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Home Test


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21 replies to this topic

#1 Slr38

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Posted 09 October 2012 - 10:21 AM

Hello Everyone,

My Biocard home Celiac test arrived today. There was a very faint line in the test window, I mean, Very faint.

I'm not sure how to interpret this! I will ask the doctor to do a lab blood test anyways but I was curious as to what experiences you may have had. I believe Nicole had a very faint line as well...

Is there a normal range for Celiac blood tests in a lab?

Thanks!

Stephanie
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#2 mushroom

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Posted 09 October 2012 - 11:51 AM

Is there a normal range for Celiac blood tests in a lab?


Yes, every lab sets their own ranges though. You will get a negative, equivocal, and positive range given with each result.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

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(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
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Citric acid free June 2009
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#3 Slr38

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Posted 09 October 2012 - 12:31 PM

Yes, every lab sets their own ranges though. You will get a negative, equivocal, and positive range given with each result.


Thanks for your reply.

So a faint positive result on a home test could come out negative from a lab I guess.
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#4 mushroom

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Posted 09 October 2012 - 12:34 PM

Thanks for your reply.

So a faint positive result on a home test could come out negative from a lab I guess.


I have seen a poster say they had a faint positive on a Biocard that came out positive in a celiac panel test. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#5 Slr38

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Posted 09 October 2012 - 12:48 PM

Thanks for your reply.

So a faint positive result on a home test could come out negative from a lab I guess.


Yes, I think that was nsvmom.

Thanks.

We'll see what the lab says. I think I am finally narrowing in on what is wrong with me after all of these years!
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#6 nvsmom

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Posted 09 October 2012 - 04:04 PM

Hello Everyone,

My Biocard home Celiac test arrived today. There was a very faint line in the test window, I mean, Very faint.

I'm not sure how to interpret this! I will ask the doctor to do a lab blood test anyways but I was curious as to what experiences you may have had. I believe Nicole had a very faint line as well...

Is there a normal range for Celiac blood tests in a lab?

Thanks!

Stephanie


Oh no. That's a positive test. :( Those Biocard tests are like home pregnancy tests, a positve line only shows up if its, well... abnormally positive (for ttg IgA).

You're right, I too had a very faint positive test. VERY faint. I first read the test in dim lighting and I almost dismissed it but then I ran over to a light to have a better look. I had a hard time believing it was positive when I did my test so I did a bunch of googling and kept coming up with the fact that a light or dark positive line does in fact indicate celiac. Here's another site that says the same thing:
http://www.anibiotec...nti-08-2010.pdf

I also found this site interesting because it was a study about how the medical workers would interpret the tests and their varying darkness. Nurses were shown four positive tests and asked to judged which would be negative or positive. They wrongly judged the faint lines to be negatives where as a negative is ONLY if a second line does NOT appear at all. No lines at all (in either window) would indicate an IgA deficiency. Anyway, on page 5 there are some pictures... my test looked similar to the faintest test (3rd) or possibly the 1st test:
http://pubmedcentral...es-01244-el.pdf

I did have labs run by my doctor too (good memory you have). My lab run ttg IgA test was >200 with a reference range of 0-20; basically off their chart. I think the doctor run tests are more sensitive, but that's just a guess.

I would interpret your test as positive. If doctor ordered lab tests come back negative, I would consider a biopsy because something is wrong to give you that positive ttg IgA result. Remember to keep eating gluten until you are satisfied that the testing is complete. And if all the doctor ordered tests do come back negative, I would suggest you try going gluten-free for at least a few months before you dismiss a celiac diagnosis... and at the very least retest in 6 months to a year.

Good luck. :) I hope this is the answer and you see great results going gluten-free... and hey, if you want more info on gluten-free stores and the support group in Calgary, just contact me. :)
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#7 Slr38

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Posted 09 October 2012 - 04:38 PM

Thanks for the reply.

I too read that any line, even very faint, is considered positive. I was just doubting it because so far I have tested negative for every single test I have been ever tested for ( except pregnancy! :) ).

I made an appointment with my doctor (again) but can only get in to see her next Wednesday. I was proactive though and booked an appointment for blood tests at CLS (market mall) for the following morning.

I will definitely ask you for local info if I get the positive diagnosis. (Are you in the NW?)

Do you have any idea what the wait time is for an endoscopy in Calgary?

Thanks for the support!
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#8 MoMof2Boyz

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Posted 09 October 2012 - 04:49 PM

How long did it take to get the test kit? It's from Canada right??
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#9 Slr38

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Posted 09 October 2012 - 05:07 PM

How long did it take to get the test kit? It's from Canada right??


I ordered mine through the pharmacy at London Drugs. I ordered Thursday and it arrived today. They don't tack on shipping charges. A few other websites I looked at said 2 - 5 business days.

Are you in Canada? The websites I saw said they only ship to addresses in Canada.
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#10 MoMof2Boyz

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Posted 09 October 2012 - 05:27 PM

I ordered mine through the pharmacy at London Drugs. I ordered Thursday and it arrived today. They don't tack on shipping charges. A few other websites I looked at said 2 - 5 business days.

Are you in Canada? The websites I saw said they only ship to addresses in Canada.


No, I"m in the U.S.

I didn't see that the company only ships within Canada.

can you post a link to the product on the london drugs website? it's not coming up in a search...
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#11 Slr38

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Posted 09 October 2012 - 06:14 PM

No, I"m in the U.S.

I didn't see that the company only ships within Canada.

can you post a link to the product on the london drugs website? it's not coming up in a search...


Maybe there are companies that ship to the US! If it does not mention any shipping restrictions then you should be okay. I called the pharmacy at my local London Drugs directly...
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#12 nvsmom

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Posted 09 October 2012 - 06:48 PM

Thanks for the reply.

I too read that any line, even very faint, is considered positive. I was just doubting it because so far I have tested negative for every single test I have been ever tested for ( except pregnancy! :) ).

I made an appointment with my doctor (again) but can only get in to see her next Wednesday. I was proactive though and booked an appointment for blood tests at CLS (market mall) for the following morning.

I will definitely ask you for local info if I get the positive diagnosis. (Are you in the NW?)

Do you have any idea what the wait time is for an endoscopy in Calgary?

Thanks for the support!


I understand, I did a double take when my test showed a positive too. :)

Yes, I'm in the NW. Probably further up Crowchild than you; Crowfoot is near me.

I have no idea about the wait time for an endoscopy. My doctor didn't push the endoscopy at all; he left it up to me. Ttg IgA and EMA was enough for him to call it celiac. That was fine by me since I didn't see the need for it in my situation.

After doing an online search a few months back, I found that the wait to see a GI specialist for celiac was about a year, but I'm assuming that is only if your GP isn't pulling any strings for you. I'm sure it varies significantly. At the Calgary Celiac Newbie meeting, there was one man who was in for an endo (with some pushing) in a week (he was having serious throat and eating issues from it though), there was another guy who waited under a month, and a lady who was still waiting after a couple of months... I think it depends on how hard your doctor advocates for you, but again this is just my guess. (I never did see a GI specialist.)

I really wish you the best. :) I remember that first month when I wasn't confirmed by my doctor, I was so distracted thinking about it... stressful time. On the positive side, I used that time to research and start setting up my gluten-free kitchen since I had decided to go gluten-free no matter what the doctor said.
Good luck.
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Nicole Posted Image

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#13 Slr38

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Posted 09 October 2012 - 07:15 PM

Do you know if you can still claim the tax credit for buying Gluten Free foods without having the endoscopy? Can the dr. give a medical certificate declaring celiac disease on Bloodwork alone?

Thanks.

P.S.

I'm in Varsity so we are very close! Small world...
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#14 nvsmom

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Posted 10 October 2012 - 06:28 AM

Huh, Silver Springs. :) Small world is right!

I'm assuming as long as the doctor diagnoses you as celac, and you provide Revenue Canada with that info, you'll probably be fine. I've been saving receits but I doubt it would be worth the work for me. I've also heard (just on-line so it should be taken with a (large) grain of salt, that one is more likely to be auditted if you claim foods for celiac... I have no evidence to back that up though...I should have asked about that at the Celiac Newbie meeting I think.
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Nicole Posted Image

"Acceptance is the key to happiness."

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Hypothyroid - August, 2012

CANADIAN

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#15 Slr38

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Posted 10 October 2012 - 07:52 AM

Huh, Silver Springs. :) Small world is right!

I'm assuming as long as the doctor diagnoses you as celac, and you provide Revenue Canada with that info, you'll probably be fine. I've been saving receits but I doubt it would be worth the work for me. I've also heard (just on-line so it should be taken with a (large) grain of salt, that one is more likely to be auditted if you claim foods for celiac... I have no evidence to back that up though...I should have asked about that at the Celiac Newbie meeting I think.


Wow, we are neighbours!

Thank you once again for the info.

I am going to try and lie low and stop Googling until after my blood tests. I am driving myself crazy!

I will keep you posted.
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