Doctor Won't Do Yearly Follow Ups
Posted 09 October 2012 - 05:44 AM
Posted 09 October 2012 - 06:03 AM
if its abnormal, go back to the GI.
"You have problems. There are not enough paper clips, and then you've got world hunger. Your problems are somewhere in between." -DPR,III
Celiac.com - Celiac Disease Board Moderator
Posted 09 October 2012 - 06:21 AM
"We recommend new celiac patients receive
follow-up testing twice in the first year
after their diagnosis. The first appointment
should occur 3 to 6 months after the
diagnosis, and the second should occur
after 1 year on the gluten-free diet. After
that, a celiac patient should receive
follow-up testing on a yearly basis."
There is still debate over what is "appropriate follow up care" among the medical community apparently because Dr. Murray, et al. just published a study suggesting there needs to be some standard protocols in place for treating every celiac after diagnosis.
My GI doc did lab work every few months on me the first 2 years (but I had been very ill and unDxed for years and had a lot of complications) and he will now go to every 6 months and do a biopsy next year.
Maybe it is different for little ones, but I would ask your ped to do it for your child. --as Karen has suggested. IMHO
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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac 11/01/10. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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