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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Skin Care
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22 posts in this topic

I just had my blood work confirmed with my endo results today, and as much as I was expecting it, I've been very down all day. I know it could be something so much worse. Anyway, my question is do you avoid all wheat in skin care products/ hair products as well? I was looking through my drawers and some of this stuff I just bought, but I have an eye cream, face cream, face wash, and peel, all that have hydrolized wheat protein or something similar, oh, I even have a mask that has barley in it. Does it all go in the trash?? And if so what do you all use for skincare? The only one so far that seems to be gluten free for the most part is neutrogena. I'm 46, breakout prone, with fine lines. Thanks. :unsure:

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You sound like me 4 weeks ago. Even though I knew the endo would come back positive, I still felt like I'd been smacked upside the head, so here's a ((hug)) for you.

I have tossed all the cosmetics that I thought might get in my mouth. Like my facial scrub and moisturizer and stuff like that. My lipstick is ok. So far, I'm still using my old shampoo and stuff. I figure when it's gone, I'll get something different, but for now, I don't plan to eat it and I'm just being careful not to get it in my mouth. I don't have reactions, but some celiac disease sufferers have very bad reactions to even a drop and are very debilitated by it. While I know the internal damage is going on even though I don't react, I have had to make priorities in how I do this. I have had to restock my kitchen and it's been very expensive. So, the stuff I do put in my mouth had to change right now, but the stuff that might sorta make its way there will have to be phased out gradually. The fact is I simply can't afford to change it all in one day so I have had to prioritize.

Gluten will not be absorbed through your skin, so it's more about the gluten finding its way into your mouth after you handle your food or something.

Probably not very helpful, sorry. There are lists available of what cosmetics are gluten-free or you can write the company.

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I personally got rid of everything with gluten in it. I react now to things on my skin and others do, too. Some say that's a wheat allergy but I think it's just my body reacting to something it has been without for years. Shampoo and cosmetics can all wind up getting into your mouth. You can take your time getting rid of them or continue to use them. It is really up to you.

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Thank you both for your replies, and anyone else who choses to chime in. And as for the hug, I'll take it. :)

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Do what works for you, but I agree...I throw out things with gluten in them. Just not worth it for me after I found my shampoo was giving me headaches (not sure how it got in my system, thought I was being careful). I know Proactiv's products are gluten-free (you might want to check their makeup). Someone recently posted a list under another topic of Estee Lauder products - the list contained wording for ingrediants with gluten. There are also tips in there on shampoos and things, so check it out. It is under something like "Food, Medications, etc" and the topic is called "Cosmetics, shampoo, etc" or similar wording. Good luck.

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I got rid of all products with gluten in them as well. And I tell you what, once I started trying to figure out what was in all my products--I realized how many harmful ingredients are in them to begin with! New products I would recommend--

www.tropicaltraditions.com (all gluten-free--lotions, body scrubs etc.)

www.californiababy.com (all gluten-free--body washes, body/face lotions, bubble bath, sunscreen)

www.bareescentuals.com (all gluten-free makeup, and natural...can buy on QVC or sephora.com)

www.aubreyorganics.com (not all gluten-free, but some of the shampoos and lotions are gluten-free--just verify ingredients)

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I threw out all my stuff too..basically because I wasn't sure what was what at the time.

I found a terrific shampoo/conditioner and soap place on line...it's the gluten free savonnierie (www.gfsoap.com) and their stuff is absolutely wonderful - smells light and is very good for sensitive skin. I also ordered bare escentuals make-up and I actually like it better than anything else I've ever used!!!

I felt the same way too after my confirmation about 2 weeks ago - the diagnosis was sort of a slap upside the head!! But, oh well...I'm actually enjoying the food - so that's good...

I just had my blood work confirmed with my endo results today, and as much as I was expecting it, I've been very down all day. I know it could be something so much worse. Anyway, my question is do you avoid all wheat in skin care products/ hair products as well? I was looking through my drawers and some of this stuff I just bought, but I have an eye cream, face cream, face wash, and peel, all that have hydrolized wheat protein or something similar, oh, I even have a mask that has barley in it. Does it all go in the trash?? And if so what do you all use for skincare? The only one so far that seems to be gluten free for the most part is neutrogena. I'm 46, breakout prone, with fine lines. Thanks. :unsure:

<{POST_SNAPBACK}>

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You sound like me 4 weeks ago.  Even though I knew the endo would come back positive, I still felt like I'd been smacked upside the head, so here's a ((hug)) for you.

I have tossed all the cosmetics that I thought might get in my mouth.  Like my facial scrub and moisturizer and stuff like that.  My lipstick is ok.  So far, I'm still using my old shampoo and stuff.  I figure when it's gone, I'll get something different, but for now, I don't plan to eat it and I'm just being careful not to get it in my mouth.  I don't have reactions, but some celiac disease sufferers have very bad reactions to even a drop and are very debilitated by it.  While I know the internal damage is going on even though I don't react, I have had to make priorities in how I do this.  I have had to restock my kitchen and it's been very expensive.  So, the stuff I do put in my mouth had to change right now, but the stuff that might sorta make its way there will have to be phased out gradually.  The fact is I simply can't afford to change it all in one day so I have had to prioritize.

Gluten will not be absorbed through your skin, so it's more about the gluten finding its way into your mouth after you handle your food or something.

Probably not very helpful, sorry.  There are lists available of what cosmetics are gluten-free or you can write the company.

<{POST_SNAPBACK}>

What Lipstick do you use? I saw somewhere that Revlon and Almay are gluten-free, but can't get a confirmation. I DO love my lipstick.

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What Lipstick do you use?  I saw somewhere that Revlon and Almay are gluten-free, but can't get a confirmation.  I DO love my lipstick.

<{POST_SNAPBACK}>

I use Clinique Different Lipstick :)

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Cover Girl Continuous Color is gluten-free. :)

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Thanks for posting those Jen :)

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Cover Girl Continuous Color is gluten-free.  :)

<{POST_SNAPBACK}>

Thanks both of you for the suggestions for lipstick. That will get me over the vanity hump.

Lisa

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Cover Girl Continuous Color is gluten-free.  :)

<{POST_SNAPBACK}>

Rachel: Like the new pic.

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Does anyone know of any other lotions that are gluten-free?

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When I kept getting sick, I threw out everything with gluten in it, including my beloved Cetaphil. Carriefaith--I've been using the Dove lotion, but these two sites have lotion I've been wanting to try, let me know if you do!

www.dakotafree.com

www.grandmaferdons.com

And Bare Escentuals is expensive, but it's the best makeup I've ever tried. Great if your skin breaks out, too.

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Three nutritionists have told me that skin care products do not cross-over (will not make you sick). But I just can't bring myself to buy anything with wheat in it for myself. I would not even consider any lipstick with wheat as an ingredient. Try Estee Lauder's Intense Lip Creme. I like the Amour Rose. It has long lasting color wihout dyeing or drying out your lips. Even though it seems more expensive than the drug store variety, it lasts longer since you use less. As a school teacher, I do not find much time to re-apply lipstick during the day, so give this one a try.

Meg

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One more thought. Miss Robens online store has gluten-free products besides food. Check there for some you may like.

http://www.allergygrocer.com/

Meg

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I don't use anything with wheat it in. I use the bare minerals makeup and I don't polish my nails. There are some polishes that are gluten-free, but it is not worth the trouble to me. After 7 years, I am still learning new things. B)

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I ended up going with the tropical traditions lotion, they had a buy one get one free sale, so I couldn't resist, and I've been happy with it. I've found a lip gloss site that's inexpensive and this was their response to ingredient question:

Hello,

Thank you for your interest in My Lip Stuff.

Our regular formula lip balms in the tube and pot contain:

Beeswax, Sunflower Oil, Jojoba Oil, Sweet Almond Oil, Castor Oil, Avocado Oil, Cocoa Butter, & Aloe Vera.

The mens, lickity lips, and lip tint- also contain either mango butter, hemp butter, or hemp oil.

The body butter stick contains shea butter, shea oil, castor oil, & beeswax.

Please let me know if you'd like to know about any other products.

Thanks!

BREA

http://www.mylipstuff.com

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I threw out all of my lipsticks, haircare products, washes etc. that had wheat in them shortly after going gluten-free. I didn"t realize at the time how important that was but I was still getting symptoms and tossing the offending things really made a difference. The eczema I had on my eyelid for YEARS has finally subsided -- although that took a couple of months. Johnsons Softlotion Creamy Moisturizing Oil is gluten-free. I called the co. to verify. I love the smell and it dosen't make the skin feel greasy. I use Bare Minerals anyway, I have for some time and am SO happy they are safe. Another line of skincare thats good is MyChelle. I use their Honeydew Cleanser. Their whole line is gluten-free--they use good ingred. like fruit, honey and seaweed extracts. Some of their products are avail. at Whole Foods (at least the one in my area) and their phone # is 800-447-2076 for a catalogue.

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carrie--

on lotions... cali baby and tropical traditions are great. burts bees has several gluten-free lotions. i can tell you what they are if you need. i believe kiss my face has some gluten-free lotions too, and weleda.

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I still struggle with symptoms, so I have tossed all shampoos, conditioners and lotions that have wheat or oats, along with any questionable makeup. I don't regret it. I had never thought about nail polish, so I hope Bare Minerals has some cause my toe nails are gross! I am going to switch to all Bare Minerals cosmetics this week. I am learning that I am extremely sensitive.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      I have not. I'll talk to my doctor about it
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