Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

B12 Limit Question
0

6 posts in this topic

Hello, my earlier post explained that I had accidentally had gluten about a week ago. My symptoms are also telling me that my B12 is also low.

My blood tests always come back as normal but just within the normal range. I also drink too much alcohol about three or four nights of the week and I know that, coupled with celiac disease, hinders absorption. My Doctor won't give me B12 injections because of my blood results.

I have B12 supplements which are 1,000 mcg per tablet. Do you think it would be okay if I took 3 or 4 of these a day? It recommends one on the packet. I haven't taken them for about 5 months.

Thank you. 😴

0

Share this post


Link to post
Share on other sites


Ads by Google:

There are sublingual tablets that go as high as 5000. I don't think it would do any harm to take a couple daily for a bit. B12 is a water soluable vitamin so you would simply excrete the excess.

0

Share this post


Link to post
Share on other sites

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..

another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......

0

Share this post


Link to post
Share on other sites

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..

another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......

I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.

0

Share this post


Link to post
Share on other sites

I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.

If you are taking prescription Vitamin D, you would be better served going to the health food store, or event supermarket, and getting D3. The script version is D2, unless otherwise stated. good luck

0

Share this post


Link to post
Share on other sites




Hi no, I'm on 50,000 IU D3 capsules, I live in a fairly dark windy and cold place so the majority of the population are on D3 supplements, the capsules are made locally. Usually 4 capsules brings most peoples level up to 100, just hasn't worked as quickly for me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,152
    • Total Posts
      919,606
  • Topics

  • Posts

    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
    • How were the allergies diagnosed? I only ask because it's highly usually to be allergic to it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,188
    • Most Online
      1,763

    Newest Member
    Raany
    Joined