Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Is It Celiac?

2 posts in this topic

I'm a 22 year old female and have been suffering from a variety of symptoms including nausea, diarrhea, constipation, bloating, mucus in stool, abdominal pain, gas, minor weight loss, anxiety, hair loss, and a tingling feeling in my toes. I had a variety of tests done including an ultra sound, stool test for parasites/bacteria, colonoscopy and endoscopy.

Everything came back normal except with the colonoscopy/endoscopy. With that they found some polyps (turned out to be benign) and inflammation. The pathologist suggested I get a celiac blood panel done based on the biopsy. So, I'm going to do that soon. (I've had some previous more general blood work done and the only thing they found from that was that my red blood cell count was slightly low at 3.9, but it was so slightly that it was deemed insignificant.) Now I'm waiting to get the celiac blood panel to more specifically look at that as a possibility.

Anyways, pardon my ignorance here :unsure:, but there's something I'm slightly confused about. I've heard that a biopsy is sort of the gold standard for confirming celiac disease. If the already did a biopsy, wouldn't that show for sure whether or not it was celiac disease? The doctor still seems unsure/unconvinced so I'm really not sure what to make of the situation. I know the test will eventually show what's going on, but I'm just curious if what I'm describing even sounds like celiac or maybe just a gluten sensitivty or something else even?


Share this post

Link to post
Share on other sites

Ads by Google:

The pathologist suggested I get a celiac blood panel done based on the biopsy.

YES Ashleigh! And welcome!!!!

Get a hold of your pathology report and bring it here. It may indeed, offer a diagnosis. Your symptoms surely support it.

But, please continue to eat gluten, if you can tolerate it, until your blood work.

If you can't, a positive dietary response can be a piece of the puzzle as well.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ok, that was my understanding of it too after some reading, but the fact that the result was under "celiac reflex panel" is what confused me.    I do have some unspecified autoimmune activity going on in my body. My inflammation levels are very high, my complement testing has come back off, and nobody really knows why. A total high Iga isn't a surprise in this case if it doesn't actually hab anything to do with gluten. Going gluten free made my inflammation markers rise rather than go down, so I'm inclined to believe I'm mostly okay with gluten, aside from some digestive issues that I believe are simply from the wheat not being fermented. Sourdough causes me no issue,  but soft white bread destroys me for example. Anyways, It's all very confusing and I wish I knew what the heck was going on with my body. 
    • maybe check exactly which blood tests you had done as well if the dermatologist doesn't know much about celiac its possible they didn't run enough
    • i think chips would vary from place to place depending on the ingredients where you go
    • Hey Everyone! Been celiac for 6 years, and it's my first time on a forum.  I assume my story is the same as most of yours: I was really sick and skinny and bloated, got diagnosed with celiac, went gluten-free and felt amazing, then slowly, but surely, the symptoms and elevated antibodies returned, no matter how OCD I am about avoiding cc. Basically I have what they call Non-Responsive Celiac disease.  I'm wondering, is there something ELSE that I can do? Clearly the gluten-free diet isn't enough anymore. I know I'm not alone in this experience. And I know doctors don't have any advice besides the gluten-free diet (and the new celiac drug that is apparently in phase III)). But do you guys know of any other tricks?  I went on anti-anxiety SSRIs for a bit to help with my anxiety problems, and that really helped my celiac. But now that I've sort of developed a tolerance to my low dose, the symptoms have returned. Anyone else try this? Or low doses or steroids/anti-inflammatory drugs?  I'm really sick of feeling sick. I even tried the Fasano (Gluten Contamination Elimination Diet) for 3 months, but it didn't really work. Any suggestions or tips would be much appreciated! Or even the names of doctors who have helped you!  
    • 60% of celiacs with dh test negative on the celiac blood work. Fact. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member