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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Do You Miss The Most?
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41 posts in this topic

Hello Everyone,

I have tested positive on a home Biocard Test and am having a lab test next week. I figure regardless of my blood work results I will be going Gluten Free. Since I have to stay on gluten until all the tests are complete, I might as well treat myself to everything I won't be able to eat after I cut out the gluten.

Is there anything that really doesn't have a comparable gluten free version?

I am just getting a bit nervous I guess.

Thanks!

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Phyllo dough as in spanikopitas and such. Get your fill of good flaky pastry. Enjoy a last croissant or two because while there are subs they do not have that buttery deliciousness. Sourdough french bread - chow down on a loaf of that. Those are the things I wish I could still eat :rolleyes:

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I still miss crusty bread and nobake cookies(aka novacks) but I'm also severely gluten free oat intolerant.

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1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

3. Perogies... but I know a good celiac Ukranian who has a gluten-free recipe so I might try it this fall.

4. Convenience. I think I notice this one the most. I can't order a cookie with my coffee, or even some flavoured coffees. Timbits are out. I miss not having to worry about packing gluten-free snacks if I'm running errands with the kids; it was so much easier to order a pizza if running late or buy a burger with fries. Making gluten-free chicken nuggets for my kids is definitely more of a hassle that opening a frozen box up... I'm slowly getting used to not relying on convenience foods but that is the thing, for me, that is the hardest to adjust to.

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2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

You need to do a search on here for J.N. Bunnie's cinnamon buns. I haven't made them yet but they look (and others have said) they are to die for :D

Okay, here ya go:

I did the search for you. :)

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Aw... thanks Neroli! :D I've printed it off and I'll give it a try. :) That was nice of you to do.

... And Company's Coming Gluten Free Cookbook has a yummy looking recipe and starter for sourdough. I'm afraid I don't have the recipe but the picture made my mouth water.

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I really miss Angle Food Cake and every thing you can do with it. :huh:

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I really miss Angle Food Cake and every thing you can do with it. :huh:

Ah, Lisa, our mathematician :lol:

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Ah, Lisa, our mathematician :lol:

:lol: oh my! :lol:

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Glazed Old Fashioned Donut - forgot to have one in the days before going gluten-free - coulda, shoulda - didn't.

Flaky, buttery Croissant --- Ohhhhh

FRESH bread, French or Sourdough - warm with butter --- Ahhhhh

It really is a rare occasion for me to miss any gluten item, but I frequently wish for the ability to go to a restaurant and try whatever their specialty is.

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Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

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Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

And I had the most fantastic, never-fail rye bread recipe :(

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Oh no! I think I will be gaining a few pounds in the next couple of weeks!

I did not even think of the rye bread...

I wonder if my mom could ( and would) make her German Christmas Stollen with a different flour.

Are any gluten-free beers any good?

No gluten in red wine, right? RIGHT?!

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Red wine is gluten free - and regularly confirmed as such :D

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Red wine is gluten free - and regularly confirmed as such :D

:lol:

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Krispy Kreme donuts, especially the cream filled bismarcks, deep dish pizza, Mcdonalds cheeseburgers on the fly, artisan breads with butter, biscotti ordered with my coffee, breadsticks from Olive Garden, white wedding cake, Entemens cream cheese coffee cake, Fancy chocolates from chocolate speciality stores, going to fancy bakeries and eating my body weight in scrumptious baked goodies. Oh must I go on....... I'm not quite 3 years out, so I am still fairly new and fairly whiney..

...and just when I finally settled into being gluten free and fairly OK with it, I had to give up dairy and am lost again.....It's been 2 months and I am still adjusting...and starving a lot.

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And I had the most fantastic, never-fail rye bread recipe :(

MitziG and Neroli, there is an old post on microwaveable buns that had a recipe for "Rye Buns". I haven't tried it yet but it is here (go to page 7) :

This is what it said:

Rye bun

1 egg

1 tsp molasses

2 tbsp almond meal

2 tbsp golden flax meal

1 tbsp brown rice flour

1/2 tsp baking powder

shake of salt

1/2 tsp caraway seed

Make like the original, mixing the egg with the molasses until well beaten, stirring in rest of ingredients until well mixed, and microwaving for 90 seconds. Then turn out of dish and let cool, slice into 4 rounds and make 2 sandwiches.

Yummy RYE BREAD in 2 minutes!!

I make their basic microwave buns all the time for my boys, I just substitute out the almond meal and add 3/4 tbs coconut flour, plus we skip the cocoa and add cinnamon (in the original recipe). My boys love it.

LOL at Lisa!

Greens is a nice beer, but expensive. Estrella Drauma (sp?) claims to be gluten-free to 3ppm but it is started from barley and it made me react quite badly; others do better with it. I haven't tried any other brands... I'm a beer snob but I only had a dozen beers a year at the most... Alas, all that wasted possible beer drinking time. :rolleyes::P LOL

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The convinence mostly.... but... if i HAVE to make a list:

Crossont rolls

maple glazed doughnuts

egg rolls

Japanese food in general (yes yes i know i can make my own but still)

Red lobsters stuffed mushrooms

french bread

cinnimon life cereal

honey nut cheerios (NOTHING REPLACES THIS...my poor lost self, the stuff of my childhood).

ramen... yes... i said it...

cookie dough ice cream

oatmeal cookie samwiches

my grandmothers gravy

fried chicken (the good kind not the fast food stuffs)

cheeeeesy bread (yet to find a good replacement)

apple fritters...

I could go on...

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Feeling amazingly healthy; like I could conquer the world.

Oh yeah and...

-Devouring an entire NY style pizza with a pint

- Every pasta dish imaginable.

-My favorite: Eggplant Parmesan

-Hot soups in the winter; mainly Pho

...Holy Sh** I think I'm gonna cry

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1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

WHAT?!?!?!?! I don't think you are looking in the right places, in fact there are a lot of high end beers available gluten free. Most premium breweries have at least 1 good gluten free beer but they are hard to find in Canada. If I have celiacs I am going to be ordering premium beers in bulk online, they are available everywhere. If I get diagnosed I am going to be drunk for the next month finding which brand appeals to me ;).

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No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

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No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

I live in Ontario, so my stores are limited to the LCBO and Beer store. The beer store only has 1 gluten free brand and the LCBO has 5, however if you are willing to order online there are some really praised gluten free beers that non celiacs drink for the taste. Will give you a few good ones once I know. Also smirnoff ice is gluten free too.

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I'd also love information on gluten free beer. I was so looking forward to stout season...

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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      I have not. I'll talk to my doctor about it
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