Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Behavior Is The Biggest Manifestation Of My Disease: Anxiety, Trichotillomania, Collecting/hoarding
0

2 posts in this topic

I just want to put this out here for other people who may be struggling with these issues: You are not alone.

I have been a hair-puller (trichotillomania) for all my adult life. I get intense itching and feel that the only relief I can find is to remove the hair at the source of itching. When I first went gluten-free, I noticed that the intensity of the itching and the urge to pull went away. Then I learned about DH. When I'm accidentally glutened, the bumps on my head come back, and the urge to scratch/itch/pull is uncontrollable. I don't get any relief, and by the time I'm done ravaging my hair, I've got a bald spot.

Glutening also makes me a demon-possessed acquirer of things. I will go on shopping binges. It doesn't matter what it is...shoes, scarves, pens, whatever comes up as a need at the moment turns into a day-long mission to find as many of that thing as I can come up with. A couple days later, I look back, and I'm like "what was I thinking?" When I don't have gluten, I'm fine, and can easily use "executive decision making" to determine what is really needed and what is not.

My dad, who also had undiagnosed celiac disease, was the same way. When he died, and we cleaned out his drawers of things, we found collections of watches, pens, eraser refills, tie tacks...You name it...there wasn't just one, two, or three of things...but dozens. And we also heard that his brother did the same thing, but his penchant was for coffee. He had chest freezers full of coffee imported from Costa Rica.

My anxiety levels pre-diagnosis of gluten sensitivity were off the charts. I would stress at everything, My heart rate would accelerate to 180bpm for no apparent reason. I was diagnosed with dysautonomia, but Ativan would bring my heart rate down and my thinking more clear. I had an overwhelming sense of dread at everything.

Depression? Don't even get me started...No amount of Lexapro or Amitriptyline could lift me up....

Migraines were the worst. It was as if my brain was dying one quadrant at a time. The fact that low cerebellar volume has been associated with celiac disease is not surprising to me. I can actually feel my brain being killed when I'm glutened.

I would get dizzy, unable to walk a straight line.

Fibromyalgia? Intense. Everything hurt. All the time.

After being 6 months gluten-free, I am a new person. I can exercise again. I don't go in the the blank stare/anti-able-to-concentrate state. But even the slightest amount of cross-contamination sends me into hell. Bumps on my head, a feeling of worthlessness and hopelessness, I start packing things away like a squirrel saves nuts, I can't focus, and I get migraine more intensely than I have before.

I don't think there is enough research being done on the neurological impacts of gluten. I believe in my heart of hearts that the damage is just as severe, if not worse, than damage done to the gut in celiacs. I am convinced that so many of the behavioral problems we see in society today are gluten-related. ADHD, autism, insatiable appetite (hence obesity), OCD, chronic pain, Alzheimer's etc etc....

So if you are suffering, know that you are not alone. Stay away from gluten, eat lots of green leafy veg, fruits, and you will be fine.

0

Share this post


Link to post
Share on other sites


Ads by Google:

The Costa Rican coffee, I can understand. It is SOOOOO GOOOOOOOOD! :)

I have noticed with myself that when I get glutened I get REALLY grumpy. I don't think the grumps are because I don't feel good either. A lot of times I just get a minor psoriasis outbreak which isn't that bad. But oh, you don't want to be around me then. If I drop something on the floor, instead of "Oops" and picking it up, I am more likely to use some of those words that always help mechanics when they are working on a car, while I kick the item across the floor. When I'm behind the wheel I am likely to be screaming, "Get out of my WAY!" at the driver in front of me. And when the neighbor's dog is barking incessantly, rather than saying, "Knock it off" I am more likely to point my finger at it and say, "DIE!"

I can't stand being around MYSELF when I'm like that, but I am helpless to stop it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,343
    • Total Posts
      920,483
  • Topics

  • Posts

    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
    • Welcome to the club you never wanted to join! The good thing about this club is that you don't have to take any pills, get radiation or chemo, or stick yourself with a needle every day. Things could be much worse than this. Does your brother live close? If so he could go to your same savvy doc. That would be great! Also what about your mom?
    • Hi There! I am Aly and I have suffered seriously for about 4 years with an huge increase in symptoms. I just recently started a gluten free diet a few months ago and I am sure I make mistakes because I feel it when I do. Your symptoms are a lot like mine and after many blood tests and visits to Neurologist still no answers. They diagnosed with relapse/remission MS for all these years and now say its not that. It's Auto-immune but no answers. They never tested me for Celiac's but A friend suggested I try going gluten free. Here are my symptoms below.  See if you relate or if anyone can relate. Heat Sensitivity, Nerves jumping in face and eyes, sometimes pain and redness around the skin of eyes, kinda pinkish.... occasional trimmers coupled with loss of coordination and balance along with in and out slurred speech, a other varying waves of relapse include Extreme fatigue and a huge fog comes over me. I can't sit up or stand without getting dizzy and feel like passing out. For a few days of the relapse It's just bed rest. The other parts are off and on having to use cane. Up and down, symptoms change but eventually the waves grow dim and I go back to being normal for a while. Things seem to get exacerbated when I do to much like go more than 4 -5 hours without taking a break and resting, lifting anything to heavy...so it seems to be straining things lead me to relapse. I used to be go go go...on the run but life has changed and I find that although I am eating gluten free and being careful not to relapse, I entered another a month ago and I am having to get IV steroid infusion tomorrow to break the cycle of this one. Just when I think I am beginning to feel better and go do something I go right back down. Its seems Gabapentin, Baclofen, and LOTS of rest only get me where I need to be again. It's frustrating. I wanted to share as well so that we can combine forces to get some answers! I have decided to go to a Allergy Clinic of sorts to try and get tested for environmental and food allergies. I am sorry you do not have funding for care. See if there is local clinic that can at least run some preliminary blood work on you. I am not sure if you can see one now in your state being 17 but there is usually a 211 or a 311 line in most cities that will give you the list of places you can go for free or on sliding scale. See if they will run any allergy panels as well. I have found that we have to be proactive in our own care because sometimes there is no simple answer and the more we talk one another with the research sometimes we do on own, we find out more than 4 years of going to a doctor could ever tell you. Thanks for all your input here. I look forward to being a member and helping where I can! I will send updates as I get them. Blessings to you all! Aly
    • Garlic Mashed Cauliflower. Glazed Salmon. Gluten-Free Bagels. Graham Crackers & Vegan Pumpkin Cheesecake Dip. Grilled Chicken Fajita Kabobs. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined