Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Night Time The Worst
0

25 posts in this topic

Am I the only one who suffers the most at night. I can feel skin layers peeling off under my nail. My skin is burning and stinging and itching all at the same time.

0

Share this post


Link to post
Share on other sites


Ads by Google:

so not the only one! Two nights ago I could feel myself clawing off skin and scabs - still wasn't enough! Unfortunately, this is also a strong characteristic of scabies. One of the first things my derm asked me - 'was it worse at night?' When I said yes, he immediately diagnosed scabies. So watch out for that question on the 16th!

0

Share this post


Link to post
Share on other sites

I'ce packs. I usd to fall asleep with them packed under my arms. Put more in the freezer in case you wake up.

0

Share this post


Link to post
Share on other sites

Night is THE worst! Sleep deprivation night after night after night. It may be a feature of scabies but it's also a feature of dh. A few shots of vodka helps.laugh.gif

Besides what Prickly suggests with the ice packs keep the A/C low & very cool & sleep only with the thinnest coverings you can get away with. When heat builds up the itch goes crazy. I have it on the back of my scalp & find it's much better if i sleep on my sides so the heat of my head pressed into the pillow doesn't build up on the back of my scalp.

You might try wearing gloves to bed to help you keep from scratching it raw. If you don't have gloves --- put socks over your hands.

0

Share this post


Link to post
Share on other sites

I am glad you started this thread! I get really bad at night and was treated THREE times this year for scabies (nobody did a skin scrape to diagnose)before my primary made the gluten connection. I really thought I was the only one, esp. since they assume scabies when you get itchier at night.

0

Share this post


Link to post
Share on other sites




It's my third trip to this derm in a year. She ties to say scabies I'll laugh. I co sleep with my husband and 3 kids.... Someone would have caught it in a year! Lol

0

Share this post


Link to post
Share on other sites

If derms want to say scabies then make them PROVE it by doing a skin scrape. They always want proof of everything --- let's make THEM prove something. They work for US not the other way around.

0

Share this post


Link to post
Share on other sites

If derms want to say scabies then make them PROVE it by doing a skin scrape. They always want proof of everything --- let's make THEM prove something. They work for US not the other way around.

I am learning so much these past couple of months. All the medication did was irritate my skin further (shocking!) I feel lucky to have a PCP that really listened to me and took me seriously

0

Share this post


Link to post
Share on other sites

I am learning so much these past couple of months. All the medication did was irritate my skin further (shocking!) I feel lucky to have a PCP that really listened to me and took me seriously

You are very fortunate with that PCP ---- certainly not the norm as the numbers bear out. It's always good to hear there are a few good docs out there.

0

Share this post


Link to post
Share on other sites

It's my third trip to this derm in a year. She ties to say scabies I'll laugh. I co sleep with my husband and 3 kids.... Someone would have caught it in a year! Lol

This is exactly why I was happy to keep pursuing the DH thing! There is absolutely no way that it was scabies because not one person I know had it after a year. We don't co-sleep but we do sleep in the same room and the kids are always in and out of our bed. And at *least* my husband should've caught them! ...but the derm told me 'scabies is not always contagious'. When I questioned him, he said something like 'well it is in children but not in adults'. ????

0

Share this post


Link to post
Share on other sites

Some doctors are useless when it comes to diagnosing dh. Converstion I had with the first doctor I saw went something like this -

Dr: You have eczema.

Me: No I don't.

Dr: Yes, you do. Do you have family that has allergies?

Me: Yes.

Dr: Well it's eczema, it goes hand in hand with allergies.

Me: But it itches terribly, It's waking me up in the night.

Dr: Oh, you have "mites." (polite way of saying scabies)

Me: I DON'T have scabies.

Dr: Yes, you do, as soon as you said it itches in the night,I knew that's what you have.

Me: But I haven't had any contact with anyone.

Dr: Have you shaken anyone's hand?

Me: You can't get it by shaking hands.

Dr: Oh yes you can, that's all it takes, you'd be surprised how easy it is to catch.

Me: I don't have it any of the scabies spots (webs of fingers, wrists, breasts, groin, underarms).

Dr: You have an atypical case.

Me: Do you think I could have the celiac rash?

Dr: Oh no, that doesn't itch.

No skin scraping was done nor did he look for burrows and I had virtually no skin to skin contact with anyone in the days/weeks preceeding my big break out.

At this point I totally tuned him out and "fired" him. Why doctors are so quick to diagnose someone with scabies when it would be extremely unlikely and not look for the real cause is beyond me and borders on negligence.

cmigl - to answer your orignal question - yes, mine itched terribly at night. I would wake up and have to scratch and scratch and scratch, it felt like I was digging into my bones. Nothing seemed to help, I would wake in the morning and see blood on my pj's. I wish I had thought of putting socks on my hands, that sounds helpful, even though i probably would have thrown them off at the first itch.

Jane

0

Share this post


Link to post
Share on other sites

Me: But it itches terribly, It's waking me up in the night.

Dr: Oh, you have "mites." (polite way of saying scabies)

Me: I DON'T have scabies.

Dr: Yes, you do, as soon as you said it itches in the night,I knew that's what you have.

Good heavens, everything itches worse at night, whether it be mosquito bites, psoriasis, DH.... You get under the covers warm in bed and the heat makes it itch. What an idiot. My psoriasis used to drive me nuts at night.

1

Share this post


Link to post
Share on other sites

My rash is always the worst early evening and at night.

The psychiatrist I consulted after 3 dermatologists told me I was crazy explained why (and it's not because little bugs are coming out at night). Although scabies will be more active at night, most rashes will also itch more during the evening hours.

Here's why: When we wake up in the morning our body's natural steroid levels are at their highest and they decrease as the day progresses. This is why fevers are higher at night, flu symptoms are worse, DH ITCHES MORE, etc. etc.

Why does a psych know this when regular docs don't?

1

Share this post


Link to post
Share on other sites

Wow Hopeful....that is amazing and I guess makes sense. I heard about being under the covers and heating up, but my night time itchiness would always start even before I went to bed...around evening.

0

Share this post


Link to post
Share on other sites

My rash is always the worst early evening and at night.

The psychiatrist I consulted after 3 dermatologists told me I was crazy explained why (and it's not because little bugs are coming out at night). Although scabies will be more active at night, most rashes will also itch more during the evening hours.

Here's why: When we wake up in the morning our body's natural steroid levels are at their highest and they decrease as the day progresses. This is why fevers are higher at night, flu symptoms are worse, DH ITCHES MORE, etc. etc.

Why does a psych know this when regular docs don't?

Good info. Thanks Hopeful! Yes, why does a psych know that when regular docs don't?

0

Share this post


Link to post
Share on other sites

I have the worst time at night or if I sit on my leather sofa. The head seems to intensify the itch. My doctor asked me if I would do the treatment for scabies and I replied, "Is that due to not enough vegetables"? LOL I agreed to the treatment but no one in my family has 'caught' this rash either.

I agree with the ice treatment. It does seem to calm it somewhat.

0

Share this post


Link to post
Share on other sites

I have the worst time at night or if I sit on my leather sofa. The head seems to intensify the itch. My doctor asked me if I would do the treatment for scabies and I replied, "Is that due to not enough vegetables"? LOL I agreed to the treatment but no one in my family has 'caught' this rash either.

I agree with the ice treatment. It does seem to calm it somewhat.

lol!! Lyn, that's scurvy!

0

Share this post


Link to post
Share on other sites

lol!! Lyn, that's scurvy!

LOL Just saw your reply. . . yes that is scurvy. My cousin had to tell me that scabies in "regular" folks talk was body lice. :unsure:

I took the treatment, I was desperate. LOL

0

Share this post


Link to post
Share on other sites

Mine is sooo! much worse at nite. I keep my bedroom temp cool, sleep with only a sheet for cover, and always have my feet uncovered. I try not to scratch but sometimes I can't stop from scratching & then it gets worse.

0

Share this post


Link to post
Share on other sites

Mine is worse evening and night.

Sitting watching telly in an evening - not good.

In the past, before knowing what it was, I tried wearing gloves and putting bits of elastoplast on end of each finger :ph34r: .

0

Share this post


Link to post
Share on other sites

Mine is worse at night and when I wake up. Waking up may not be morning, it may be night, noon or even 8pm. I do not sleep on a regular schedule. Right now it's keeping me up. I tried to sleep. I am three hours after my first upped dose of Dapsone to 100MG. The itch seems to get worse about 3-4 hrs after a dose.

0

Share this post


Link to post
Share on other sites

It is not just the itching that makes me lose sleep. When I have active DH, I wake up around 3 a.m. even if I'm not itchy. Once I'm awake, I get itchy. I'm wondering if there is a possible hormone/menopause connection with DH emerging in women who have never had gluten-intolerance symptoms before. After more than several years of hot flashes, night sweats and insomnia, now I have slightly different insomnia with DH...but perhaps hormones are a trigger, like stress?

0

Share this post


Link to post
Share on other sites

Someone posted a medical explanation about why dh itches so much worse at night or when we sleep & it does have to do with hormones but not necessarily menopausal hormones.

0

Share this post


Link to post
Share on other sites

I am also menopausal/post menopausal dec 28th marks my 3yr surgery date of my hyster/rso. What I thought were Menopausal symptoms may be low Iron. Some of the temperature issues and flashes can be my low Iron. So I cannot honestly make any sense out of it only to say when the sun goes down the monster wakes up.

0

Share this post


Link to post
Share on other sites

Mine is worse at night and when I wake up. Waking up may not be morning, it may be night, noon or even 8pm. I do not sleep on a regular schedule. Right now it's keeping me up. I tried to sleep. I am three hours after my first upped dose of Dapsone to 100MG. The itch seems to get worse about 3-4 hrs after a dose.

I have been taking Dapsone 50 2x a day. I started eating gluten free and taking Dapsone the same day. I thought I was itching more after the Dapsone was taken but I just kept taking it. It has been 2 full months now and I am so much better! I have an area on my lower back that is itchy right now but nothing like what I was before. My doctor didn't suggest a higher dosage for me.

I did have to take 2 Benedryl every night. I also kept the a/c cool and used ice packs. I now only take 1 anti-histamine and not every day. Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,124
    • Total Posts
      919,497
  • Topics

  • Posts

    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined