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Saying Hello From Australia
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Hi everyone,

I have been browsing this forum for a while and have decided to join and share my experiences. I have been gluten-free for 3 months and feel a lot better. I still struggle with high fat meals and excess lactose, but am hoping this will all clear soon. I'm hoping to learn more about other celiacs who may struggle with associated autoimmune diseases. I have been told by my doc I probably have early sjogrens disease. I don't cope too well with the probably part and don't like the thought of waiting but what can I do! In the mean time I would like to say how much I have learned just from reading through these posts, and look forward to chatting with you all :)

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Welcome GFin from Oz!

My MIL had Sjogren's - once I was diagnosed with Celiac Disease and learned the ins and outs of said disease, I strongly believed that she had undiagnosed Celiac Disease.

Here is the good - possibly great news: Many symptoms of Sjogren's are greatly improved or completely resolved once gluten has been removed. The bad news: This improvement can take time.

Ask questions, read the "Newbie 101" thread of this forum and remain as gluten-free as possible - things are going to get better.

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Hello, and welcome! We look forward to your contributions to the board.

You have taken a similar diagnostic path to many of us. And yes, unfortunately Sjogren's often travels alongside celiac. There are many on here who have it who will probably be happy to talk to you about it. Yes, "probably" is always awkward - you don' know how to feel :)

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Welcome to the site GFinAus. Hey nice ring to your user name there! :) I hope you find plenty of info and support for your gluten-free journey here.

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Thanks for your replies everyone :)

GottaSki, I am really hoping that by going gluten-free my eyes will improve. Every morning, and if I ever have to get up in the night (and with 5 kids this happens more than I would like) I cannot open my eyes at all. Too bad if the house was burning down or there was an intruder, it takes me 10 minutes of massaging my closed eyelids before they will open! Will check out the newbie 101 thread for sure.

Hey GFinDC your username also has a catchy ring ;)

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Welcome to the group. Everyone is super nice and supportive here

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GFinAus! I'm down here, also. Mid north east coast.

Great support group, wonderful ppl. All been there, still there or just starting there. Everyone has something to offer.

And thank goodness for iPhones cause I'm too poorly to sit at the computer today. Auto correct sucks though. ;o))

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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