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How Much Gluten, For How Long, Must You Eat Before Testing?


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26 replies to this topic

#1 tom

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Posted 09 October 2012 - 08:33 AM

Moderator's note:
This discussion began in a topic started by a new member with several questions. It has been split out as a generic discussion of the question. There are differing views on this. What I perceive is that there is no one answer that fits everybody. Healing rates differ for many reasons, and the most significant factor is the amount of damage to heal from. - psawyer (mod).




...
Also it is critically important that you do NOT go gluten free until after the endoscopy. Biopsies look for damage, which can heal quickly on the gluten free diet.

Really? I don't think I've seen any studies on that. (Rapid healing)
Any link?

Edited by psawyer, 12 October 2012 - 04:45 PM.
Added explanatory note about topic split

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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

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#2 mushroom

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Posted 09 October 2012 - 09:44 AM

Here's what the Mayo Clinic says:

Usually several weeks after removal of gluten from the diet the small intestine begins to heal......

http://www.mayomedic...nt-brochure.pdf

How many weeks is several? I don't know. Your several and mine may vary. Two weeks is not several to me, but three weeks could be.

I don't believe the poster was referring to total healing, just healing that may affect testing results.
  • 3
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#3 tom

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Posted 09 October 2012 - 10:04 AM

Can't read the pdf until later but does several weeks = "quickly" in this context?
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#4 mushroom

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Posted 09 October 2012 - 10:15 AM

Can't read the pdf until later but does several weeks = "quickly" in this context?


Well, in the context of taking two years to heal completely for adults, I would say that is probably "quite" quickly.
  • 1
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#5 MitziG

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Posted 11 October 2012 - 10:02 AM

Tom, depending on the extent of the damage, a week or two could make the difference between a positive or negative result. For instance, if the OP has only mild villous blunting, a week or two could make the villi appear normal. After all, the intestinal lining renews itself every three days. Now, if the OP has total villous atrophy, likely a week or two would make no difference. But since they have no way of knowing the extent of the damage (if any) all precautions should be taken to avoid a false negative biopsy.
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#6 tom

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Posted 11 October 2012 - 11:49 AM

... For instance, if the OP has only mild villous blunting, a week or two could make the villi appear normal.
...

Very interesting.
I'd love to read up more on that. Remember where you saw that?

Seems at odds w/ "several weeks to begin to heal" quote from Mayo.

Here's what the Mayo Clinic says:

Usually several weeks after removal of gluten from the diet the small intestine begins to heal......

http://www.mayomedic...nt-brochure.pdf
...


  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#7 bartfull

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Posted 11 October 2012 - 03:14 PM

Tom? Have you been glutened recently? I ask because irritability is one of MY glutening symptoms. Seems that lately you have been feeling the way I do when I get glutened.
  • 5

gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#8 Lisa

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Posted 11 October 2012 - 03:40 PM

Tom? Have you been glutened recently? I ask because irritability is one of MY glutening symptoms. Seems that lately you have been feeling the way I do when I get glutened.

I don't share the same impression bartfull. I, rather see it as Tom's attempt to bring proper and accurate information to this forum.

Information on a forum (any forum) has a tendency to stagnate. I suppose Tom feels passionate that the members here should be exposed to the most current research available.

You may not appreciate his approach or may challenge his facts, but as any member here, he has the right to post, free from personal criticism.

We have had many, many healthy debates here over these many years....which brought forth some wonderful information from some really great minds. I have always enjoyed them.

:)
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#9 tom

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Posted 11 October 2012 - 03:43 PM

I'd actually really like to know more about research on the topic in the post.
As such, I was feeling Inquisitive rather than Irritated.

OT P.S. I think I'm soon buying a wider-necked guitar. Always like seeing your av.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#10 tom

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Posted 11 October 2012 - 03:46 PM

Ahhhhh sneaky Lisa snuck one in while I slowly typed. Was expecting mine to show up immed under Barty's. Looks disjointed now.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#11 bartfull

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Posted 11 October 2012 - 03:52 PM

I guess it's not so much what you say, as how you say it that made me think you were irritated. I have often found myself offending people by being too blunt, when I never meant anything by it. A friend told me that if I preface what I say with, "In my opinion..." or "It seems to me..." that I could tell them what I think without seeming like I thought MY opinion was the only right one. I STILL have trouble with that sometimes, but I'm trying. (Except when I get glutened - then I don't care WHOSE feelings I hurt! :blink: )

I think you'll enjoy a wide neck. All of mine are standard width but that's because of my "delicate" :lol: female fingers. I am LOVING the baritone though, even though the longer fret spacing sure does make me stretch. :)
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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#12 Lisa

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Posted 11 October 2012 - 04:18 PM

Ahhhhh sneaky Lisa snuck one in while I slowly typed. Was expecting mine to show up immed under Barty's. Looks disjointed now.

:ph34r:

"a wider neck"...don't you have to have bigger hands or THUMBS? B)
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#13 mushroom

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Posted 11 October 2012 - 04:20 PM

In general, Lisa, or Tom in particular???
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#14 Lisa

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Posted 11 October 2012 - 04:49 PM

In general, Lisa, or Tom in particular???

:lol:
:lol:
:lol: ...either way. Hey, I just got back from Rome, remember! I've seen all I need to see for the time being, but, I'm easily amused. :P I have seen Tom's VERY large shoes... :blink:

EDIT (after Peter's post): Yes sir. :) Heading over to Psillie Land.
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#15 mommida

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Posted 12 October 2012 - 06:42 AM

Very interesting.
I'd love to read up more on that. Remember where you saw that?

Seems at odds w/ "several weeks to begin to heal" quote from Mayo.


Tom,

The medical community statements on the amount of time to heal are just GUESSES. The truth is every individual is different.

The medical community made the most advancement in digestive knowledge from an accident. Dr. William Beaumont had a patient who was shot in the gut. The wound never fully healed and the man had a hole in his side made into a "window" to watch and learn digestion. Just saying it is a fascinating story, if you like to look up medical articles.
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Michigan


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