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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lupus And Celiac Disease?
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I have tried looking into other posts on here about the relation between lupus and celiac disease, but it seems as though every one I click on, it turns into a conversation about something else.

Has anyone on here been diagnosed with celiac disease before being diagnosed with lupus? I have a strong feeling I may have lupus because it runs in my family, and in the last six months, I have noticed some things that lead me to believe I may have it.

If you were diagnosed with lupus after your celiac diagnosis, how long was it after the fact? What lead you to being tested for lupus?

Also, if anyone has scholarly articles or medical publications they can point me towards regarding the subject, it would be greatly appreciated!

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I have tried looking into other posts on here about the relation between lupus and celiac disease, but it seems as though every one I click on, it turns into a conversation about something else.

Has anyone on here been diagnosed with celiac disease before being diagnosed with lupus? I have a strong feeling I may have lupus because it runs in my family, and in the last six months, I have noticed some things that lead me to believe I may have it.

If you were diagnosed with lupus after your celiac diagnosis, how long was it after the fact? What lead you to being tested for lupus?

Also, if anyone has scholarly articles or medical publications they can point me towards regarding the subject, it would be greatly appreciated!

I have celiac disease (dermatitis herpetiformus)and often when I have gotten a blood test, I have all the markers for lupus, but when they do the lupus panel, I don't have it. I googled "lupus and celiac" and tons of articles popped up.

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I had a positive blood test for lupus but the doctor didn't think I have . I did the test with a Rheumatologist while they were trying to figure my back problems out . I looked at lupus sites I have a few of the symptoms mentioned but I doubt the doctor would diagnose me with it . I tested positive to 2 other conditions but wasn't diagnosed with either .

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I am in the process of checking out the possibilty that I have lupus. I was diagnosed celiac just 4 months ago and with Hashimoto's 2 months (although I suspect I've had them since babyhood and my early 20's). I started looking into lupus after being gluten-free for many months and beginning treatment for hypothyroidism when I had a "flare" of symptoms. I decised to look back through my medical records to see what else my doctors missed, specifically from when I was in my early 20's and had my first arthritic like flare. I started looking into symptoms and their connections to tests and came up with these things that worried me (many in the 11 criteria for diagnosing lupus):



  • 1:160 speckled ANA (20 and 15 years ago - had this recently rechecked and it's a negative at 1:80)
  • Autoimmune thrombocyptopenia purapura (ITP) and a splenectomy
  • arthritic flares - start with a flu/fever like feeling, big fatigue and arthritis and stiffness in joints
  • mouth ulcers - I have no idea if these are the type in the diagnostic criteria
  • rosaecea or malar rash - I have roseacea but who knows, it could be more... doubt it... I hope

Lots of other little things too like general fatigue, hair loss and GI issues that I'm pretty sure the Hashi's and celiac are responsible for. At this point I'm hoping undertreated hypothyroidism and a healing GI tract are to blame for my problems. Fingers crossed...

I have had other (lupus) tests run and should know the results in a couple of days. So far I've had (another) negative RF, low ESR, normal C3, and a mildly low C4... nothing unusual. I'm waiting on an ENA panel which tests for more specific antibodies to lupus.

If you think it's lupus, you might as well start the diagnostic process. It's not a very cut and dried path to get a diagnosis so you might as well get the ball rolling so you'll have answers sooner. Good luck.

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I'm curious about this too. My aunt and cousin both have lupus and we all have very similar genetic traits (though i don't know if that's a reason we would share these particular genes, just we look alike, sound alike, compared to the rest of the family). I've never had the typical rashes associated with lupus but I've always had back pain. I'm still processing this diagnosis, though, and hoping not to deal with another.

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I have been sick my whole life. In 2009 I was diagnosed with Celiac. After a few years with only so much improvement we found out this past year (2012) I aslo have Mixed Connective Tissue Disease (overlap of Rheumatoid Arthritis, Lupus & Sjogren's), so yes, you can have both.

Autoimmune Diseases rarely come to the party alone.

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Autoimmune Diseases rarely come to the party alone.

As a person with 4 AI diseases, this quote made me laugh.....how very true it is! ;)

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Autoimmune Diseases rarely come to the party alone.

Brilliant!

I have a few and my daughter's total recently jumped to six.

Thanks for the giggle Erin :)

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My dad was diagnosed with celiac in 1987. I wasn't tested till he was dying (not one doctor said to test me). I have celiac. He had lupus, too. My regular doctor just told me to go to the rheumatologist because my b/w is elevated for lupus. I am scared. In the last few years I have had about 5 attacks where I could barely move out of the bed. I think it might be fibromyalgia but we shall see. I am sure a it of tests will be coming my way. I finally had a clear endoscopy last spring and now this. I've been gluten free since 2005 I believe

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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