Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Do You Miss The Most?
0

41 posts in this topic

Hello Everyone,

I have tested positive on a home Biocard Test and am having a lab test next week. I figure regardless of my blood work results I will be going Gluten Free. Since I have to stay on gluten until all the tests are complete, I might as well treat myself to everything I won't be able to eat after I cut out the gluten.

Is there anything that really doesn't have a comparable gluten free version?

I am just getting a bit nervous I guess.

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Phyllo dough as in spanikopitas and such. Get your fill of good flaky pastry. Enjoy a last croissant or two because while there are subs they do not have that buttery deliciousness. Sourdough french bread - chow down on a loaf of that. Those are the things I wish I could still eat :rolleyes:

0

Share this post


Link to post
Share on other sites

I still miss crusty bread and nobake cookies(aka novacks) but I'm also severely gluten free oat intolerant.

0

Share this post


Link to post
Share on other sites

1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

3. Perogies... but I know a good celiac Ukranian who has a gluten-free recipe so I might try it this fall.

4. Convenience. I think I notice this one the most. I can't order a cookie with my coffee, or even some flavoured coffees. Timbits are out. I miss not having to worry about packing gluten-free snacks if I'm running errands with the kids; it was so much easier to order a pizza if running late or buy a burger with fries. Making gluten-free chicken nuggets for my kids is definitely more of a hassle that opening a frozen box up... I'm slowly getting used to not relying on convenience foods but that is the thing, for me, that is the hardest to adjust to.

0

Share this post


Link to post
Share on other sites

2. My grandmother's recipe for sweet dough cinnamon buns. They were absolutely amazing, and it makes me a bit sad I'll never taste her recipe again. I'll miss this the most.

You need to do a search on here for J.N. Bunnie's cinnamon buns. I haven't made them yet but they look (and others have said) they are to die for :D

Okay, here ya go:

I did the search for you. :)

0

Share this post


Link to post
Share on other sites




Aw... thanks Neroli! :D I've printed it off and I'll give it a try. :) That was nice of you to do.

... And Company's Coming Gluten Free Cookbook has a yummy looking recipe and starter for sourdough. I'm afraid I don't have the recipe but the picture made my mouth water.

0

Share this post


Link to post
Share on other sites

I really miss Angle Food Cake and every thing you can do with it. :huh:

0

Share this post


Link to post
Share on other sites

I really miss Angle Food Cake and every thing you can do with it. :huh:

Ah, Lisa, our mathematician :lol:

0

Share this post


Link to post
Share on other sites

Ah, Lisa, our mathematician :lol:

:lol: oh my! :lol:

0

Share this post


Link to post
Share on other sites

Glazed Old Fashioned Donut - forgot to have one in the days before going gluten-free - coulda, shoulda - didn't.

Flaky, buttery Croissant --- Ohhhhh

FRESH bread, French or Sourdough - warm with butter --- Ahhhhh

It really is a rare occasion for me to miss any gluten item, but I frequently wish for the ability to go to a restaurant and try whatever their specialty is.

0

Share this post


Link to post
Share on other sites

Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

0

Share this post


Link to post
Share on other sites

Rye bread. How I miss a hot delicious loaf of rye! And obviously, there is no gluten-free sub for that!

And I had the most fantastic, never-fail rye bread recipe :(

0

Share this post


Link to post
Share on other sites

Oh no! I think I will be gaining a few pounds in the next couple of weeks!

I did not even think of the rye bread...

I wonder if my mom could ( and would) make her German Christmas Stollen with a different flour.

Are any gluten-free beers any good?

No gluten in red wine, right? RIGHT?!

0

Share this post


Link to post
Share on other sites

Red wine is gluten free - and regularly confirmed as such :D

0

Share this post


Link to post
Share on other sites

Red wine is gluten free - and regularly confirmed as such :D

:lol:

0

Share this post


Link to post
Share on other sites

Krispy Kreme donuts, especially the cream filled bismarcks, deep dish pizza, Mcdonalds cheeseburgers on the fly, artisan breads with butter, biscotti ordered with my coffee, breadsticks from Olive Garden, white wedding cake, Entemens cream cheese coffee cake, Fancy chocolates from chocolate speciality stores, going to fancy bakeries and eating my body weight in scrumptious baked goodies. Oh must I go on....... I'm not quite 3 years out, so I am still fairly new and fairly whiney..

...and just when I finally settled into being gluten free and fairly OK with it, I had to give up dairy and am lost again.....It's been 2 months and I am still adjusting...and starving a lot.

0

Share this post


Link to post
Share on other sites

And I had the most fantastic, never-fail rye bread recipe :(

MitziG and Neroli, there is an old post on microwaveable buns that had a recipe for "Rye Buns". I haven't tried it yet but it is here (go to page 7) :

This is what it said:

Rye bun

1 egg

1 tsp molasses

2 tbsp almond meal

2 tbsp golden flax meal

1 tbsp brown rice flour

1/2 tsp baking powder

shake of salt

1/2 tsp caraway seed

Make like the original, mixing the egg with the molasses until well beaten, stirring in rest of ingredients until well mixed, and microwaving for 90 seconds. Then turn out of dish and let cool, slice into 4 rounds and make 2 sandwiches.

Yummy RYE BREAD in 2 minutes!!

I make their basic microwave buns all the time for my boys, I just substitute out the almond meal and add 3/4 tbs coconut flour, plus we skip the cocoa and add cinnamon (in the original recipe). My boys love it.

LOL at Lisa!

Greens is a nice beer, but expensive. Estrella Drauma (sp?) claims to be gluten-free to 3ppm but it is started from barley and it made me react quite badly; others do better with it. I haven't tried any other brands... I'm a beer snob but I only had a dozen beers a year at the most... Alas, all that wasted possible beer drinking time. :rolleyes::P LOL

0

Share this post


Link to post
Share on other sites

The convinence mostly.... but... if i HAVE to make a list:

Crossont rolls

maple glazed doughnuts

egg rolls

Japanese food in general (yes yes i know i can make my own but still)

Red lobsters stuffed mushrooms

french bread

cinnimon life cereal

honey nut cheerios (NOTHING REPLACES THIS...my poor lost self, the stuff of my childhood).

ramen... yes... i said it...

cookie dough ice cream

oatmeal cookie samwiches

my grandmothers gravy

fried chicken (the good kind not the fast food stuffs)

cheeeeesy bread (yet to find a good replacement)

apple fritters...

I could go on...

0

Share this post


Link to post
Share on other sites

Feeling amazingly healthy; like I could conquer the world.

Oh yeah and...

-Devouring an entire NY style pizza with a pint

- Every pasta dish imaginable.

-My favorite: Eggplant Parmesan

-Hot soups in the winter; mainly Pho

...Holy Sh** I think I'm gonna cry

0

Share this post


Link to post
Share on other sites

1. Beer. gluten-free beer is ok, but I was a beer snob before and the fact that I can't have a Brewster's stout or two this winter is really disappointing.

WHAT?!?!?!?! I don't think you are looking in the right places, in fact there are a lot of high end beers available gluten free. Most premium breweries have at least 1 good gluten free beer but they are hard to find in Canada. If I have celiacs I am going to be ordering premium beers in bulk online, they are available everywhere. If I get diagnosed I am going to be drunk for the next month finding which brand appeals to me ;).

0

Share this post


Link to post
Share on other sites

No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

0

Share this post


Link to post
Share on other sites

No no no! LOL I have yet to find a really good substitute for Brewsters stout... or Guinness? Forget about it! LOL

It could be because I am in Canada that they are harder to find, but that's hard for a Canadian beer snob to admit since (ahem) I don't really like American beer. :P ... Don't hurt me! lol

Greens is good but it still tastes like the homebrews we used to make back in university... I dunno. :huh:

I live in Ontario, so my stores are limited to the LCBO and Beer store. The beer store only has 1 gluten free brand and the LCBO has 5, however if you are willing to order online there are some really praised gluten free beers that non celiacs drink for the taste. Will give you a few good ones once I know. Also smirnoff ice is gluten free too.

0

Share this post


Link to post
Share on other sites

I'd also love information on gluten free beer. I was so looking forward to stout season...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,333
  • Topics

  • Posts

    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,132
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined