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Doctor Won't Do Yearly Follow Ups


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#1 1974girl

 
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Posted 09 October 2012 - 05:44 AM

Is this ok? My daughters pediatric gi has done a repeat biopsy and blood test that both show damage is healed and in normal range. She said there is no reason to do a yearly blood test. Why pay for a test when i am doing everything humanly possible to keep her safe? She said she does them only on kids and parents who are not compliant or that she questions it due to custody issues. Since I go overboard on it, she said she has no worries. She said since my dd is a silent celiac then even if the test was positive, id never know what caused it. She said to keep up the good work and released us. Is this ok?
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#2 kareng

 
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Posted 09 October 2012 - 06:03 AM

Have your pediatrician do it as part of the yearly exam. Take info like this:

http://www.curecelia...ting_062012.pdf


if its abnormal, go back to the GI.
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#3 IrishHeart

 
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Posted 09 October 2012 - 06:21 AM

The celiac center states:

"We recommend new celiac patients receive
follow-up testing twice in the first year
after their diagnosis. The first appointment
should occur 3 to 6 months after the
diagnosis, and the second should occur
after 1 year on the gluten-free diet. After
that, a celiac patient should receive
follow-up testing on a yearly basis."

There is still debate over what is "appropriate follow up care" among the medical community apparently because Dr. Murray, et al. just published a study suggesting there needs to be some standard protocols in place for treating every celiac after diagnosis.

My GI doc did lab work every few months on me the first 2 years (but I had been very ill and unDxed for years and had a lot of complications) and he will now go to every 6 months and do a biopsy next year.

Maybe it is different for little ones, but I would ask your ped to do it for your child. --as Karen has suggested. IMHO
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