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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Doctor Won't Do Yearly Follow Ups

3 posts in this topic

Is this ok? My daughters pediatric gi has done a repeat biopsy and blood test that both show damage is healed and in normal range. She said there is no reason to do a yearly blood test. Why pay for a test when i am doing everything humanly possible to keep her safe? She said she does them only on kids and parents who are not compliant or that she questions it due to custody issues. Since I go overboard on it, she said she has no worries. She said since my dd is a silent celiac then even if the test was positive, id never know what caused it. She said to keep up the good work and released us. Is this ok?


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The celiac center states:

"We recommend new celiac patients receive

follow-up testing twice in the first year

after their diagnosis. The first appointment

should occur 3 to 6 months after the

diagnosis, and the second should occur

after 1 year on the gluten-free diet. After

that, a celiac patient should receive

follow-up testing on a yearly basis."

There is still debate over what is "appropriate follow up care" among the medical community apparently because Dr. Murray, et al. just published a study suggesting there needs to be some standard protocols in place for treating every celiac after diagnosis.

My GI doc did lab work every few months on me the first 2 years (but I had been very ill and unDxed for years and had a lot of complications) and he will now go to every 6 months and do a biopsy next year.

Maybe it is different for little ones, but I would ask your ped to do it for your child. --as Karen has suggested. IMHO


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