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Saying Hello From Australia
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Hi everyone,

I have been browsing this forum for a while and have decided to join and share my experiences. I have been gluten-free for 3 months and feel a lot better. I still struggle with high fat meals and excess lactose, but am hoping this will all clear soon. I'm hoping to learn more about other celiacs who may struggle with associated autoimmune diseases. I have been told by my doc I probably have early sjogrens disease. I don't cope too well with the probably part and don't like the thought of waiting but what can I do! In the mean time I would like to say how much I have learned just from reading through these posts, and look forward to chatting with you all :)

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Welcome GFin from Oz!

My MIL had Sjogren's - once I was diagnosed with Celiac Disease and learned the ins and outs of said disease, I strongly believed that she had undiagnosed Celiac Disease.

Here is the good - possibly great news: Many symptoms of Sjogren's are greatly improved or completely resolved once gluten has been removed. The bad news: This improvement can take time.

Ask questions, read the "Newbie 101" thread of this forum and remain as gluten-free as possible - things are going to get better.

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Hello, and welcome! We look forward to your contributions to the board.

You have taken a similar diagnostic path to many of us. And yes, unfortunately Sjogren's often travels alongside celiac. There are many on here who have it who will probably be happy to talk to you about it. Yes, "probably" is always awkward - you don' know how to feel :)

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Welcome to the site GFinAus. Hey nice ring to your user name there! :) I hope you find plenty of info and support for your gluten-free journey here.

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Thanks for your replies everyone :)

GottaSki, I am really hoping that by going gluten-free my eyes will improve. Every morning, and if I ever have to get up in the night (and with 5 kids this happens more than I would like) I cannot open my eyes at all. Too bad if the house was burning down or there was an intruder, it takes me 10 minutes of massaging my closed eyelids before they will open! Will check out the newbie 101 thread for sure.

Hey GFinDC your username also has a catchy ring ;)

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Welcome to the group. Everyone is super nice and supportive here

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GFinAus! I'm down here, also. Mid north east coast.

Great support group, wonderful ppl. All been there, still there or just starting there. Everyone has something to offer.

And thank goodness for iPhones cause I'm too poorly to sit at the computer today. Auto correct sucks though. ;o))

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    • Consider using our forum private message feature to protect privacy....just in case you all did not know 😉 !
    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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