receive
follow-up testing twice in the first year
after their diagnosis. The first appointment
should occur 3 to 6 months after the
diagnosis, and the second should occur
after 1 year on the gluten-free diet. After
that, a celiac patient should receive
follow-up testing on a yearly basis."
There is still debate over what is "appropriate follow up care" among the medical community apparently because Dr. Murray, et al. just published a study suggesting there needs to be some standard protocols in place for treating every celiac after diagnosis.
My GI doc did lab work every few months on me the first 2 years (but I had been very ill and unDxed for years and had a lot of complications) and he will now go to every 6 months and do a biopsy next year.
Maybe it is different for little ones, but I would ask your ped to do it for your child. --as Karen has suggested. IMHO
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
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"Do or do not. There is no try. "- Yoda.
"LTES" Gem 2014
Misdiagnosed for 25+ years; Finally Diagnosed with Celiac 11/01/10. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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