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Reading your post makes me feel happy! I hope it will continue at this level, but if not, that this good time will inspire you to hope for more. I don't blame you a bit for not wanting to ever eat gluten again.

Diana

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Mr. Happy, I'm so happy for you! Isn't it great that with an adjustment in our diets we can cure most of what has ailed us for so long?

I suggest you go to the thread, "Newbie 101" to learn more about cross-contamination and what to expect down the line. I imagine you will have some setbacks as you learn about being gluten-free (we all do), but I also know that you will most likely discover an improvement in symptoms you didn't even know were symptoms.

Oh yeah, and get some nettle tea. :lol: (There is a thread on it here.)

Welcome to the forum. And before I forget, you should have your kids tested. This lovely disease runs in families. (If they had suggested testing for me when my Mom was diagnosed, I could have avoided so much trouble!)

Hope the improvements keep coming!

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Very happy for you, currently eating gluten for test on 19th, then I'm done. It only took four days off for me to confirm what I suspected. I had already decided I didn't need diagnosis when my endocrinologist answered my plea to add the blood work to my other tests. My PCP said you need a GI consult (like I have tons of money for tests). Btw your vision improvement is your body is now absorbing vit A :-)

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I love a happy ending (or maybe beginning).

Delighted for you.

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Welcome to the board. Great to hear you have had such a great response to the diet. Do follow up with your doctor on the chance that with the resolution of so many issues they may go ahead and give you a 'diagnosis' without putting you through the hell of a gluten challenge. If you have only been gluten free for a couple of weeks you might even still have a positive blood test. The reason why I encourage this is because celiac is strongly genetic and you will want to keep an eye on your children to make sure the disease isn't triggered in them at some point.

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Believe it or not, the gas is normal rofl your supposed to go about that much every day.

The rest, however, is something that would probably have a gluten cause.

So you won't test mmm? It can be genetic, ya know. Just a tidbit of info.

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Welcome Mr. Happy!

I'd second the suggestion of getting blood tests done ASAP. Your primary doc can order a full celiac panel.

I am not suggesting that you resume eating gluten...only that the tests still may be positive and the information in those tests may become useful to you in the future.

If you haven't had them I'd urge you to add nutrient blood tests to the list. Celiac Disease prevents absorption of many nutrients so you may need some supplementation while healing. Especially all Bs and D. Others that my celiac doc monitors are K, Iron, Ferritin, Copper and Zinc.

Congratulations on putting the puzzle together - it is frustrating that doctors were not looking for celiac in cases like yours (& mine), but I am very happy that you figured it out.

Read the "Newbie 101" section and ask any questions that may pop up.

Happy healing to you :)

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This post made me laugh out loud! I felt the same way when I got my blood work back....could have danced for joy! I wasn't crazy, like so many doctors suggested.

Good for you, Mr. Happy....things only get better from now on!

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:) Congratulations on your awesome recovery! I'm very happy for you. And thanks for sharing your story; it was wonderful to read such an upbeat and positive story. Thank you! :lol:
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Great story Mr. Happy, thanks for sharing it! And congratulations on your many improvements in such a short time, it's very likely that the rest will follow as time goes by.

I feel exactly like you, no way I want to put my body through more suffering (now that I finally "got it") just to get tested. I don't know if all my problems will resolve in time since I'm older AND for years played the "game" of "resting" from gluten, or mainly wheat, and then even when I did try going gluten-free I was not always careful about cross-contamination and sometimes did cheat in small amounts thinking what I had was more of a wheat "allergy", and all that probably caused a lot of unseen damage over time. When my gut began to react and my liver function got worse,because my father was a diagnosed celiac I figured I probably inherited the genes from him but I still was in denial for a good while, it took my having some very scary episodes this year to realize this is nothing to play with.

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Congratulations Mr Happy! I've never seen anyone so elated to find out they can't eat gluten. I know I felt much better after a week on the diet, but this is amazing! So wonderful.

That said, you should get testing done asap (bloodwork and endoscopy/biopsy). If you don't go back on Gluten for it the results won't be reliable (but don't put yourself through that. I certainly wouldn't), but it's quite possible that you haven't healed enough yet that antibodies and damage will still show up on tests. If nothing else, get blood tests done for nutrients and such so you'll know whether you have any deficiencies, and can see if they get better in a few months. That'll be a sign that your body is absorbing nutrience again and healing.

And get your kids tested. Pronto. Also, suggest your parents and siblings get tested too, just in case.

Now comes the life-long process of gluten avoidance. It's a sneaky bugger. But good luck! So glad you're doing better all ready.

Peg

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Thank-you so much for the replies, it means a lot to have support

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Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

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Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

That happens to me in the autumn. I'm in a really dry climate though; semi arid. Plus I have Hashimoto's hypothyroidism so that makes my skin much drier than most people's I always have cracked fingers, feet or knuckles. My husband told me I could never be a foot or hand model... Oh darn! LOL

If it continues, you could have your thyroid tested. I'm really not sure if dry skin is a celiac symptom. Hmmm.

Good luck.

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I get that too, somewhat, and figure it's more of a dry air/hard water problem than a Celiac thing. If it doesn't go away with moisturizing, etc, get it checked as it could be Dermatitis Herpetiformis (sp?), which is a skin problem associated with Celiac.

Oh, and even from my trip there earlier this year, the UK seemed pretty good in the gluten-free dept. I even got some nice bread at the supermarket! Fresh! Every B&B I stayed at was super accomodating, and found lots of gluten-free options at restaurants and such. So, it's a good place to be. I'm going back this Nov and will be self catering for a few days, so kind of excited to load up with stuff.

You might want to go easy on the breads and other processed stuff for a while though. Give yourself time to heal first. Our damaged guts can have trouble processing grains and processed stuff for a while. Good idea to cut out milk for a while too, as I think you said you're doing.

hope you can get in for tests quickly.

Cheers

Peg

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Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

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Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

HAHAHAHAHA!!!! you dirty girl you...

Mr Happy, you probably just have dry skin. Maybe your system is using up all your fluids to heal, who knows. Try to eat more salt, drink more water, and try Neutrogena Norwegian formula hand cream. Only thing that didn't hurt my skin when it was cracking and bleeding from working a housekeeping job.

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My secrets out,the adult films were a long time ago... ;)

Just a quick update, just had a battle with my doctor but they finally have given the go ahead for the celiac and mineral test at the hospital... Have also got the forms for my children to have them to.

Always the same at my doctors, they make you feel your making it up... I wasn't backing down though.

Do I still feel good? Yes I do and feel better everyday... Eating loads and have now nearly shed a stone in weight...

All the best everyone...

Keep it up

Mr Happy

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    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
    • People diagnosed with celiac disease follow a strict gluten-free diet because consuming gluten initiates an immune-mediated “attack” on the small ... View the full article
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