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Worse Tummy Aches Now Gluten Free?
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My 5 year old daughter had an endoscopy just under a month ago (which confirmed celiac). That day we went gluten-free. The first week she was super cranky and we thought maybe it was withdrawal but looked forward to her feeling better... especially her moods. It feels like things have only gotten worse since going gluten-free. How is that possible?

Last night for example she woke up kicking and screaming. Turned out her tummy was hurting so badly, for a while I started worrying it was her appendix. It seems like in the last 2 weeks she has been getting "stingy" tummy aches. At first I thought it could be from milk but I am not so sure. Yesterday she had no milk. She DID have a chili from a restaurant, that was supposed to be gluten free but I suppose there is no guarantee a crump didn't get in there.

Is it possible that after being gluten-free for such a short time her reactions could get worse so quickly? I am not even convinced that she has been 100% gluten-free. We did a big clean out and have made our house gluten-free. Got a new toaster... cleaned all the cupboards etc. However I have found a few things that we missed.

I am feeling really overwhelmed. I thought it would be a lot easier and that we wouldn't be just a couple weeks in and be having these kinds of issues.

I would love and thoughts or feedback. Did anyone go through something similar?

Many Thanks.

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It is possible she was glutened. Another thing to look at is what has increased in her diet? There is a possibility the new thing you have replaced gluten with is a problem. I would keep a detailed food log and symptoms to see if there is a correlation.

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Poor thing, I hope she gets better soon... Personally, I wouldn't eat out for a while.

Hope things improve soon.

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She probably still is. Also, remember, foods that are spicy or heavy on a stomach are not really good when your healing. Stick with things that are on the mild side for a while.

Another thing is she could still be going through withdrawl. Heck, it took me a good two months to get over it.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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