Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Lupus And Celiac Disease?
0

9 posts in this topic

I have tried looking into other posts on here about the relation between lupus and celiac disease, but it seems as though every one I click on, it turns into a conversation about something else.

Has anyone on here been diagnosed with celiac disease before being diagnosed with lupus? I have a strong feeling I may have lupus because it runs in my family, and in the last six months, I have noticed some things that lead me to believe I may have it.

If you were diagnosed with lupus after your celiac diagnosis, how long was it after the fact? What lead you to being tested for lupus?

Also, if anyone has scholarly articles or medical publications they can point me towards regarding the subject, it would be greatly appreciated!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have tried looking into other posts on here about the relation between lupus and celiac disease, but it seems as though every one I click on, it turns into a conversation about something else.

Has anyone on here been diagnosed with celiac disease before being diagnosed with lupus? I have a strong feeling I may have lupus because it runs in my family, and in the last six months, I have noticed some things that lead me to believe I may have it.

If you were diagnosed with lupus after your celiac diagnosis, how long was it after the fact? What lead you to being tested for lupus?

Also, if anyone has scholarly articles or medical publications they can point me towards regarding the subject, it would be greatly appreciated!

I have celiac disease (dermatitis herpetiformus)and often when I have gotten a blood test, I have all the markers for lupus, but when they do the lupus panel, I don't have it. I googled "lupus and celiac" and tons of articles popped up.

0

Share this post


Link to post
Share on other sites

I had a positive blood test for lupus but the doctor didn't think I have . I did the test with a Rheumatologist while they were trying to figure my back problems out . I looked at lupus sites I have a few of the symptoms mentioned but I doubt the doctor would diagnose me with it . I tested positive to 2 other conditions but wasn't diagnosed with either .

0

Share this post


Link to post
Share on other sites

I am in the process of checking out the possibilty that I have lupus. I was diagnosed celiac just 4 months ago and with Hashimoto's 2 months (although I suspect I've had them since babyhood and my early 20's). I started looking into lupus after being gluten-free for many months and beginning treatment for hypothyroidism when I had a "flare" of symptoms. I decised to look back through my medical records to see what else my doctors missed, specifically from when I was in my early 20's and had my first arthritic like flare. I started looking into symptoms and their connections to tests and came up with these things that worried me (many in the 11 criteria for diagnosing lupus):



  • 1:160 speckled ANA (20 and 15 years ago - had this recently rechecked and it's a negative at 1:80)
  • Autoimmune thrombocyptopenia purapura (ITP) and a splenectomy
  • arthritic flares - start with a flu/fever like feeling, big fatigue and arthritis and stiffness in joints
  • mouth ulcers - I have no idea if these are the type in the diagnostic criteria
  • rosaecea or malar rash - I have roseacea but who knows, it could be more... doubt it... I hope

Lots of other little things too like general fatigue, hair loss and GI issues that I'm pretty sure the Hashi's and celiac are responsible for. At this point I'm hoping undertreated hypothyroidism and a healing GI tract are to blame for my problems. Fingers crossed...

I have had other (lupus) tests run and should know the results in a couple of days. So far I've had (another) negative RF, low ESR, normal C3, and a mildly low C4... nothing unusual. I'm waiting on an ENA panel which tests for more specific antibodies to lupus.

If you think it's lupus, you might as well start the diagnostic process. It's not a very cut and dried path to get a diagnosis so you might as well get the ball rolling so you'll have answers sooner. Good luck.

0

Share this post


Link to post
Share on other sites

I'm curious about this too. My aunt and cousin both have lupus and we all have very similar genetic traits (though i don't know if that's a reason we would share these particular genes, just we look alike, sound alike, compared to the rest of the family). I've never had the typical rashes associated with lupus but I've always had back pain. I'm still processing this diagnosis, though, and hoping not to deal with another.

0

Share this post


Link to post
Share on other sites




I have been sick my whole life. In 2009 I was diagnosed with Celiac. After a few years with only so much improvement we found out this past year (2012) I aslo have Mixed Connective Tissue Disease (overlap of Rheumatoid Arthritis, Lupus & Sjogren's), so yes, you can have both.

Autoimmune Diseases rarely come to the party alone.

1

Share this post


Link to post
Share on other sites
Autoimmune Diseases rarely come to the party alone.

As a person with 4 AI diseases, this quote made me laugh.....how very true it is! ;)

0

Share this post


Link to post
Share on other sites

Autoimmune Diseases rarely come to the party alone.

Brilliant!

I have a few and my daughter's total recently jumped to six.

Thanks for the giggle Erin :)

0

Share this post


Link to post
Share on other sites

My dad was diagnosed with celiac in 1987. I wasn't tested till he was dying (not one doctor said to test me). I have celiac. He had lupus, too. My regular doctor just told me to go to the rheumatologist because my b/w is elevated for lupus. I am scared. In the last few years I have had about 5 attacks where I could barely move out of the bed. I think it might be fibromyalgia but we shall see. I am sure a it of tests will be coming my way. I finally had a clear endoscopy last spring and now this. I've been gluten free since 2005 I believe

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,488
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined