Jump to content

Follow Us:  Twitter Facebook RSS Feed            



Celiac.com Sponsor:

 
   Get email alerts  Subscribe to FREE Celiac.com email alerts



  arrowShare this page:
   
Celiac.com Sponsor:
Photo
- - - - -

Doctor Won't Do Yearly Follow Ups


  • Please log in to reply

2 replies to this topic

#1

 
1974girl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 318 posts
 

Posted 09 October 2012 - 05:44 AM

Is this ok? My daughters pediatric gi has done a repeat biopsy and blood test that both show damage is healed and in normal range. She said there is no reason to do a yearly blood test. Why pay for a test when i am doing everything humanly possible to keep her safe? She said she does them only on kids and parents who are not compliant or that she questions it due to custody issues. Since I go overboard on it, she said she has no worries. She said since my dd is a silent celiac then even if the test was positive, id never know what caused it. She said to keep up the good work and released us. Is this ok?
  • 0

Celiac.com Sponsor:

#2

 
kareng

    Narwhals, narwhals, swimming in the ocean.....

  • Moderators
  • PipPipPipPipPipPip
  • 14,778 posts
 

Posted 09 October 2012 - 06:03 AM

Have your pediatrician do it as part of the yearly exam. Take info like this:

http://www.curecelia...ting_062012.pdf


if its abnormal, go back to the GI.
  • 0

"Children in a family are like flowers in a bouquet: there's always one determined to face in an opposite direction from the way the arranger desires."
~Marcelene Cox

 

 
"Earth laughs in flowers."
~Ralph Waldo Emerson
 
flower-3-smiley-emoticon-emoji.png
 

 




 

 
 

 


#3

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 09 October 2012 - 06:21 AM

The celiac center states:

"We recommend new celiac patients receive
follow-up testing twice in the first year
after their diagnosis. The first appointment
should occur 3 to 6 months after the
diagnosis, and the second should occur
after 1 year on the gluten-free diet. After
that, a celiac patient should receive
follow-up testing on a yearly basis."

There is still debate over what is "appropriate follow up care" among the medical community apparently because Dr. Murray, et al. just published a study suggesting there needs to be some standard protocols in place for treating every celiac after diagnosis.

My GI doc did lab work every few months on me the first 2 years (but I had been very ill and unDxed for years and had a lot of complications) and he will now go to every 6 months and do a biopsy next year.

Maybe it is different for little ones, but I would ask your ped to do it for your child. --as Karen has suggested. IMHO
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: