Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I
0

20 posts in this topic



Ads by Google:

Reading your post makes me feel happy! I hope it will continue at this level, but if not, that this good time will inspire you to hope for more. I don't blame you a bit for not wanting to ever eat gluten again.

Diana

0

Share this post


Link to post
Share on other sites

Mr. Happy, I'm so happy for you! Isn't it great that with an adjustment in our diets we can cure most of what has ailed us for so long?

I suggest you go to the thread, "Newbie 101" to learn more about cross-contamination and what to expect down the line. I imagine you will have some setbacks as you learn about being gluten-free (we all do), but I also know that you will most likely discover an improvement in symptoms you didn't even know were symptoms.

Oh yeah, and get some nettle tea. :lol: (There is a thread on it here.)

Welcome to the forum. And before I forget, you should have your kids tested. This lovely disease runs in families. (If they had suggested testing for me when my Mom was diagnosed, I could have avoided so much trouble!)

Hope the improvements keep coming!

0

Share this post


Link to post
Share on other sites

Very happy for you, currently eating gluten for test on 19th, then I'm done. It only took four days off for me to confirm what I suspected. I had already decided I didn't need diagnosis when my endocrinologist answered my plea to add the blood work to my other tests. My PCP said you need a GI consult (like I have tons of money for tests). Btw your vision improvement is your body is now absorbing vit A :-)

0

Share this post


Link to post
Share on other sites




I love a happy ending (or maybe beginning).

Delighted for you.

0

Share this post


Link to post
Share on other sites

Welcome to the board. Great to hear you have had such a great response to the diet. Do follow up with your doctor on the chance that with the resolution of so many issues they may go ahead and give you a 'diagnosis' without putting you through the hell of a gluten challenge. If you have only been gluten free for a couple of weeks you might even still have a positive blood test. The reason why I encourage this is because celiac is strongly genetic and you will want to keep an eye on your children to make sure the disease isn't triggered in them at some point.

0

Share this post


Link to post
Share on other sites

Believe it or not, the gas is normal rofl your supposed to go about that much every day.

The rest, however, is something that would probably have a gluten cause.

So you won't test mmm? It can be genetic, ya know. Just a tidbit of info.

0

Share this post


Link to post
Share on other sites

Welcome Mr. Happy!

I'd second the suggestion of getting blood tests done ASAP. Your primary doc can order a full celiac panel.

I am not suggesting that you resume eating gluten...only that the tests still may be positive and the information in those tests may become useful to you in the future.

If you haven't had them I'd urge you to add nutrient blood tests to the list. Celiac Disease prevents absorption of many nutrients so you may need some supplementation while healing. Especially all Bs and D. Others that my celiac doc monitors are K, Iron, Ferritin, Copper and Zinc.

Congratulations on putting the puzzle together - it is frustrating that doctors were not looking for celiac in cases like yours (& mine), but I am very happy that you figured it out.

Read the "Newbie 101" section and ask any questions that may pop up.

Happy healing to you :)

0

Share this post


Link to post
Share on other sites

This post made me laugh out loud! I felt the same way when I got my blood work back....could have danced for joy! I wasn't crazy, like so many doctors suggested.

Good for you, Mr. Happy....things only get better from now on!

0

Share this post


Link to post
Share on other sites
:) Congratulations on your awesome recovery! I'm very happy for you. And thanks for sharing your story; it was wonderful to read such an upbeat and positive story. Thank you! :lol:
0

Share this post


Link to post
Share on other sites

Great story Mr. Happy, thanks for sharing it! And congratulations on your many improvements in such a short time, it's very likely that the rest will follow as time goes by.

I feel exactly like you, no way I want to put my body through more suffering (now that I finally "got it") just to get tested. I don't know if all my problems will resolve in time since I'm older AND for years played the "game" of "resting" from gluten, or mainly wheat, and then even when I did try going gluten-free I was not always careful about cross-contamination and sometimes did cheat in small amounts thinking what I had was more of a wheat "allergy", and all that probably caused a lot of unseen damage over time. When my gut began to react and my liver function got worse,because my father was a diagnosed celiac I figured I probably inherited the genes from him but I still was in denial for a good while, it took my having some very scary episodes this year to realize this is nothing to play with.

0

Share this post


Link to post
Share on other sites

Congratulations Mr Happy! I've never seen anyone so elated to find out they can't eat gluten. I know I felt much better after a week on the diet, but this is amazing! So wonderful.

That said, you should get testing done asap (bloodwork and endoscopy/biopsy). If you don't go back on Gluten for it the results won't be reliable (but don't put yourself through that. I certainly wouldn't), but it's quite possible that you haven't healed enough yet that antibodies and damage will still show up on tests. If nothing else, get blood tests done for nutrients and such so you'll know whether you have any deficiencies, and can see if they get better in a few months. That'll be a sign that your body is absorbing nutrience again and healing.

And get your kids tested. Pronto. Also, suggest your parents and siblings get tested too, just in case.

Now comes the life-long process of gluten avoidance. It's a sneaky bugger. But good luck! So glad you're doing better all ready.

Peg

0

Share this post


Link to post
Share on other sites

Thank-you so much for the replies, it means a lot to have support

0

Share this post


Link to post
Share on other sites

Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

0

Share this post


Link to post
Share on other sites

Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

That happens to me in the autumn. I'm in a really dry climate though; semi arid. Plus I have Hashimoto's hypothyroidism so that makes my skin much drier than most people's I always have cracked fingers, feet or knuckles. My husband told me I could never be a foot or hand model... Oh darn! LOL

If it continues, you could have your thyroid tested. I'm really not sure if dry skin is a celiac symptom. Hmmm.

Good luck.

0

Share this post


Link to post
Share on other sites

I get that too, somewhat, and figure it's more of a dry air/hard water problem than a Celiac thing. If it doesn't go away with moisturizing, etc, get it checked as it could be Dermatitis Herpetiformis (sp?), which is a skin problem associated with Celiac.

Oh, and even from my trip there earlier this year, the UK seemed pretty good in the gluten-free dept. I even got some nice bread at the supermarket! Fresh! Every B&B I stayed at was super accomodating, and found lots of gluten-free options at restaurants and such. So, it's a good place to be. I'm going back this Nov and will be self catering for a few days, so kind of excited to load up with stuff.

You might want to go easy on the breads and other processed stuff for a while though. Give yourself time to heal first. Our damaged guts can have trouble processing grains and processed stuff for a while. Good idea to cut out milk for a while too, as I think you said you're doing.

hope you can get in for tests quickly.

Cheers

Peg

0

Share this post


Link to post
Share on other sites

Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

0

Share this post


Link to post
Share on other sites

Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

HAHAHAHAHA!!!! you dirty girl you...

Mr Happy, you probably just have dry skin. Maybe your system is using up all your fluids to heal, who knows. Try to eat more salt, drink more water, and try Neutrogena Norwegian formula hand cream. Only thing that didn't hurt my skin when it was cracking and bleeding from working a housekeeping job.

0

Share this post


Link to post
Share on other sites

My secrets out,the adult films were a long time ago... ;)

Just a quick update, just had a battle with my doctor but they finally have given the go ahead for the celiac and mineral test at the hospital... Have also got the forms for my children to have them to.

Always the same at my doctors, they make you feel your making it up... I wasn't backing down though.

Do I still feel good? Yes I do and feel better everyday... Eating loads and have now nearly shed a stone in weight...

All the best everyone...

Keep it up

Mr Happy

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,133
    • Total Posts
      919,526
  • Topics

  • Posts

    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    georgemathews
    Joined