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Newly Diagnosed Hashimoto's Disease
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A little over a year of being gluten free and found out my thyroid has now gone bad (hashimoto's disease). I asked for more than just the TSH they wanted to give me. All tests turned out significantly messed up so probably didn't need all of them but I thought it was interesting that thyroid peroxidase antibody came out really high (493 where normal would be less than 35). Clearly my body has been attacking my thyroid after I pulled out the gluten. My mom told me she thought I should find an endocrinologist to manage the disease with instead of my GP who is clueless and quitting as of this week. I've heard most endocrinologists treat diabetes and don't know much about thyroid. For those of you with thyroid issues, what kind doctor do you see? Also anyone know if the generic levothyroxine at Walgreens is gluten free? I'm trying to call the manufacturer but apparently when I called was past their operating hours so have to wait. So I'm curious to know! Thanks all!!!

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It really doesn't matter if its an endo, GP, or nd as long as s/he treats you to make you feel better rather than to normalize tsh.

Start here for docs in your area. http://www.thyroid-info.com/index.htm

Keep googling and following links and ask around. Start reading about Hashis, and keep copies of all your labs and dosages and meds. Make notes and keep track of how you feel. Talk to your new doctor about all of it. You'll be able to gauge pretty quickly if you're suited to each other.

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Thanks Pricklypear1971. I'm not sure which all of my vague symptoms are related to thyroid. My main complaint was thinning hair and heavy periods. Other things I'm not sure if they are unresolved celiac or something else. After trying the initial dose the GP gave me, when should I go back (GP didn't mention going back).

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Well, at first my doc wanted to see me monthly (with labs each time). I personally thought that was a bit much (I did arrange to get my lab sheets at each visit so labs could be drawn prior to the following visit).

She upped it every month til she started seeing something she liked (not sure what that was). It took at least 6 months for my tsh to move down but I felt much better immediately.

I can tell you right now you need a new doc simply because none of this was discussed, and you're on t4 only. I pushed for combo therapy up front (benefit of mother who is hypo). T4 only can work, but a great number of patients feel better on combo therapy.

You need to start reading about being a thyroid patient.

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Good to know. My GP is clueless about treating anything beyond a cold. I'm trying to get into see someone who I've heard is good but can't get an appointment until March. What medicine are you on Pricklypear1971 that you like?

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I've been on synthetic t3/t4 compounded, Armour (before reformulation), Nature-Throid, compounded natural thyroid, and back to Nature-Throid. I'm trying it again because I felt very good on it but had to switch because of a shortage of product a few years ago (big mess).

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Another idea to find a good doc is to contact your closest compounding pharmacy and ask for a thyroid doc reco. Talk to the pharmacist, unless the person who answers the phone sounds unusually informed.

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    • Welcome!   I am confused.  Did you have a negative celiac blood test or a negative biopsy (taken via endoscopy)?
    • In addition to cheese made with yogurt, hard cheeses like cheddar, romano, parmesaen etc are also going to be lactose free. Eggs are also a good source of protein if you eat them. Do bear in mind that celiac can really mess with your head. It can cause depression and anxiety that can get worse for a short time when you first go gluten free. your life is not over by any means. The reason why you see more people on boards and in forums that are having problems is because most when they heal go on with their lives. We don't hear from them with the exception of a few that stick around to help people that are still struggling. Hang in there it will get better.
    • You are sick.  Depression and anxiety are symtoms of celiac disease (and many other illnesses).  It is hard now to look forward and imagine a great life, but it is possible.  I think you are already in the thick of the grieving process right now.  Reaching out to this forum can be very healing emotional (it is not just all common sense advice about gluten-free food!).  I did not say not to exercise, but to do it gently.  This is not the time to train for a marathon or triathlon!   The SCD Lifestyle site....it is all about the money.  Seriously.  They are selling a book. 
    • They are big on selling books -. They try to spam a lot forums and FB groups. why can't you eat nuts, nut flours, quinoa, hummus and beans? I think I missed that. Those are a good source of protein.  If you can't digest lactose look for a lactose free cheese - like one made from yogurt. at first,I thought life was over.  But with a few years of experience, I have found it isn't that big of a deal. It helps to have an attitude of "I am not here for the food.  I am here for the wine ( or the company . ). Also helps to not care what people think - "I don't care if you think it's odd that I brought my own lunch to the funeral luncheon. "( And it helps that my lunch looks better than theirs lol.)
    • Gracey, It am a mother and I am going to give you some  valuable advice.  You need to keep and document everything related to your health.  Every lab test result, notes from your doctor's visits, etc.  Why?  Because only you are your best health advocate (except for your mom).  Doctors come and go, but it is up to you to manage your health.   When I changed insurance and doctors, I had copies of all my medical records in hand.  My new PCP was impressed.  There was no doubt that I had celiac disease, fractures, Hashimoto's and diabetes, anemia, etc.  I had physical proof.  As an result, she was quick to refer me to a new GI  and order tests to measure my progress  (e.g bone scans).  My family health history chart helped not just me, but other family members.   So, find out if biopsies were taken during your endoscopy.  Get the pathologist's report.  See if your doctor checked for other issues besides celiac disease.   Hugs!  
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