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Anyone Under The Age Of 25?
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Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

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I'm a few years past 25 (not quite 30 lol), but can 100% relate to what you're going through! I've gone mis-diagnosed since high school, where I repeatedly got sent home for "anxiety attacks" which I now suspect were the beginning stages of celiac. I just got diagnosed 2 months ago, and on Monday got dairy, grains, and corn taken away on top of the gluten. There is nothing easy about this! Luckily for me, one of my best friends is also celiac, so I've had someone who's brain I could pick. The rest of the time, I try to relate on here...and like you, sometimes certain scenarios just don't fit my life at all!

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I'm 22 if that helps any.

But, yep, it stinks when doctors and who have you don't listen to ya.

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Age 17. ive been gluten-free for 5 years and i know what you mean by missing school and trying to tell your boyfriend or anyone for that matter that you cant eat this or that.. it really gets annoying after a while. you want people to understand but they dont.. i figured the best thing is to explain it like an allergy. and to be honest i told my boyfriend before i even started to date him that i was gluten free and he asked about it and it was hard to explain it to him because its like how do you explain so much to them in so little time. like to start with and that was hard, but i was glad i told him first that way i new later on that hes not leaving me for someone else because of celiac. and with missing school it happens at first and there is nothing you can do because you feel like crap or your throughing up or something. but the longer your on the gluten-free diet you realize that you dont really get sick anymore. in the past 3 and 1/2 to 4 years i havnt missed a day of school and thats because i totally live a gluten free diet and once my body got adjusted and is getting the nutrients now. my body is "back to normal" yes there will be changes but its life. and i hope this helped. but going to pray the best for you, if thats okay. i know that has helped me with so much!! Lisa <3

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

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Hey!

I am also 19 and have never met anyone else with Celiac. I have only been diagnosed for about a year and a half now and it is definitely a challenge when trying to go out to eat with friends (or like you said explaining to potential boyfriends). It would definitely be nice to have someone who understands to talk to.

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If anyone wants to talk, my email is aviola93@gmail.com. Shoot me a message and maybe we can chat on fb!

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Newly diagnosed here. 21 years old. After years of all kinds of issues, I finally went in for testing last week. I really didn't know what I would be getting myself into with changing my diet so drastically, but honestly, it isn't as bad as I figured it would be. I understand I'm still rather fresh on the change, but I do feel a bit better already. I'm sleeping better, I have more energy, no more headaches, and my outlook on life is back to where it used to be. I'm excited to keep up the changes and see how much better I feel after a few months.

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Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!

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Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

 

I can definitely relate to how you feel. I've never met anyone my own age (or any age!) who has celiac. I'm pretty fortunate though because my girlfriend is very understanding, and won't even touch anything with gluten. I'm 20 btw, working as an intern at 2 different places this summer and it's been quite the challenge so far.  

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Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Not sure if you'll read this, but I'm 23 and I'm kind of in the same boat. I have a few friends that have Celiac, but they're not super close to me (both in terms of friendship and proximity) so we don't really talk to much. I'd love to have someone else to talk to, other than damn doctors or nutritionists haha. I know what it's like to miss school, or work, or social gatherings (it sucks). I'm on here a good bit, feel free to shoot me a msg

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Hey InducedJoy!

I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!  :)

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Hey! I'm Lisa Marie and I'm about to turn 22.

I'm still in the pre-stages of being actually diagnosed but since I went gluten free I'm feeling better. This stinks since now I have to be conscious about the places my friends want to go. Plus side: Gluten free cookies from publix = the bomb.com

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    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • Hello all  I have been living gluten free now for 6 months, as directed by my family doctor after a 6 week elimination diet revealed that I may be celiac or gluten sensitive. I was tested by blood work,  which showed nothing, and am awaiting a specialist to get a biopsy done. I am no where close to getting into see her as it is cased as a non emergency. I have been constantly having bowel problems, rashes all over my body, low iron, weight fluctuations, no energy, depression  and anxiety now for 6 years. Have been a huge nuisance(imo) to my doctor requiring constant antibiotics for this,  creams for this "mystery rash" and either laxatives for constipation that would sometimes go on for over a week to diarrhea that would keep my home- no in between . It hasn't been easy, especially whenever doctors are so quick to blame all symptoms as mental illness. Even though I have continuously told them I feel my issues are something simple...  not a mental illness. Anyways long story short, after going gluten free I have had somewhat Nnormal bowel functions, less rashes around my stomach, been able to cut back drastically on my depression medications and anxiety meds, and energy has taken a huge improvement  which all is great! But .... I am constantly HUngry have gained 20 lbs and can no longer fit into most of my clothes. This is really bothering me because I am afraid I am approaching a weight problem.  At only 5'5" weighing 165lbs is large to begin with. Especially whenever I have two children and have only EVER weighed this much while being pregnant with them. I am 26 years old and just tired of not being myself. I am physically healthy and just would like my body to act it. Any help would be greatly appreciated, as I said I am only 6 months into my journey and have definitely re exposed myself to gluten (accidently) many times in between. Much love. 
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
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