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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Blood Results Back
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6 posts in this topic

Heyy so got my blood results back Friday listed the tests i got below

Full blood count, Glucose random, Liver function tests, Thyroid function test and Urea and electrolytes for gp and ESR

All came back normal apart from my Liver which was high, anything i should interpret from this? I have to have it retaken in another 3 weeks to see if it changes any. I was reading that people with celiac/intolerance's can have higher liver enzymes though not sure why. Thx

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My liver was high at celiac dx and lowered at each check - was normal at my one year celiac follow-up.

From what I understand the elevated liver enzymes is your liver working overtime to help clear waste. Made sense to me that mine was elevated with the stress my body was under. I would certainly ask your doctor what else could cause elevated liver enzymes.

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Hi there.

Has your doc advised you to do anything differently during these 3 weeks? And do you know what 'high' means in terms of numbers? My LFT came back at 40 when average is 35. I was worried but doc said it's only a bit high and she sees results in the hundreds. I felt reassured and have retake test in 6 months. Despite reassurance i'm still going to reduce alcohol intake. Did your doc give any indication as to why liver test might be raised?

Good luck.

Nicky

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My liver was high at celiac dx and lowered at each check - was normal at my one year celiac follow-up.

From what I understand the elevated liver enzymes is your liver working overtime to help clear waste. Made sense to me that mine was elevated with the stress my body was under. I would certainly ask your doctor what else could cause elevated liver enzymes.

hey we only spoke over the phone i guess it wasn't super high or it would have been more urgent. Guess il just have to see what the next results say. Thx

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Hi there.

Has your doc advised you to do anything differently during these 3 weeks? And do you know what 'high' means in terms of numbers? My LFT came back at 40 when average is 35. I was worried but doc said it's only a bit high and she sees results in the hundreds. I felt reassured and have retake test in 6 months. Despite reassurance i'm still going to reduce alcohol intake. Did your doc give any indication as to why liver test might be raised?

Good luck.

Nicky

Hey Nicky, No the doctor hasn't advised anything it was just a chat over the phone so it was hard to get much. I dont have the number suppose i should find out. He just asked me about my alcohol intake which for the last 3 months has been zero though as ive already discussed with him i did live the "binge" lifestyle for around 3-4 years. The thing is its easy to just blame the alcohol and interesting that people with Celiac do have higher liver numbers.

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Hi there.

Has your doc advised you to do anything differently during these 3 weeks? And do you know what 'high' means in terms of numbers? My LFT came back at 40 when average is 35. I was worried but doc said it's only a bit high and she sees results in the hundreds. I felt reassured and have retake test in 6 months. Despite reassurance i'm still going to reduce alcohol intake. Did your doc give any indication as to why liver test might be raised?

Good luck.

Nicky

Hi Nicky-

My personal experience matches what your doctor said. My was slightly high at Celiac Diagnosis low 40s with reference range of 0-33. My Celiac Doc told me that it is quite common for elevated liver enzymes with active Celiac Disease. It came down steadily over time gluten-free and was in normal range by one year. I'm at 3.5 years gluten-free and it has held steady around 15 for over a year.

Not suggesting you should drink more, but I did enjoy a glass or two of red wine many evenings while my liver numbers were steadily falling.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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