Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New To Celiac Disease And Scared
0

18 posts in this topic

Hello I have been just diagnosed three days ago with Celiac Disease. All I can say is that I am scared and very confused. The information is very overwhelming and hard to understand. From what I have read here I have to go out and buy all new baking sheets and pots and utensils and etc. I cant afford this disease! :angry:

And the prices of the items that are gluten free are sometimes insane. I am so sick right now and just dont know what to do. I cant really even eat the gluten free stuff at this point. Does this get better :(

Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

Eat whole foods, avoid anything proccessed is one way to keep prices down.

Pots and pans, as long as they are not scratched should be fine.

Backing sheets can be covered with foil.

Colenders should be replaced, as should wooden spoons and plastic utenciles; stainless steal is fine.

1

Share this post


Link to post
Share on other sites

Does this get better :(

Yes. Absolutely.

Give yourself time. This is all very new to you. Shadow already answered a few of your concerns very well - ask as many questions as you need - you are not alone - we've all gone through the transition and are here to help.

Hang in there!

0

Share this post


Link to post
Share on other sites

Yep, it gets easier. Eating whole foods is a good way to start gluten-free. There are no labels to read and you know what you are eating. Try some corn tortillas instead of gluten-free bread. Most stores have their gluten-free items in the freezer section, altho Trader Joe's keeps some out on the bread shelf. Chex makes gluten-free cereals, and Betty Crocker has some gluten-free cake mixes that are not expensive

By the way, it was an emergency and I had to run the light! :)

0

Share this post


Link to post
Share on other sites

As Lisa said...give yourself some time. Take some time to educate yourself and read, read and read from this site. :)

But,the most important thing you need NOT to do is too get overwhelmed, as hard as it may be.

Begin you diet with "simple"...meats, fish, seafood, veggies, potatoes and rice - season with salt and pepper until you learn more. Water, tea(unflavored), Pepsi, Sprite and Coke are gluten free.

Stay away from processed gluten free foods. You won't like them, until you crave them a year later. :P The only thing I buy that is gluten free is an occasional bread product and pasta and waffles.

I guarantee you, that after some time, you will find that a gluten free life, is a FULL ONE. There is not too much that you will miss.

Welcome to the Club! :D

How can we held you replace some of your foods?

0

Share this post


Link to post
Share on other sites




The transition is overwhelming, but it can be done. Your body is working on recovery very hard. You may feel extra run down and even new symptoms. I always consider that any reaction is a good one. Do some studying, decide what to eat each meal, and get extra rest when you can.

Get well, Get well, ***** That is the best I can do for flowers.

Diana

0

Share this post


Link to post
Share on other sites

I don't buy many gluten Free products at all. I have a loaf of gluten-free white bread and a loaf of gluten-free Cinn Raisin bread in the freezer. Once in a while, I will buy a box of gluten-free cookies, or some gluten-free mix to make cookies for when I feel like having one. Once in a GREAT while, i will buy Udi's gluten-free Chocolate chip muffins but those are like 8 dollars for 4 so it is rare (they are SOOOO good though!)

I haven't bought new pots/pans, mostly because most of mine are stainless steel anyway. I have one teflon one that needs to be replaced because its all scratched up but I have been lazy, I just dont use that for my food.I have 2 colanders/strainers and honestly, just buy one at the dollar store or something, same for utensils, that's what I did.

I was really nervous at first about washing things. we dont have a dishwasher...if you search my posts you will see one from me a few months back panicking about how I was going to get everything clean, etc. Relax.

It does not have to be expensive. Just buy foods that don't have gluten in it. Rice..vegetables..meats, etc. Add in some "products" here and there if you want so you don't feel deprived. Gluten Free products are not a necessity, they are there so you don't feel like you lost something, imo.

0

Share this post


Link to post
Share on other sites

Thank you all very much for your help...the whole pots and pan thing was really bothering me...what about coffee I have heard several different opinions about it? Gfindc...thanks for the moment of laughter :D

0

Share this post


Link to post
Share on other sites

As far as coffee is concerned, ive only heard that the flavored ones may have it. Always double check.

0

Share this post


Link to post
Share on other sites

Coffee is fine as Shadow said, as long as it's not flavored. You may want to drink it black for a while (it's better that way anyway, imo). Some of us have trouble with dairy at first, but even if dairy doesn't bother you, milk or cream in coffee might. It makes the coffee very acidic which might be rough on your damaged digestive system.

If you are a coffee fanatic like me, you might just want to get yourself some special coffee as a treat. Costa Rican beans perhaps (my favorite) or maybe even some Dunkin Dounuts Coffee. Seeing you can't have other treats you used to enjoy, a special cup of coffee might ease the sting a bit. :)

0

Share this post


Link to post
Share on other sites

Hello I have been just diagnosed three days ago with Celiac Disease. All I can say is that I am scared and very confused. The information is very overwhelming and hard to understand. From what I have read here I have to go out and buy all new baking sheets and pots and utensils and etc. I cant afford this disease! :angry:

And the prices of the items that are gluten free are sometimes insane. I am so sick right now and just dont know what to do. I cant really even eat the gluten free stuff at this point. Does this get better :(

Thanks

I was dx in May and I completely understand your sentiment. It IS really overwhelming and scary at first, but I promise that it gets easier as time goes on. You do NOT have to go out and buy all new foods... you can still eat some processed foods too. You are going to have to spend a lot of time reading labels and making lists before going to grocery stores, but you will get the hang of it.

0

Share this post


Link to post
Share on other sites

When was the last time you came home from the grocery store with ONLY whole foods? It's actually cheaper than "the old" way of shopping. Cheaper by a LOT!

Go to the store & rediscover food! Go through the produce section & really look at all those fruits & veggies you have been whizzing past for years & years. Apples, pears, oranges, tangerines, avocados, mangos, pomegranates, plums, grapes & the list goes on. Snap beans, pole beans, chayote, winter squashes, summer squashes, cauliflower, leeks, tomatillos, tens of kinds of lettuce, fresh spinach, swiss chard, rhubarb, snow peas & on & on.

2

Share this post


Link to post
Share on other sites

When was the last time you came home from the grocery store with ONLY whole foods? It's actually cheaper than "the old" way of shopping. Cheaper by a LOT!

Go to the store & rediscover food! Go through the produce section & really look at all those fruits & veggies you have been whizzing past for years & years. Apples, pears, oranges, tangerines, avocados, mangos, pomegranates, plums, grapes & the list goes on. Snap beans, pole beans, chayote, winter squashes, summer squashes, cauliflower, leeks, tomatillos, tens of kinds of lettuce, fresh spinach, swiss chard, rhubarb, snow peas & on & on.

Oh indeed, i can go spend about $60 and have more food then i did when i was on gluteny stuffs. So much easier.

1

Share this post


Link to post
Share on other sites

Hi Copgirl,

Here's some tips that might help. Starting out on the gluten-free diet can be upsetting, but there really are lots of foods to eat that don't have gluten in them. After a while eating whole foods you may find your tastes for things has changed and you are as interested in processed foods anymore. While you are healing your digestion can be kind of crazy and unpredictable. There lots of changes going on as you heal, including changes in the bacteria that inhabit your gut. Probiotics can help stabilize that change. Limiting sugar and starchy foods can ease the gas as those things feed the bacteria and cause gas.

It's good to do your own cooking whenever possible and make extra so you can freeze some. Rice is good but quinoa and teff and amaranth and buckwheat are also good alternative grain like foods you can use. They have more nutritional value than rice. Make sure to wash quinoa (or all of these really) well before cooking tho.

Some starting the gluten-free diet tips for the first 6 months:

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

0

Share this post


Link to post
Share on other sites

Thank you again for the advice. The only things Im having problems with is hamburgers and pizza which I dont eat much of but do so much love. I know I can eat a hamburger without a bun but its just not the same thing ya know. And also its football time and we are a football family...how can I have a beer with the rest of our gang :angry:. I realize its for my health but its still upsetting sometimes. Not a very good person who does as she is told :P

Laura

0

Share this post


Link to post
Share on other sites

Hamburgers - we use Udi's hamburger buns or the two end's of normal udi's bread. We take them with us if we will be grabbing a burger on the road.

Pizza - you can make your own - not the same convenience as take out, but does satisfy the craving very nicely without making you ill.

Beer - there are more and more gluten-free beers everyday. Use the search feature at the top right of your page to find numerous threads regarding options and opinions on their taste.

There is nothing that helps the frustration caused by removing spontaneity from our dining choices - except being prepared and giving it time. Even this gets much better with time.

Hang in there - it does get better :)

0

Share this post


Link to post
Share on other sites

7 months into being gluten and dairy free and I still get angry at times. It does get easier though.

To keep costs down, shop the perimeter of the grocery store. Try to stay away from the processed foods. I will admit that it is sometimes easier said than done. I spend a lot of time in the kitchen, which also drives me nuts at times.

Once you're feeling a little adventurous try baking your own gluten free hamburger buns and breads. For now, concentrate on learning as much as you can and feeling better.

Great big {{{{{HUGS}}}}}}} to you.

0

Share this post


Link to post
Share on other sites

In my experience, at least with the brands I have tried so far, when it comes to gluten-free rolls and breads, you need to toast or grill them really well. Maybe I just haven't gotten used to the texture, but thats what I need to do.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined