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21 replies to this topic

#16 Slr38

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Posted 11 October 2012 - 11:04 AM

Wow, we are neighbours!

Thank you once again for the info.

I am going to try and lie low and stop Googling until after my blood tests. I am driving myself crazy!

I will keep you posted.


Any advice for someone who can't stop Googling about Celiac Disease? My appointment is not until next week and then I will probably have to wait until the following week for the blood test results. I don't know how to take my mind off of it!
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#17 Celiac Mindwarp

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Posted 11 October 2012 - 11:43 AM

We might not be the right bunch of people to ask about googling and addiction to learning about celiac!

Good luck with testing and results
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#18 Slr38

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Posted 11 October 2012 - 11:55 AM

We might not be the right bunch of people to ask about googling and addiction to learning about celiac!

Good luck with testing and results


:D
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#19 nvsmom

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Posted 11 October 2012 - 05:21 PM

LOL :lol: I hear you! Read up on it at the library instead; the CPL has a TON of books that you can go on-line to arrange a hold to go to your nearest library (as long as you know your library card number). Just type in gluten-free or celiac and you'll get 20+ books listed. Green's book, Celiac Disease: The Hidden Epidemic is really good. There are good travel books on celiac; some have restaurant cards in them, in various languages, to photocopy and give to servers and the kitchens when you go out to eat. There are also many gluten-free cookbooks; even Company's Coming has a gluten-free cookbook! Also, there are good kids books for explaining it to our kids.

Speaking of kids, this is a genetically linked disease so you might want to have your kids checked out as well.

Check out the Planet Organic or Amaranth for their gluten-free options. Even Superstore has a section that is gluten-free dedicated... it's small but it's there. I found it quite reassuring to get cookbooks and go shopping; I quickly realized how much is still available for us to eat! :)

...Or have your husband hide your power bar to the computer. ;) LOL If you want someone to chat with some evening, I'll meet you for a coffee... We can obsess live rather than on the computer! LOL :lol:
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Nicole Posted Image

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#20 Slr38

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Posted 11 October 2012 - 06:54 PM

Hi Nicole,

Thanks for your suggestions. I actually put that book on hold for me at the library. It should be there by tomorrow. I will see what else I can find too.

I will also check out Planet Organic tomorrow when my eldest is in kindergarten. PO is two minutes away and I have never been inside! I read that Amaranth has a Celiac registry and will keep track of all gluten-free purchases and will give you a print out at the end of the year for tax purposes.

I was at Home Sense today and they had a gluten-free Baking Cookbook, maybe I should go back and get it.

Our pediatrician is great (I think even more so now after reading some posts on this forum). He tests all of his patients from the age of two regardless of if they have symptoms or not. If I do have celiac disease I will be sure to tell him so he can retest my boys in the future.

I would love to meet up some time! I will need a coach ( or would we call them sponsors? lol). Can we send PMs on this forum?

Oh and my husband is away for the week hence the boredom and constant Googling.
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#21 nvsmom

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Posted 11 October 2012 - 07:10 PM

You're right about Amaranth. They'll give you a print-out of your purchases at the end of the year, and they mark each item on your receit as gluten-free. Very handy.

I recommend checking out the library's cook books before you buy (unless you like to collect cookbooks). There are soooo many now, and some are more appealing and complex than others. There is one on Artisanal gluten-free cupcakes that has cupcakes to die over! Mmm.

Your doctor sounds great. Hold on to him! LOL

And I wouldn't consider it a coach.... more of a "misery likes company" sort of thing. LOL
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Nicole Posted Image

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Hypothyroid - August, 2012

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#22 Brenda44

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Posted 21 September 2013 - 02:44 PM

I suspect that I have celiac or NCGS.  I ordered a Biocard, but since I live in America and it comes from Canada, it took weeks to get here.  I had given up and went on the gluten free diet and was having good results.  The test finally showed up and I decided to use it on my dad because I think he has a much worse case of it.  He has eight stents in his heart, diabetes, arthritis, bruising, nosebleeds, gout, on and on and on.  I did the test on him and we just sat and chatted waiting on a result.  We were outside and didn't have a clock so I didn't time it down to the minute.  I looked at it after a few minutes and didn't see anything.  After about 10 or 15 minutes I looked and saw a very, very faint line.  It is now about 4 hours later and I can still look at the test and see that very faint line.  If it's positive, does the positive line tend to stay in the window for that long?  I know i have a pregnancy test from 17 years ago that told me my son was on the way and it still shows positive.  Just wondering if the fact that it stays there is any more confirmation that he's positive?  The instructions say not to read it after 10 minutes, but if you're negative, why would a positive show up anytime after 10 minutes?


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