Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Decoding Celiac Results
0

11 posts in this topic

Hello All!

So I am semi new to this community, and I was just looking for help in trying to figure out my blood test results. I've had digestive symptoms for years, and always just thought it was a "part of life" and delt with it. After a stressful move across country, July of 2010, my symptoms worsened. It was to the point where I wanted to boycott food altogether lol

Anyway it was about a year ago that someone suggested my symptoms could be Celiac, and It took me almost a year to get around to getting tested. I went gluten free for a month or so to see how I felt, but I had already scheduled a doctors appointment at the GI office....i started eating everything bread related for a couple weeks prior to the testing, including buying a loaf of disgusting wheat bread..and eating most of the loaf...gag. I literally felt like i was dying...brain fog...fatiuge ( i cant spell...haha), severe bloating and pain, sometimes "D"...i missed work...blah blah blah...anywhoooo

Got testing done through TriCore...and this is what was all in the "celiac panel"

IgA: Sufficient

Gliadin IgA Ab: 8 (ref range 0-19 Units)

Tis. Transglut Ab IgA: 15 (ref range 0-19 Units)

it seems like its negative...and after all the research i have done, i thought there would be more included in the testing...it was really really dirt cheap so I dont know....I hope someone can help me on this...should I get retested? I cant afford to get scoped (which I hear is the Gold Standard)...Cause I have no health insurance. :(

Thank you for the help....sorry for the long rant haha

~Angie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome Angie!

The tests you listed are negative. The tests could be negative because the length of your challenge was too short. It takes time to accumulate antibodies in your blood in reaction to gluten consumption. Most celiac centers recommend between 6 and 12 weeks for the tests to be most accurate. If you choose to have more testing, continue to eat gluten, there is no need to overdo - a slice of gluten containing bread per day is sufficient.

Should you wish to ask for more blood tests:

Tissue Transglutaminase IgG

Endomisial IgA

Gliadin IgG

Deamidated Gliadin Peptide IgA and IgG

Additionally, testing for vitamin/mineral deficiencies are useful for determining if you are not absorbing nutrients properly. Vitamin/Mineral supplementation is often needed while healing.

Whether you want to pursue more testing is up to you. With negative testing you have two choices. Endoscopy or removing ALL sources of gluten to monitor for symptom improvement. Elimination of gluten is often the best test for Celiac Disease and is the only test available for Non-Celiac Gluten Intolerance. NCGI has many symptoms similar to Celiac Disease - they both have the same treatment - live gluten-free.

Good luck to you :)

0

Share this post


Link to post
Share on other sites

Lisa gave you great advice. :) As long as you don't need that piece of paper saying you are celiac (which from what I heard can make it harder to get health insurance) you should probably just go back to eating gluten-free. It sounds like you didn't do well reintroducing it back into your life anyways... and I hope you recover quickly from your gluten challenge.

I think I would call yourself a celiac (or NCGI depending on what a situation demands) and get back to the diet. If you did it for a month, you can do it again. :) Best wishes to you!

0

Share this post


Link to post
Share on other sites

Lisa gave you great advice. :) As long as you don't need that piece of paper saying you are celiac (which from what I heard can make it harder to get health insurance)

Why would it make it harder? There's no medicine to be given out. Is it because if people don't comply with the diet they get sicker?

0

Share this post


Link to post
Share on other sites

Why would it make it harder? There's no medicine to be given out. Is it because if people don't comply with the diet they get sicker?

I'm Canadian, so I'm just repeating what I've seen said on the forum before....

I assume that part of it is that you could get sicker and have complications if you don't comply with the diet. Many health care professionals seem to think its a difficult and expensive diet to follow.

Also, Celiac is an autoimmune disease and AI diseases seem to run in clusters. It seems that a good number of middle aged celiac sufferers have a second, third or fourth AI disease as well. I imagine it would act like a red flag alerting them that we are at higher risk to more develop more illnesses.

Then again, I'm just restating what I've seen posted elsewhere without any proof to back it up... I probably should have "kept my mouth shut" and not typed without evidence. Sorry about that. :unsure:

0

Share this post


Link to post
Share on other sites




I'm Canadian, so I'm just repeating what I've seen said on the forum before....

I assume that part of it is that you could get sicker and have complications if you don't comply with the diet. Many health care professionals seem to think its a difficult and expensive diet to follow.

Also, Celiac is an autoimmune disease and AI diseases seem to run in clusters. It seems that a good number of middle aged celiac sufferers have a second, third or fourth AI disease as well. I imagine it would act like a red flag alerting them that we are at higher risk to more develop more illnesses.

Then again, I'm just restating what I've seen posted elsewhere without any proof to back it up... I probably should have "kept my mouth shut" and not typed without evidence. Sorry about that. :unsure:

No worries. I was just curious. I already have asthma and cannot get insurance on my own. I can only get it through a job where they have to take you.

0

Share this post


Link to post
Share on other sites

Why would it make it harder? There's no medicine to be given out. Is it because if people don't comply with the diet they get sicker?

Hey Nicole and Kiki-

I've seen these claims as well. I think it stems from the history of health insurance refusing people with pre-existing conditions. This was only a problem when applying for private insurance - not from your or your spouse's employer. The recent changes to health care laws in the US now prevent health insurance companies from refusing clients due to pre-existing conditions.

As far as I know there are no repercussions from obtaining a diagnosis.

0

Share this post


Link to post
Share on other sites

No worries. I was just curious. I already have asthma and cannot get insurance on my own. I can only get it through a job where they have to take you.

Wow...I thought this was no longer legal. Good to know.

0

Share this post


Link to post
Share on other sites

Wow...I thought this was no longer legal. Good to know.

I don't know if that part of Obamacare has kicked in yet -- if it has, then it is illegal. It was true several years ago when I was in between jobs.

0

Share this post


Link to post
Share on other sites

P.S. I would definitely prefer to know one way or the other. I already know I can't tolerate gluten, but I'd still like to know for sure.

0

Share this post


Link to post
Share on other sites

Hey all, thank you for the advice! I've been eating like crap agian and thus feeling just as bad. I'm trying to get back into eating gluten free agian, but its so hard sometimes when I stop over at a friends and what not, and they are eating pizza or cookies....and i love pizza and cookies...and everything in between. :blink: I didnt know that about the health care....thats interesting...

Anywho, take care, Ill update occasionally

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,340
    • Total Posts
      920,475
  • Topics

  • Posts

    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
    • Ok guys!   The original post was 3 years ago!  Ingredients, manufacturing methods,  labeling, etc.  may have changed during that time.  A lot of companies have really come a long way on gluten-free in the last 3-4 years.
    • They didn't suggest any probiotic support. Ultimately the side-effects of this drug stabilized approaching the end of the course of treatment, though after it was finished, I was perhaps a bit improved, but no profound symptom resolution for me. Darn! The search goes on.
    • Thankyou I have found that I became intolerant of dairy and having cut it out feeling better but if I come into accidental consumption the symptoms are similar to that of gluten but not as severe .. Patience ay ?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,409
    • Most Online
      1,763

    Newest Member
    Daal7169
    Joined