I have been browsing this forum for a while and have decided to join and share my experiences. I have been gluten-free for 3 months and feel a lot better. I still struggle with high fat meals and excess lactose, but am hoping this will all clear soon. I'm hoping to learn more about other celiacs who may struggle with associated autoimmune diseases. I have been told by my doc I probably have early sjogrens disease. I don't cope too well with the probably part and don't like the thought of waiting but what can I do! In the mean time I would like to say how much I have learned just from reading through these posts, and look forward to chatting with you all
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Positive antibodies (igG only, igA deficient)
Negative biopsy 2007
Diagnosed fructose malabsorption 2007
Positive ANA 2009, Vit D basically non-existant
Possible early Sjogrens disease was told to wait it out
2011-2012 increasing daily nausea, severe stomach pain, and worsening IBS symptoms, went totally gluten-free & felt better
Aug 12 -Daughter diagnosed DQ2 positive and celiac confirmed
Sept 12 - my gene test positive DQA1*05, so half DQ2 positive
GE said don't bother with gluten challenge & biopsy, he instructed to stay away from gluten for life
My MIL had Sjogren's - once I was diagnosed with Celiac Disease and learned the ins and outs of said disease, I strongly believed that she had undiagnosed Celiac Disease.
Here is the good - possibly great news: Many symptoms of Sjogren's are greatly improved or completely resolved once gluten has been removed. The bad news: This improvement can take time.
Ask questions, read the "Newbie 101" thread of this forum and remain as gluten-free as possible - things are going to get better.
Hello, and welcome! We look forward to your contributions to the board.
You have taken a similar diagnostic path to many of us. And yes, unfortunately Sjogren's often travels alongside celiac. There are many on here who have it who will probably be happy to talk to you about it. Yes, "probably" is always awkward - you don' know how to feel
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Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
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Caffeine free 1973 Lactose free 1990 (Mis)diagnosed IBS, fibromyalgia '80's and '90's Diagnosed psoriatic arthritis 2004 Self-diagnosed gluten intolerant, gluten-free Nov. 2007 Soy free March 2008 Nightshade free Feb 2009 Citric acid free June 2009 Potato starch free July 2009 (Totally) corn free Nov. 2009 Legume free March 2010 Now tolerant of lactose
Welcome to the site GFinAus. Hey nice ring to your user name there! I hope you find plenty of info and support for your gluten-free journey here.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it." Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me. Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
GottaSki, I am really hoping that by going gluten-free my eyes will improve. Every morning, and if I ever have to get up in the night (and with 5 kids this happens more than I would like) I cannot open my eyes at all. Too bad if the house was burning down or there was an intruder, it takes me 10 minutes of massaging my closed eyelids before they will open! Will check out the newbie 101 thread for sure.
Hey GFinDC your username also has a catchy ring
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Positive antibodies (igG only, igA deficient)
Negative biopsy 2007
Diagnosed fructose malabsorption 2007
Positive ANA 2009, Vit D basically non-existant
Possible early Sjogrens disease was told to wait it out
2011-2012 increasing daily nausea, severe stomach pain, and worsening IBS symptoms, went totally gluten-free & felt better
Aug 12 -Daughter diagnosed DQ2 positive and celiac confirmed
Sept 12 - my gene test positive DQA1*05, so half DQ2 positive
GE said don't bother with gluten challenge & biopsy, he instructed to stay away from gluten for life
Welcome to the group. Everyone is super nice and supportive here
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Gluten Free since October 2012
Negative blood work, positive dietary response
Endocrinologist offered referral to GI if I needed formal diagnosis to follow the diet, otherwise just pass on wheat, barley & rye
and save my money
GFinAus! I'm down here, also. Mid north east coast.
Great support group, wonderful ppl. All been there, still there or just starting there. Everyone has something to offer.
And thank goodness for iPhones cause I'm too poorly to sit at the computer today. Auto correct sucks though. ;o))
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Doctor diagnosis 8 Feb 2012
Specialist diagnosis 5 March 2012
Started GFD 17 March 2012 after Endoscopy
Blood work & Endoscopy
