Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pins & Needles Pain In Feet, Spasms In Legs
0

14 posts in this topic

Does anyone here have any of these symptoms? Did you connect them to nerve damage from gluten? Have you had any improvement?

I have been gluten-free for 1 1/2 years and these are the last of my symptoms and have had just about every test that could be ran (with the exception of MS) to try and eliminate anything else.

I was suffering real bad sciatic pain last winter which exercise could not relieve, had an MRI of the back done which showed 2 bulging discs in the back....had an epidural steroid treatment, acupuncture, 6 weeks of physical therapy. I have contniued with massage and heat therapy, I stretch and exercise but nothing has taken away the pins and needles pain I get between in my toes in both feet. In the process of the testing it was discovered that I ahve 25% nerve damage to my feet.....I do have pre-diabetes but doc says this could not have caused it as my glucose levels have not gone high enough to do damage. Doc also says what I am experiencing cannot be from my back. Docs tested me for alcohol consumption, that also came up empty....I maybe have 2 drinks a week.

For the pins & needles pain I take 500 mg of L-Carnitine daily which keeps it controlled. For the numbness in my legs I take a B complex which make sit only a touch better, tests have shown I am not deficient. For the spasms in my legs I take a daily multi miberal which includes magnesium, potassium, zinc and calcium....it does make it better but has not resolved the issue.

Just wondering if anyone can relate??

0

Share this post


Link to post
Share on other sites


Ads by Google:

Does anyone here have any of these symptoms? Did you connect them to nerve damage from gluten? Have you had any improvement?

I have been gluten-free for 1 1/2 years and these are the last of my symptoms and have had just about every test that could be ran (with the exception of MS) to try and eliminate anything else.

I was suffering real bad sciatic pain last winter which exercise could not relieve, had an MRI of the back done which showed 2 bulging discs in the back....had an epidural steroid treatment, acupuncture, 6 weeks of physical therapy. I have contniued with massage and heat therapy, I stretch and exercise but nothing has taken away the pins and needles pain I get between in my toes in both feet. In the process of the testing it was discovered that I ahve 25% nerve damage to my feet.....I do have pre-diabetes but doc says this could not have caused it as my glucose levels have not gone high enough to do damage. Doc also says what I am experiencing cannot be from my back. Docs tested me for alcohol consumption, that also came up empty....I maybe have 2 drinks a week.

For the pins & needles pain I take 500 mg of L-Carnitine daily which keeps it controlled. For the numbness in my legs I take a B complex which make sit only a touch better, tests have shown I am not deficient. For the spasms in my legs I take a daily multi miberal which includes magnesium, potassium, zinc and calcium....it does make it better but has not resolved the issue.

Just wondering if anyone can relate??

As you likely remember I can relate. I had trauma to my L-5 vertebrae and sacrum as a child and have to exercise to make up for the lack of bone on the back of the L-5 vertebrae (the "wings") which were severed off when I was young as well as exercise to keep my sacrum strong and act against chronic sciatica otherwise. So exercise really does help--walking, stretching, yoga.

However I also have myoclonus and nerve damage in part exacerbated by salicylate, oxalate, tannin and amine sensitivity as well as years and years of having trace amounts of gluten which seemed to damage the myelin sheath surrounding the nerves. Slowly I am getting better over time. Yes I take the B vitamins and minerals and as you know the nattokinase that unfortunately does not seem to work for you (though some other fibronylitic enzyme might help against the possible scar tissue).

I take barberry regularly--very small doses which really helps against liver damage and acts as an antidote to salicylate sensitivity--and recall you take nettle tea which acts similarly. Wish I could but its high in tannins...

The epsom salt baths continue to help.

Sometimes it just is not cut and dried simple. Its everything altogether. And yes we are all a little different.

Just today I was marveling at being pain free despite the sudden rainy cool fall weather. This is unusual compared to the past. I chalk it up to avoiding the high to medium amines etc. by eating only really fresh food with nothing preserved--and only eating white lima beans (and take calcium citrate beforehand to bind the oxalates) rather than eating colored beans of any sort to avoid the tannins--and of course continuing to eat relatively low salicylate foods.

Of course enzymes and probiotics help--but you knew that. I also have frozen plain cod liver oil which also helps (and avoids the amines).

I celebrate now being able to eat boiled kale (with the water thrown out afterwards to avoid any possible oxalates) however twice a week! And continue to detox using bentonite clay and psyllium husk drinks away from food almost every day combined with taking two doses of chlorella during the day (with food) for extra energy (and help detoxing).

Learning how to avoid CC from gluten and now how to deal with all these food chemicals I am sensitive to has been a slow learning process--but totally worth it given how much better I feel overall.

Slowly we learn our bodies. Good luck with figuring out yours. Likely you will if I know anything about you.

Bea

0

Share this post


Link to post
Share on other sites

Add a sublingual B12 tablet into your daily vitamin regime. That may help a great deal.

0

Share this post


Link to post
Share on other sites

I've had a fair bit of sciatic pain and back spasms over the last 15 years due to bulging discs (that doctors told me couldn't be helped... why do i ever believe them?). My L5 disc burst a couple of years ago and now I have paralysis in my right leg; I skipped numbness and tingling. LOL :rolleyes:

That occurred while I was still undiagnosed, and I've only been gluten-free for 3 months so I'm not sure if it was celiac related at all. I still have a sore back, but it expresses itself differently now; lately it tends to be a quick pain in my left leg (outside of the thigh to shin to big toe). It's been acting up over the last month, so at this point I'd say it is not linked to celiac... but who knows.

I used to get muscle spasms in my leg, especially in my slightly paralyzed muscles, which would be....oh, just a bunch of fun. :blink: I found the homeopathic remedy cuprum metallicum really helped with that but it's disappeared since going gluten-free so I'm not sure if it was related to celiac. I would guess yes.

My mother has restless legs, they just kick out when she's relaxing, and she takes Restless Legs for it. She gets it at a whole foods store. It's really helped her. She is in the process of going gluten-free as she appears to be NCGI.

Hope you find relief for your discomfort.

0

Share this post


Link to post
Share on other sites

Hello again avr1962,

I see your on no grains, does that include corn? I had terable muscle pain to the point i could hardly stand up, an numbness in my toes. My multi vitimans that i had taken for 9 months contained corn. I tried adding some more vitimans that also contained corn an it knocked me for a loop. I removed corn an white potatoes from my diet an within a few days the muscle pain was gone. I can stand up 4-6 hours at a time an its only been a couple of weeks. I am now gluten,dairy,soy,corn free. hope you feel better soon, dave

0

Share this post


Link to post
Share on other sites




Hello again avr1962,

I see your on no grains, does that include corn? I had terable muscle pain to the point i could hardly stand up, an numbness in my toes. My multi vitimans that i had taken for 9 months contained corn. I tried adding some more vitimans that also contained corn an it knocked me for a loop. I removed corn an white potatoes from my diet an within a few days the muscle pain was gone. I can stand up 4-6 hours at a time an its only been a couple of weeks. I am now gluten,dairy,soy,corn free. hope you feel better soon, dave

NCDave, as long s I do not eat any carbs I avoid inflammation which does include corn....keeping this up though every single day is not easy and I will have rice or potatoes or gluten-free pizza. The nettle tea that I drink keeps the inflammation away and I no longer have the ringing in my ears or the tight feeling in my toes and fingers if I have a little bit of grain, however I do still avoid it. Even off all grains the spasm in my legs have not stopped. I was on a muscle relaxer at night for a month, prescript for my back, and in that one month is the only time I have had relief from the spasms in my legs.

Reading more I am suspicous that the pins & needles pain I am dealing with is more sciatic pain from my back. I live in Germany and see a military American doc for the most part but they have been little help. Every time I go to a German doc they actually work with me, help me and find the issue, address it and I do better. However, if I go back to the American doc they do not like the meds the German doc has given me, don't like their way of practice, complain about their proceedures but then do nothing to help me with my issues. I feel like I being passed thru the system quite honestly.

Thanks for all the replies!

0

Share this post


Link to post
Share on other sites

try sustain release magnesium, if you can find it. It is possible that your mixed supplement is not the right ratio for YOU. good luck

0

Share this post


Link to post
Share on other sites

UPDATE: met new doc today. She believes the pins and needles pain I have in my feet is from the bulging discs in my back. Also, in reviewing my records she told me she doesn't think I am diabetic. They ran more tests but she thinks that when I did the herbal liver cleanse 2 years ago it impaired the function of my pancreas and made me hyper-sensative to sugar. I still will not be able to change the way I eat right now but it is good news.

0

Share this post


Link to post
Share on other sites

UPDATE: met new doc today. She believes the pins and needles pain I have in my feet is from the bulging discs in my back. Also, in reviewing my records she told me she doesn't think I am diabetic. They ran more tests but she thinks that when I did the herbal liver cleanse 2 years ago it impaired the function of my pancreas and made me hyper-sensative to sugar. I still will not be able to change the way I eat right now but it is good news.

Thanks for the update. Hopefully she will be able to do something to help with the disks. Physical therapy helped me quite a bit.

Thanks also about posting about the herbal liver cleanse. There is a reason so many here warn about us doing cleanses. I hope you recover completely from it in time.

0

Share this post


Link to post
Share on other sites

UPDATE: Well, I think I FINALLY have an answer to my pins and needles pain that I have had for the past 2 years!!! It was my back as my last doc suggested. I have been doing yoga every day and am loving it! I have not taken my L--carnitine for the pain for over 2 weeks and have only an occasion lil twing now in one foot only!!!!

Also, I am connecting sugar to the spasms in my legs. I have been even more careful with the intake of sugar and I have had many restful nights. Had a small dish of ice cream a couple weeks ago and had a absolutely miserable night of spasms.

Thought I would share in case this might help anyone esle!

0

Share this post


Link to post
Share on other sites

Yoga, that"s what a gi recommended for my ibs. I thought he had lost his mind ! I need something for lower back pain, i just may give this yoga a try. I"d do anything at this point to stop my back from hurting all day everyday. Did you take a class or figure out how to do yoga online?

0

Share this post


Link to post
Share on other sites

I would also suggest working with a chiropractor. That, and yoga. :)

0

Share this post


Link to post
Share on other sites

Yoga, that"s what a gi recommended for my ibs. I thought he had lost his mind ! I need something for lower back pain, i just may give this yoga a try. I"d do anything at this point to stop my back from hurting all day everyday. Did you take a class or figure out how to do yoga online?

I bought a 3 disc set of DVDs for BEGINNERS, lol! I knew my back was too stiff to even touch my toes and I sure did not want to make a fool out of myself in a class. I am actually very amazed the difference this has made for me and I highly suggest it for anyone dealing with back pain. My husband, retired Air Force, has been doing it with me along with my teen and we are all seeing benefits!

0

Share this post


Link to post
Share on other sites

Hi AVR,

One of the things that helps me with back issues is stretching my back. I have a doorway in my house that I can grab hold of and hang from for a few seconds at a time. The weight of my body pulls the back out and things kind of snap into place. I have done this in the past when thinigs were out of place and kind of wiggled around while hanging there. Some times it took a couple weeks and then boom, something would move and go back where it was supposed to be and the pain would go away. This is a good thing to do every day, several times day. They make gizmos that you can strap yourself into and then rotate so that your head is down towards the ground for the same purpose. They are called inversion tables. If you do a chinup and hold it for a few seconds that is just as good IMHO. That also strengthens your arms and upper body some so that's a good thing too. The inversion tables don't do that. Try the chinup deal several times a day for a couple weeks and see if it helps is my advice. It sure helps me a lot! :)

http://inversiontabl...Stretcher_Broad

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,357
    • Total Posts
      920,529
  • Topics

  • Posts

    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined