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Dh?
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Does this look like anyone's DH? It's affecting both elbows and itches like crazy...this is actually my little sister and she has had flares of this rash for the last two years and it always happens on both elbows at the same time and always looks like this but sometimes worse...

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Hi Mrs Sprinkles. Does the rash appear anywhere else? Does it show any signs of inflammation? I would say that DH is a small possibility but would probably expect to see more areas involved by now. This is how my son looked about 5 weeks ago, and of course I am suspicious because of my own diagnosis! So I googled something like 'bumpy skin on elbows' and came up with a number of other possibilities that could be worth checking out. Sorry your sister is so itchy. Good luck on your quest and please ask any questions you might think of.

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She gets it on her knees every so often too. Some backstory: she has had the rash for two years now on and off but mostly on...she has suffered constipation since infancy, and her enamel is discolored...

Yesterday she stayed home from school because she had a severe stomach ache and interestingly her elbows flared up the same day her stomach hurt and said they itched more than they typically do.

She has gone to the doctor and did all sorts of tests minus vitamins which I found odd because both my mother and I struggle to maintain iron and Vit D levels even with supplements. They tested for AI issues and came back well within normal limits...unlike my doctors who think I'm crazy, her docs are moving towards testing her for celiac disease an sending her to GI.

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Forgot to mention...doctors said rash is not eczema and derm said she wasn't sure what it was because it comes and goes and has been an ongoing issue...my mother wasn't willing to biopsy then because my sister was only 7 and my mom is the type of person who would tell you to put a bandaid over your severed leg so she isn't one to rush to doctors for anything even if its recommended.

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I have a friend who has DH. This is how his rash presented for many years before it spread to his ankles and the back of his neck.

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She is also ALWAYS complaining of a severe stomach ache (which is a reason the did an X-ray and only saw she was constipated--nothing new) and her stomach problems have been so severe she has cried in pain and missed several days of school.

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Oh no :-( Definitely starting to sound more suspicious. Hopeful's information is interesting too. As I said, this is how my son looked 5 weeks ago. Now he has suspicious patches on his ankles, back of his neck and back of his hand...maybe the same path as your friend, Hopeful, just a little quicker...

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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