Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

B12 Limit Question


  • Please log in to reply

5 replies to this topic

#1 katrina500

 
katrina500

    Community Member

  • Advanced Members
  • PipPipPip
  • 25 posts
 

Posted 15 October 2012 - 07:45 AM

Hello, my earlier post explained that I had accidentally had gluten about a week ago. My symptoms are also telling me that my B12 is also low.

My blood tests always come back as normal but just within the normal range. I also drink too much alcohol about three or four nights of the week and I know that, coupled with celiac disease, hinders absorption. My Doctor won't give me B12 injections because of my blood results.

I have B12 supplements which are 1,000 mcg per tablet. Do you think it would be okay if I took 3 or 4 of these a day? It recommends one on the packet. I haven't taken them for about 5 months.

Thank you. 😴
  • 0

Celiac.com Sponsor:

#2 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,763 posts
 

Posted 15 October 2012 - 08:56 AM

There are sublingual tablets that go as high as 5000. I don't think it would do any harm to take a couple daily for a bit. B12 is a water soluable vitamin so you would simply excrete the excess.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 mamaw

 
mamaw

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,025 posts
 

Posted 15 October 2012 - 11:45 AM

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..
another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......
  • 0

#4 foam

 
foam

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 220 posts
 

Posted 17 October 2012 - 10:54 PM

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..
another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......



I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.
  • 0

#5 frieze

 
frieze

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,092 posts
 

Posted 18 October 2012 - 07:48 AM

I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.

If you are taking prescription Vitamin D, you would be better served going to the health food store, or event supermarket, and getting D3. The script version is D2, unless otherwise stated. good luck
  • 0

#6 foam

 
foam

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 220 posts
 

Posted 18 October 2012 - 05:30 PM

Hi no, I'm on 50,000 IU D3 capsules, I live in a fairly dark windy and cold place so the majority of the population are on D3 supplements, the capsules are made locally. Usually 4 capsules brings most peoples level up to 100, just hasn't worked as quickly for me.
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: