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Strange Symptoms For 1 1/2 Years... Celiac's? Cancer? Ibd?

quirkinator

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quirkinator Rookie
quirkinator
Posted

For the last year and a half, I wake up each morning, and vomit either bile or last night's dinner (completely undigested). I get nauseous throughout the day, and sometimes after I eat. Also, I have diarrhea, or loose stool that is sometimes bloody. In addition, I have lost about 25-30lbs over the last 9 months. I do not have much of an appetite, and when I do eat, little meals make me full. My belly gets really big as if I am pregnant, and then my stomach gurgles loudly for hours. In addition to these symptoms, I am on cochicine for PFAPA, a very rare auto-immune disorder. And, to top all that off, I have been getting migraines about once per week for the last two years, and I have a lot of hair loss. Last week I went to a gastroenterologist and will be having a colonoscopy, upper endoscopy, gastric emptying test, stool test, and a bunch of blood work. I am afraid of what this might be. Any ideas/support/suggestions would be helpful. I am a 29 year old female of Jewish European ancestry, if that makes a difference. Lastly, all my blood work came back normal, except an elevated bilirubin (dehydration?). Thanks for listening.

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shadowicewolf Proficient
shadowicewolf
Posted

Did you spacifically have the celiac panel done? It has a tendency to pop up with other autoimmune disorders.

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mushroom Proficient
mushroom
Posted

Yikes, colchicine alone is enough to make anyone throw up. I had to take it once when I had a gout breakthrough and asked my doctor how long I had to take it. He said until the gout goes away or until you can't tolerate the colchicine any more, which is usually about the same time. :lol: I am so sorry you are having to go through that. Have you tried stopping the colchicine and seeing if there is any improvement? It sure made me ill :(

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quirkinator Rookie
quirkinator
  • Author
Posted

No, but I requested to have that test performed. I can't wait for the results. Going a little nuts here.

Unfortunately I have to take colchicine for life. I've only been taking it for about a year, and the symptoms started well before that. It works well for my PFAPA.

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      Trying to read my lab results

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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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